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CharlieD

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Everything posted by CharlieD

  1. CharlieD

    Riti

    Hi Riti Thanks for sharing your story. I am glad you felt ready to now. I completely understand what you describe in terms of it being the most traumatic thing to happen to you, the worrying about health and the young person in an old person's body(though I am a bit older anyway at 41). I think the mental is as tough as as the physical recovery and I put the same energy into healing that side as I do the physical. I think it has helped me accept my new reality as you describe it. Though I do still have bad days with this as we all do I am. I am
  2. Hi Vicky, Sorry to hear that you have been through such a hard time and are struggling. I remember very well the feeling of panic and fear. I used to not want to be on my own and used to speak to a friend who felt exactly the same. She was able to ask a friend to stay with her through the worst of it and I am lucky to have a very large family and was not alone for a while, so I do feel for you having to do it alone. What I would say is, I genuinely did not think I would ever be ok alone again or going out alone but as time passed those things came more naturally and t
  3. Congratulations on your 6 years. I swore I would never get on a plane again then I moved to another country and made myself. It's a very short flight but I am determined to live and travel. I am sure you will do the same. A month in Lanzarote sounds lovely.
  4. I am very sorry for your loss. Whenever I read anything from Win I though she has such a positive attitude and was always trying to help others in their recovery . I was very sad to read this news indeed. xxx
  5. Hi Daffodil Congrats on your 8 years. I always read your posts and comments and aspire to have your mindful approach to life. Maybe one day😊 Well done on all you have achieved. Charlotte
  6. Hi Salllios I echo what everyone has said. I think sometimes the reliving it is worse than going through it as you can't just leave it in the last. I also had CBT and it did help for a while but once I stopped it soon crept back in. I am going to return to therapy as I think it really helps. I also find mindfulness and yoga helps too. Swishy I really can relate to everything you said. I would love to just not think about it. Not quite at 2 years yet but hopeful it will happen. Wishing you all the best for your recovery. Charlotte
  7. That's great Bev, how frustrating you have had to wait for so long the relief but I am glad you now know however they do it there is an end to the suffering.
  8. Thanks, found it. Donation all done. This is a great site and has certainly helped me through the tough times. I hope it continues to do the same for others.
  9. How do you make a donation to the site? I can't find a donate button. Might be because I am on mobile.
  10. Hi, I am sorry to hear your wife is still in pain. I am 18 months and have a headache every day. Sometimes they are worse, sometimes sharp and sudden, sometimes constant throb. They have changed over time and new things have started up. Having said that other things have improved so I am very lucky in many ways. I thinking finding a good neurologist is so important. I pay to go as the waiting time on NHS is so long at the clinic I was at. I intend to pay twice a year for him to review me and my meds and that gives me piece of mind as I find my GP'S do not get the exte
  11. Hi @Patc I had my bleed May 18 and have been left with much the same as you but headaches are also a real problem for me. I do have the strange sensation at night. I described it as like a wave going over my head and down and usually ends in that feeling in your stomach though sometimes it has ended with burning sensation everywhere. I see a neurologist and I told him it feels almost like a seizure, I feel wiped out after it. He gave me an eeg but said as it only happens at night it is unlikely to show. (The eeg showed slowing of brain intermittently, he said he would
  12. That's a lovely post to read and know that she still has a great life ahead of her. All the best.
  13. Congratulations on 5 years! Its lovely to read you have made such strong friendships.
  14. Hi Ami It sounds like your colleagues are not being very supportive considering all you have been through which is a shame but that is their problem. You just worry about you. I thought this might be useful. https://www.headway.org.uk/media/6580/managing-fatigue-e-booklet.pdf It is a great way to understand fatigue and could help your boss and colleagues to understand. Good luck.
  15. You are not the only one. I have for sure had those thoughts more times than I can remember. I have a friend I made online and in 1 year she said she has genuinely only worried maybe 5 times it was happening again. I said I usually worry that in a day. I think some people just react differently and can't do believing it was a one time thing and move on as well as others. I am def one of them! I do think time has helped me the most and I hope it will continue to. I have also started therapy which is helping. I am better in the days and I try to make sure I rest plenty so I don't fee
  16. Hi Ruth Welcome to the site. I enjoyed your first blog. My experience was almost the same as yours minus the day as a gnome. I look forward to reading your next one.
  17. Thank you all for your kind words. It is a journey to be sure. @ClareM I am working with my neuro to find the right treatment for everything. It depends what day you catch me as to how that is going😆 I know am a big siesta fan. In fact I have one on the floor of my meeting room at work all the time. Lol Wishing you all well.
  18. It seems unbelievable that it has been a year. Lying in my hospital bed and then coming home and being told I will go back in a year. I didn't really believe I could survive a year I felt so bad but here I am. It's been without question the toughest year of my life. I am a different person to who I was, strangely I don't see that as all bad. I know what and who is important now. I found out who my friends really are and thankfully I have lots of them and an amazing family. When I read about people who do it with little support I wonder how they manage I have been left
  19. Congratulations on your 4 years. And for being able to live with such a positive attitude. This is something I am currently trying to alter my mindset to, as you are right, worrying does not change anything. I was 39 when it happened and turn 40 this coming week. I hope when I turn 44 I can make such a positive post. Take care.
  20. Hi Jimble. I have had an eeg, not had results yet but nothing happened during test so am sure was all fine. It sounds very similar to what you have. I was told to keep a diary of when they happen. I am not surprised you worry after your second. I really hope the MRI is clear and you can get on with your life. I have had a few occasions where I have wondered if I have had tiny bleed but decide to wait and see. Did you know when you had the second?
  21. Hi Dave, I'm glad you are recovering so well. 8 months now for me and am not sure I am where u r but hopefully one day. Hi Bev, I know what you mean. I feel like I go through phases where improvement stops then i see a small change. I felt that a few wks ago. Its like a rollercoaster. I have times when I am feeling better but I do suffer quite badly with head pain and fatigue. It is such a change from how life used to be but my favourite line these days 'it is what it is'. I still think accepting what's happened and coping with anxiety is still one of the hardest par
  22. Hi Vicky, I have suffered badly with head pain since my NASAH last May. I rarely have a day without pain. The GPs have not been able to help really I have needed a neurologist to make any real difference. Have you been referred? I feel on my new mix of meds I am going in the right direction but I am constantly being told it takes time. I find a warm flannel on my head and a warmed lavender neck bag (you know the ones that go in the microwave). I completely understand how frightening every headache is. I also do deep breathing when the pain is bad. I know they wil
  23. Hi Bev I hope your presentation went well. I know exactly what you mean with the feeling tired after the head pain. It is strange how the brain can do such crazy things after a bleed and not knowing what is normal and what isn't. Sounds like you are making great progress. Do you mind me asking if yours was an NASAH or an aneurysm? I do have to keep reminding myself to drink more water, it's so easy to forget. All the best Charlotte
  24. Hi Jimble, I have had a number of strange sensations but one that does feel like a rushing or wave from my head to the bottom of my spine. I have been to the doctor about them but don't see my neurologist until Jan and GP just say see him. I thought they were a form of seizure but everything I read said not and will not know until Jan. I am on Gabapentin for the head pain and strange stuff so wonder if that's suppressing things somewhat. What do yours feel like? I read previously that you have had two. I don't know how you stay sane. Sorry to hear you are now dealin
  25. Thanks Patc it is nice to hear you are pretty much back to your old self. I can't wait for the sudden weird head stuff to stop. I find that massively impacts my anxiety levels, obviously. Sounds like after 30 years in a class room you have earned the break! Thanks for the advice. I will listen to it all from every one.
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