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iola

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Everything posted by iola

  1. I am so glad I read this thread. I am just coming up on one month from having an NASAH. I know I have been doing more than I should. My sleep patterns are way off and I have tingling and burning in my head that causes severe dizziness and honestly terrifies me. Not to mention the pain in the back of my neck. I am scared of the nightmare and do tend to relive my "adventure" every night. I am glad to know I am not the only one and this site has been such a comfort to me. Thanks to all.
  2. Thank you both for the kind words. Actually my nickname is "I". Yes, I can see and feel the change in me. Every day is a little better and my body lets me know when I've done too much and I did a couple days ago and felt it all the next day. I tell people I may walk slow right now but I still get there. I was a very " get up and go" type person with little patience. My husband used to say I went from zero to 100 in a matter of seconds and back. Not now. I am actually telling him to be patient. I will have my third angiogram in June and as uncomfortable as it is (not sure why they do not put a person completely asleep) I will feel a bit more sure I am okay. "I"
  3. Hi, I am just a little under four weeks in from my SAH. Actually, mine was non-aneurysmal but have the same physical struggles. Nights are a challenge as well as fatigue and dizziness. From reading other responses this is all part of the "adventure." I have learned quickly that rest and hydration are most important, which can be a challenge too.
  4. Good Day Everyone. This is my first post. I have read quite a few stories that have helped greatly. Very informative and encouraging. On Apr 9th, 2013 I was in Philadelphia, PA (for work) just sitting down for dinner with my boss and co-worker around 8:30 pm. It was a beautiful warm spring night. Next thing I knew I was not feeling so well and felt dizzy and almost like I was being pulled away from everyone. Next I felt "the worst headache of my life", which I am sure you can relate. A ferocious headache. When they ask you, "On a scale from one to 10 how does you head feel?" I now know what a 10 is! I never suffer from headaches or migraines so I knew something was terribly wrong. After about 15 min (which seemed like a lifetime) I told my boss to take me to the hospital. Little did I know I was at one of the finest neurological hospitals on the east coast of the U.S.; Jefferson University Hospital. What are the odds? Next thing I knew I was getting a CT Scan that confirmed a brain bleed. Then I was told it was an SAH, but, since I never lost consciousness and was able to talk they were not sure if it was from a aneurysm. I remember the doctors telling me the bleed looked like it was. I the mean time my husband had been called and had to put our seven yr old daughter on the bus and drive four hours to PA not knowing my outcome. As the powers that be would have it, they did the angiogram and did not see an aneurysm but had to wait eight days in ICU for a second to confirm. The second was also negative, which is a blessing. I was released after two weeks and now home reading and wondering and moving at snail's pace. It's slow going and the fear of this reoccurring has me pretty scared. Although, from what I have read the prognosis is good. Nights are tough and there is lots of pressure, like a rubber band tied around my head, but I am doing what I am told to do and trying to rest and heal. I am not one to sit around so resting is a new element in my life. So, there you have it; my story. Similar to others I have read and thankful for that. There is hope and there is a future and I am still here and thankful I can raise my daughter.
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