iola

Hi Lesley, I was on keppra and when the dr weened me off I went from two a day to one for a week and then one every other day the week after. I do remember feeling dizzy and off kilter for about a month. Did not have a terrible reaction but I do remember one day just feeling like a was a a character in a movie. Weird. Hope you do well. Congrats you are at a point of weening! Iola

Hi Julie, I do not sleep well. Partly to do with anxiety and trying to get comfortable. I sleep best on my left side now. It's getting better but I still wake up quite a few times at night. When I do wake up in the morning I'm usually pretty tired. Need a shower to get moving. Iola

Hi Desy, I am so sorry you are going through this. I'm a praying kinda girl and will pray for you. It is quite a roller coaster ride of emotions. You are a healthy person one day not thinking about sickness or death and the next this awful thing happens and thoughts of life and death can begin to consume you. The first two months after mine I cried every day and begged God for my life. I went through so many emotions. Dispair and fear were on top of the list. I knew I was blessed to be alive but when you are not well, recovery seems so far away and not reachable. There may've been a time we may all have thought it would be great to go to sleep and wake up healthy. I do hope and pray that even though you are gong through a very troubling time, believe this will pass and the light will shine on you again. As quickly as disaster strikes so suddenly can salvation come to our rescue. I believe this with my all of my heart. Hope you are feeling better. Iola

Desy, You have to do what is best for your health. Without our health nothing else matters. Good thing you have a partner that is able to take care of you. From my opinion, you have been doing far too much too soon. We all have to come to a point of accepting we have had this awful thing happen and it has changed us for the good or not-so-good. You have a skill and in time you may go back to doing what you love, if that is what you love? I have been doing what I do for 20+ years and after all this happened to me, it is not as important. My health is and my family is. Now, there are bills to be paid and I am fortunate to have a husband that works and can make the bills. Going back to work does set a routine up but you must do it when you physically can. Pace yourself and heal first. You have had some pretty scary things going on lately. Dia Duit. Iola

Win, You are one of the kindest people I've had the honor to virtually meet. I also come from a loud family. As the youngest of seven and with grown nieces and nephews and added great nieces and nephews I am not sure if anyone is really listening to the other anyway. To that, I will say noise bothers me now. Before, I was right in the middle of it all. And, I also have a difficult time listening to others that think they have troubles when they have no clue what trouble really is. But, I have to remember I was one of those complaining people before all this happened to me. I have a brother-in-law very sick with cancer and I watch he and my sister going through just awful times and I find my heart much softer now and not as selfish any more. I do hope you are feeling better. I

Julie, I so understand frustration. I walked with a cane for awhile before I walked alone and when I did I moved at turtle speed. I didn't care though I was busy dealing with the invisible helmet and hairband on and around my head. I still get pressure and tension headaches along with the burning feeling at times. My boss said to me the other day that he thought I'd be past most if this by now since it was a "little" trauma. I set him straight real fast. Just because the outside may look normal has no reflection at all what is going on inside. He has been wonderful but that just hurt. I had to laugh when I read your other sentence about not being so happy about having a SAH. I hear ya loud and clear but one thing is for sure, it definitely puts life in focus. It did for me. God bless and continue with that wonderful outlook. Did me some good. Iola

Hi Desy, I was on keppra so I do not know this drug. Although, I did look it up to understand a little more. Hope you will do well on it and not have to take it for too long. iola

Hi Julie, I think you are doing wonderfully. Wow, what achievements!! Be very proud. I am almost at my 5 month mark and have been feeling a bit sorry for myself. I read the posts on here and realize how blessed we all are and our tiny steps to others are big giant steps to us. I am working part-time right now and it is putting a 'hurting' on me. Headaches in the afternoon and I've had this glorious stabbing pain through my left eye for days now. It's going to rain where I am so that does not help. Thanks for putting things for me into perspective again. Keep up the fantastic work!! iola

Hi Desy, Wow, you are going through a lot. I just told a friend of mine that I never wake up feeling good. I am full of anxiety and my stomach is always queasy and I am a little shaky. That might be my low blood pressure though. Of course the dull headache creeps in too. I understand that flighting feeling of dread. I literally have to take a shower to feel alive and get myself moving every day. I do hope the drs get this under control for you. I

Hi, Yes, it is amazing how little you are told, even in other stroke sites I have found, but, I know the bills came like clock work. They did not miss a beat there! Hope you are doing well. My headaches are a little more aggravating than normal but I really think that has to a lot to do with doing more too. It can be a double edged sword sometimes. You want to do more, you do, then pay the consequences. Ugh. Hope better days are ahead. I

What an accomplishment and what strength. Do something nice just for you. You deserve it.

Hi Desy, I had an MRI/MRA just 4-1/2 months ago. Not painful, except for the headache after because of all the loud noises. The MRA (angio) dye is "warming" to say the least. If I remember correctly they will ask you if you are allergic to shellfish and you may have the feeling of peeing your pants!! Hope all is well with you and you mother as well. God bless. i

Hi, So happy to read this. I've been back to work for almost three weeks and I do have fatigue and what I like to call "short circuits" in the afternoon. I have stress headaches from my eyes and the burning, jabbing pains in my head, which, I explain to peope, is like my brain is short circuiting. It's been four and half months and I am slowly coming around. Some days are not good but work does help with routine and takes my mind off of this miserable chain of events. My daughter just started school (3rd grade) so we lay down in bed to do homework. I truly do need the rest after work these days. i

Hi, It really has not been that long since your SAH and I'm only a few weeks ahead of you. I know that my husband, even though very supportive, wonders why I just can't accept this happened and have a positive outlook on life. I know with me my 'comfort level' with all of this can vary depending on how I feel that day. We are both in the early stages of recovery and it is just down right hard some times and since no one sees a a scar anywhere they cannot understand why you are not you. I could be completely off, but, maybe not. I

Hi, Sounds like you had a non aneurysmal SAH? I had one too. Yes, be sure the drs clarify for you. It's a very scary time and please rest, rest, rest and do not pick up anything heavy for awhile because of head pressure and if you had an angiogram. I have an 8 yr old so it can be hard but owe it to your health and family. I

Hi Julie, I had my non anuerysmal SAH (NASAH) in April so I'm a little over 4 months. You will get used to seeing that acronym. I understand your shock and fear. Reality hit when I got home. So much to read and some are scary. After my third angiogram my neurosurgeon released me. I felt like I was left out in the middle if no where with no energy to figure out what to do next. Thank goodness for family and friends. Depend on them especially the first couple of months. Mentally and physically, you are drained and the question of "why" is never really answered. More importantly, begin the healing process. It can be difficult at times but the sun will start to shine again. Remember, you are very blessed to be alive. Iola

Hi Kris, Very inspirational. I am only at 4 months and looking forward to 6 months, 12 months, 15 years, etc..... Have a wonderful day. Truly deserved. iola

Hi Jo, I had my NASAH (non aneurysmal subarachnoid hemorrhage) in Apr, two days after my birthday. I understand your worry and fear. The first couple of months can be difficult. I have an 8 yr old and it is hard but they will get through this with you. I had three angiograms; all negative. Drs told me they do not why this happens. May be a weakened superficial artery that ruptured and obliterated itself. I was told I was probably born with it and most likely not happen again. Rest as much as you can and accept help from whomever is there. Don't pick up anything right now and think about you and your recovery. Takes lots of time. Iola

Hi! I just hit my four month mark and it is way better than the three month mark. I thought this magical day would come and I'd be kicking my heels. Nope. I had a lot of ups and downs. Time and patience. A very wise person told me your recovery is yours. Take your time and do not push anything. I

Hi SarahLou, Thank goodness I have a great boss that is allowing me to phase back in as well. He was there when I had my hemorrhage and fully understands my need for taking it slow. Yes, it does feel good to work again but boy am I ever tired! Time and patience.....

Casey, I love the word "fret". I like it!

Thank you everyone. I must admit I do have a headache today but I will push forward and see what I can accomplish today. i

Hi Desy, How did the Dry needling go? iola

Hello All, I know this thread is out there somewhere, but...... I started to work part-time yesterday. So far I am okay but exhausted by the end of the day. Meetings, emails, reading..... My profession is a Contracts/Pricing type so lots of reading and numbers. I must admit I do not miss all the reading. Boring. Thank goodness for a calculator. I am working from home so that is good and everyone at work is very understanding right now. Will see how it is in a few months. I used to live for my job but I just really do not care as much now. Funny how things fall into alignment after something like this happens to you. I am in another meeting right now so you see how interested I am. I feel pretty good today so I sometimes wonder when the fear of this happening again will go away and I can do my job, go on vacations, live my life without this hovering. Sorry, just jumped topics but I figured while I am on here I might as well ask this one too. Hope all is well with everyone. "i"

This is really good information. I am going to a neurologist this week since my neurosurgeon is in Philadelphia and I am in Maryland.