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iola

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Everything posted by iola

  1. Thanks Casey and Win, Definitely taking Tylenol and drinking more water today. Forgot to mention I helped my daughter make a sand castle, which meant a lot of bending and digging. Not such a good idea in retrospect but what ya gonna do when you have an 8 yr old?
  2. Hi everyone, I took Keppra for two months (twice a day) and after my last angiogram the Dr started weening me off. First week I took one every day and this week I started every other day. I have noticed my headaches are a little more intense (more stabbing pains and tension) and I have been very snappish and short with people. I am also on vacation, at the beach, and its my third day and had to leave the beach to go cry and then lay down. I have been doing quite a bit and with the weening as well, I'm thinking my brain and body are tired. What type of side affects, if any, did anyone have coming off Keppra? Thanks for any info. I
  3. Kris, i do not know you as we'll as the others here but the posts I've read you are a very level headed logical person. Emotions tear away at logic and puts us in a very vulnerable place. I cry quite a bit now, to the point of making my head hurt. I have to talk myself from anxiety to calm. I keep quietly saying to myself, "calm down and breathe." I say it over and over again slowly and it seems to help me gather my senses. It is difficult to know the right words but this, as with all, will pass. Quiet and relax. Calm. i
  4. Win, i am very sorry you are not feeling well. I'll say a little prayer for you hoping u r feeling better very soon. i
  5. Thank you. Hugs from the East Coast (Maryland) to the West Coast.
  6. Hi, I've only been posting and reading stories and threads since Apr and just stumbled on the site but what a great gift. I find myself checking for posts every day. It has been so educational and informative. Most of all it gives me hope. I
  7. I need a little squeeze doll named Win that says, "You can do it!". Not kidding!!
  8. Hi, I so understand. At 34 and preparing for my wedding I found out I had cervical cancer and three mos before my wedding I had a hysterectomy. I had no children and was going to get pregnant ASAP. Big change in plans. Getting well after that took a long time, but, we adopted five years later and now have a beautiful 8 yr old. All the pieces fell into place. I thought all health issues must be behind me as I am/was very active over achiever and very fit 47 yr old. Then this. What in the world? How is this possible? I am only a litte over two months post-op and this is more difficult than the day I was told I had cancer. It truly is life changing and I find I want to do so much but by 4:00 I am done and ready to lay down, which is not easy when you have an 8 yr old wanting her "normal" mommy back as she has told me. I am usually a very social person but have noticed get togethers right now and going out to dinner give me big anxiety. With all ths said I know I am blessed but I can't help but wonder why.......okay, I'm done.
  9. Hi Sarah, I am only a little over two months from my NASAH but it is very fresh in my mind the first month. In the hospital I felt safe but once home I cried every day and the fear of dying was all about me. I'm a praying kinda girl so I do quite a bit of that. Dizzy constantly, whooshing feelings in my brain, headaches, the feeling if a rubberband tied around my head. Yes, I still feel like I am wearing a headband most days but finally the headaches are not as bad and now have those sharp dagger type pains. Always tired but I push forward but not too much. Baby steps. It does slowly get better but feels like forever. Especially, if you were a get up and go type person like me. Sunny days seem to be better than rainy days emotionally and physically. I have been through frustration, fear, depression, despair, happiness, relief, love, etc.....You get the picture. . It's an emotional roller coaster and we are either on the same ride or probably been there. It's wonderful to know you are not alone, and, you are not. I
  10. That is soooooo true. I just hit my two months and the realization that I am not the same person I was prior to Apr 9th is jaw dropping to say the least. Glad it is not just me. Thank you for this post.
  11. Hi, I had three angiograms. 1st when I got to the hospital. 2nd eight days later to double check to make sure I did not have an aneurysm (my bleed came from an unknown source) and just had my 3rd after six weeks for the all clear. I was out for my 1st and 3rd. Remember bits and pieces of the 2nd and did not like that. I am sure it all depends on the doctor, hospital, and your individual need. i
  12. I am celebrating two months and done with my third angiogram. I can't wait for my one year. Not sure if I will sing out to the world but I will definitely thank God and all the wonderful people that helped and sometimes pushed me through this difficult time. i
  13. Hi, Prior to my NASAH I rarely drank water. But, in the hospital, I was told to drink plenty of it to keep my veins plump and hydrated so to keep the blood and oxygen flowing smoothly. So, now I try and drink as much as I can but I'd drown drinking 3 liters a day cannot even imagine the bathroom breaks. I
  14. Thank you. I so needed to read this. I am going on 8 weeks post NASAH and this was so uplifting.
  15. Hi Lesley, You are not alone emotionally. I am going on 8 weeks and still have daily crying spells. I believe it is a combination of the SAH and meds. Reality hits home when you are alone and start searching for answers, which may never be truly apparent. Smile, you are alive and even though it is difficult, you have so much to look forward too. I look at my soon to be 8 yr old and know why I am here. Children are so healing. I
  16. Hi, I am fairly new as well. Had my NASAH in April. I am no veteran to all of this but what I have learned so much is from this site and also digging and reading and scaring myself and educating myself as much as possible so when I do go back to the doctors I am armed with the right questions. My first two weeks home were very difficult. Depression, crying spells, weird whooshing things going on in brain, fear, and good ole anxiety, which has decided to stay awhile. This site has helped immensely. Hoping you are feeling better soon.
  17. Hi, I am 47 and had mine (NASAH) on Apr 9. Similar story. Did not know what in the world was happening but also knew I had to get to a hospital. After two angiograms they did not find an aneurysm and will go for the third in a couple weeks. I am on keppra as well and took my body awhile to get used to it. Not sure how long I will be on it either. That is another great thing about the site, it gives you the tools to ask the right questions when you see your doctor. Keep healing!
  18. Hi Brian, I know exactly where you are mentally. I had mine (NASAH) in April. I am 47, do not smoke, do not have high blood pressure and avg weight and height. Sitting back in Philly, PA having dinner and next thing the ferocious headache and numbing/stiffness down the back of my spine. Doctors told me the same thing, "you would be dead if you did not come here." I never lost consciousness and could not understand why this was happening. I have a soon to be 8 yr old so I can only imagine the liveliness in your home. I understand your fear and pray every day for courage. One thing I have learned on this site is you are not alone and everyone has been right where you are. It's a very slow process but you do slowly start to come around. Some days better than others but my husband always tells me, "it's just a small blip on the radar if you look at the entire big scheme of things." "I"
  19. This actually helped me quite a bit. I am only 6 weeks from my NASAH and now the back of my neck is starting to hurt and also feeling a little sorry for myself today. This thread really lifted my spirits so thanks for sharing. "I"
  20. Thanks to all. Sleep is a challenge and I m trying. I was a night owl but I am in bed by 8:30 or earlier these days. You are right, I was doing far too much and my body let me know it. I just turned 47 but before this I felt unstoppable. Boy, was I ever wrong.
  21. All your experiences are much appreciated. No, I do not have an incision and can only imagine that challenge. Spent most of the day in bed resting, which I do need. Quiet is nice but I do love hearing my daughter play. It helps the healing process all the more. Blessings to all.
  22. Thank you. My biggest worry/scare is the severe dizziness that seems to come on out of nowhere in the evenings. I get this hot burning heavy tingly feeling in my head as though I am going to pass out. I don't and become very scared its all happening again. The back of my neck hurts too. Hard to get comfortable. My sleep patterns are way off and i do try and rest but it is difficult. I know I do too much during the day but when I am doing I am not thinking and takes my mind off my head, if that makes sense? Just want to know this is all part of the healing process and others have encountered these issues as well. Thanks again for your support. It truly helps.
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