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Hoofbeat

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Everything posted by Hoofbeat

  1. Hi Ally, If you read back over old posts, you should see details of how I got my driving licence back. For me, my consultants referred me to see the Neuro psychology (NP) team and they did some psychology testing which showed I had strong observational skills, no issues with my memory etc and that NP team wrote an extensive report which I submitted to the DVLA (it also mentioned that my job involved a lot of observational skills and that given I'd returned to work successfully, that suggested I'd compensated for my vision). Based on all of that, my Neurology
  2. Hi Johnnie Yes, I think you could reapply in August this year. I think it's still an 8 week rule that applies: https://www.gov.uk/reapply-driving-licence-medical-condition When contacting the DVLA I refenced the 'Exceptional Circumstances' given on the following page: https://www.gov.uk/guidance/visual-disorders-assessing-fitness-to-drive I'd recommend getting your neurologist to confirm that whatever caused your visual field loss was an isolated event (I'm afraid I haven't read any of your previous posts so am not sure what the cause was of your s
  3. Hi Johnnie, sorry to hear you're a fellow sufferer of peripheral vision loss and apologies for not replying sooner! As one of the previous posters said, I haven't actually been back on this site for a long time and didn't see this until I got a nudge from one of the admins The good news is that after a very long battle I did manage to get my driving licence back and for me life has returned to pretty much normal, so Johnnie don't lose hope just yet. I still have a blind spot on my RHS in my peripheral vision (no improvement since about 6months post the bleed) and offici
  4. Good luck Win - keeping my fingers crossed for you
  5. Teecher, thanks for your response - it's given me lots to think about! I've now been on the atenolol for almost a month and I have to admit the difference has been amazing! Whether that's purely a coincidence, I don't know but (touch wood) I haven't had a single migraine or a bad headache at all. Furthermore even my mild headaches have been virtually non-existent - I feel so much better despite being so much busier. However, like you I enjoy exercise (though the distances I run are significantly shorter!!!). I've found even running to the gym (1k) to leave me feeling very worn out, whereas I
  6. Hi Jan Welcome - I hope you find the site useful. I'm another person who just "happened to have a bleed" one day! I don't know whether it was from a vein/artery, but no explicit cause has ever been found for my bleed and no treatment was required - just rest. In my case the bleed was intracerebral rather than subarachnoid (which I think means mine was more serious as it was actually inside the brain rather than in the space around the brain), but there was no aneurysm found and the doctors have told me that we will never know for sure what caused it. They think it was likely I was just born w
  7. Hi all Just wanted to post an update. So I've had a few migraines the last couple of weeks and I still can't find a common cause (other than maybe doing too much!) so I spoke to the GP on Wednesday (a different one as my usual GP wasn't available). He suggested I be put on a preventative migraine medication to see if that makes any difference. He then checked the letter they'd received from my neurologist and this was also what the neurologist recommended if I didn't have much success with Paramax. Both the GP and neurologist thought that we should try me on Atenolol, which is a beta blocker
  8. Karen, I'll speak to the GP about propranolol. Iw as just worried as it lowers the BP it might have a blood thinning property, which is something my neurologist is keen to avoid. Jess, I've already been on 10mg of amitriptyline since December to help with my sleep (initially 20mg), but I've been weaning myself off it as I don't like how tired it leaves me in the morning if I try and wake up early (but after 8 hours sleep). I'm starting a phased return to work and am trying to increase my hours slowly so have been trying to come off the amitriptyline (was down to taking it every other day). I
  9. Thanks everyone, I already keep a diary of my life (I'm the sort of person that maps out their every move in a day in advance, so I can always look back at my calendar and see what I was doing before the migraine started) and other than the fact they seem to occur when I'm trying to do more, I can't see a specific cause. None of the usual food/drinks are the cause; I also don't think it's related to hot/cold (e.g., I never get them after going in the sauna at the gym!). I will definitely speak to my GP about migraleve as that doesn't appear to be an NSAID, but over the weekend when I took Par
  10. Does anyone else out there suffer with migraines? Since my bleed 5months ago today, I've occasionally had horrendous headaches that last 3 days and do not respond to the usual paracetamol/codeine (both of which I very rarely take at all now). My GP and neurologist both think these are migraines as they always occur in the same location and only ever on one side of my head (the left). I also generally feel a bit "yuck" with them (sort of nauseous but it doesn't stop me eating and I'm never actually sick) and prefer to lie down somewhere in the dark. My neurologist isn't sure if they're directly
  11. Hi Joanna I was taken ill abroad with my intracerebral haemorrhage, although the doctors did speak English and I didn't actually require any procedures being carried out, so my situation is quite different from yours. I was in St Lucia in the Caribbean when I suffered my bleed, but whilst the doctors did speak reasonable English, there wasn't a single neurologist on the island! As a result, I ended up being flown to Miami, US on a medical flight, where they had a lot more experience dealing with this kind of thing! I'm now at the 4.5month stage and still suffering with occasional headaches/mi
  12. Thanks both Daffs I've just read the thread you linked to. Was reassuring to see lots of you have had NPT, even if in some cases the results were not always what you had expected. It sounds like most of you have found it very useful, with it giving you all some tips on how to improve yourself etc Iola, I hope that I pass the testing as well as you did! I don't really feel like my bleed has changed my ability to think or process. It's more the headaches which lead to tiredness which in turn makes it harder for me to concentrate when my head is pounding! My neurologist has faxed all the inf
  13. Hi When I saw my neurologist a few weeks ago, he gave me the all clear and confirmed that my bleed was resolving itself and there was nothing sinister responsible for it (he thinks it was most likely caused by a cavernoma). However, we discussed my headaches and tiredness, along with my return to work plans and he suggested I get referred to a neuropsychologist for testing. He said he felt I would ace the tests, but the results might give me some reassurance. Since then, I've also started taking migraine medication for the headaches (on his advice) and my head has felt better.
  14. Have you tried American Express? I don't have a shunt but they were happy to give me a quote. Otherwise if you contact The Stroke Association they have a list of recommended insurers
  15. Hi Paul I've just gone past the 4 month stage after having an intracerebral bleed. I found the first 3 months hard with regular headaches. I kept being told to take codeine and paracetamol (I was already on Amitriptiline for sleep). However a couple of weeks ago I was chatting to my GP about my worse headaches when she realised I was now suffering from migraines rather than normal headaches! A chat with my neurologist the next day confirmed he thought they were migraines too. I've now got migraine specific medication and wow it makes a difference. Apparently a number of people do develop mig
  16. Just to add, I saw a new doctor on Tuesday after being referred to this neuro-ophthalmology team in Oxford by my own ophthalmologist. The main consultant in this team is very into neuro-ophthalmology research, including regaining vision after nerve damage in the brain. Sadly I don't meet the requirements to be involved in any of their research (I was told by the consultant's registrar that my vision is too good and they are only including people with hemianopia). However, he told me that whether nerves can heal or not is still very much anyone's guess. He confirmed that whilst some
  17. I had an intracerebral bleed rather than an SAH but I asked my neurologist the other week if I could still have children in the future and he said sure! I did some googling and found various people who had had their children after their brain haemorrhage (sometimes they had a c-section to prevent them having an exhausting labour if fatigue was still an issue for them, but many had a natural birth). However, given everyone is different, I'd suggest you ask your neurologist for his opinion
  18. I've just spoken to the William Merrit Centre and they were very helpful and confirmed that they would be happy to see me for a driving assessment but that they currently have a waiting list of 3 months!!! Given I'm hopeful that the DVLA will have actually made a decision about me in the next month or so (even if they subsequently do take away my licence ) I've decided to hold off from booking an assessment. However, it sounds like they are definitely a very useful contact for anyone out there looking to return to driving with a degree of peripheral vision loss.
  19. Sadly Penny and Kerry it isn't as easy as getting an answer from the DVLA - I've tried! I have asked the DVLA for clarification before as to whether I can drive or not whilst they examine my case. They said "we cannot advise on whether you can drive at present, please follow your GPs advice". When I asked my GP she said she wasn't comfortable making that decision as she wasn't a medical driving expert and told me to go with what the DVLA said (even though I told her they deferred to her opinion)! As a result I haven't been driving as I'd rather be over-cautious. Even when I ad
  20. I told them I still have my licence but the DVLA's medical team are still investigating and they said until the DVLA had confirmed that they are happy for me to drive they couldn't test me.
  21. Kerry Wow! That's amazing news, well done Kerry! The William Merret Centre belong to the same organisation as my local driving centre but they still won't let me do it - they refuse because although I still technically have my licence I'm still under investigation. I think I'll try contacting the William Merret Centre even though it's completely the other end of the country to me, to see what they say!
  22. Kerry I just contacted a local private driving assessment centre but they told me that as the DVLA are investigating me to determine whether or not I have sufficient visual field they would not be able to let me do an assessment. They told me that until the DVLA can confirm I have sufficient visual field they cannot test me. So it sounds like there is no-way of me doing a driving assessment
  23. Thanks Penny, I will look into it again
  24. Kerry how did you manage to get a private on-road driving assessment? I still have my physical licence but have been told i'm not allowed to drive by my consultants while the DVLA decision is pending. When I first came home from hospital there was no way I felt safe to drive, but now my vision has improved so much that I don't even notice my vision issue on a daily basis and I do feel safe to drive. It is my bottom right quadrant that is missing; I say quadrant but actually it's no longer a quarter as I can now see things out to the side, just not nearer the middle if my peripheral
  25. Hi Kerry I thought you my find this thread I started a while ago interesting - it is on the topic of recovering visual field: http://www.behindthegray.net/vbulletin/showthread.php?9324-Recovering-lost-visual-field Also, if you want to practice your visual field tests online (NB. They are not the same as the DVLA ones), then try: http://dtx.novavision.com/novaassess/
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