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hi to all of you,have not been on line for some time,hope you all are recovering well,had my sah 20 months ago,and am doing quite well,back to driving and most normal things one does,the worst thing is that i suffer from a lot of headaches,round the back of the head and over the top,my doctor says that it is in the skull which is seperate from the brain,and it could be coming from my neck ,which is bad ,but that does not stop me worrying,any comments from you good people my regards to michille and karen, and to you all prue

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Hi Prue

Lovely to see you posting again but sorry to hear you're suffering bad headaches. I have constant headpain on the site of my op which goes from the side of my ear and at its worse all down the left habd side of my head/face. My pain has been put down to neuropathic pain and the Neurosurgeon thinks I may have a trapped nerve causing it.

I take a low dose of anti-depressant which does help to ease the nerve pain a little. Will you be seeing your Consultant anytime soon as they maybe able to to give you some clearer answers.

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Hi Prue :) Congratulations on driving again !!! Sorry you are suffering from headaches.

Like Janet i still suffer from Head/face pain from my op....its nerve pain...my Consultant says nerves are still mending. I also get pain in my neck and the bottom of my skull... where i had my bleed... the brian stem....i get pains when i am tired or over done things. I think i aways will.

I hope like Janet says you can get some help when you next see your Consultant.

Take care Prue

Love Tina xx

Edited by Tina
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Hi janet thank you so much for your reply(yours is exactly in the same place as mine,) it is all so scary.I have not been sent to any consultant,(I did have a lumber punture) but it did not show anything,(the scary part is you cant see what is happening) was given amatriptolene (BUT WAS TO SCARED TO TAKE IT)so only take paracetomol.so nice to hear from you thaks again. love prue.

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hi tina lovely to hear from you again hope you are going on ok,After the sah most seem to suffer something.(trying to get used to the computer again as i have not been on it and i have almost forgot what to do(i was the same to go back to driving) catch you later thanks again.love prue.

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hi prudence

I read in your posts you eye was closed and ytou had double visison at the time of your sha. Mine was 8 months ago and I continue with blurred and double vision to the 3 extremes up/down and right.

Has all your vision turned back to place, are you entirely recovered of that? how long did it take? I am rather desperate with that issue

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hi luisa I still do get slight double vision(like you looking up to the a hight and down) I had my patch onfor 7 weeks,(too help with balance,)It certainly does get better as time goes on IM now at 20months,(stress of where the sah wasI know doesnt help as you dont know what is going on,(all of it is so scary) 8 months like you ,(was quite early days) and I was feeling just like you ,desperate ,but rest assured as time goes on ,you will feel much more confident, and accept ,my vision now ismuch Improved,and as time goes on you really will feel better,I STILL GET headaches but do get good days,I wish you well love prue contact me any time if i can help I will

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Hello Prue and lovely to hear from you again! ... :-D

I still get the odd "worrying" headache .... like Tina, I take one Paracetamol and one Ibuprofen and the mix of the two, seems to work better for me than taking Paracetamol on it's own. If it gets really bad, then I keep one of those freezer ice/gel packs handy and wrap it in a tea towel and also stick that on my head or where the pain is.... it seems to help....as does a kip! :wink:

Hope that you're feeling better soon Prue ... if you feel that your headache is out of the ordinary, then keep bugging the GP and they should hopefully refer you on to your local hospital to see someone that specialises in brain injury.

Lots of love, xx

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Hiya Graham

Many thanks for your post. As we are aware and from talking to others anti depressants are quite common for SAH survivors. I have always resisted any tablets that i take over a long period of time. But at this point now in my recovery i have learnt that I have hit the wall so to speak, now I am in the vortex going down the plug. I have been depressed for many years but as you know always put on the the right face you can disguise things and i have tried hard. I am to see a Neurophsy.... (something) about anti derpressants and anti convulsants. I have tried to get a job for years with no success so now i will try anything to get my life back. What i mean to ask is what is Cognitive Beahavioural Theraoy. I do have understanding prolemms you could go even further and call them learning difficulties so i should know about Cognitive Behavior Therapy.

Edited by blueday
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Hello Prue and lovely to hear from you again! ... :-D

I still get the odd "worrying" headache .... like Tina, I take one Paracetamol and one Ibuprofen and the mix of the two, seems to work better for me than taking Paracetamol on it's own. If it gets really bad, then I keep one of those freezer ice/gel packs handy and wrap it in a tea towel and also stick that on my head or where the pain is.... it seems to help....as does a kip! :wink:

Hope that you're feeling better soon Prue ... if you feel that your headache is out of the ordinary, then keep bugging the GP and they should hopefully refer you on to your local hospital to see someone that specialises in brain injury.

Lots of love, xx

Hi karen so lovely to hear from you,as you know I have not been on for ages,had a rough patch,Iseem to go down hill after my dog ,had a lunber puncture(could not find any thing wrong)(they could not see behond my coiling )then the headaces started ,they have been bad,which really worried me,its been a job to remember(what to do on the Internet)driving then was a problem but now I amback to driving,and now trying to pick myself up again,(so if i make some mistakes fogive me,)at least Iknow many others suffer them as well,hope you are going on o k ,speak to you soon,lotsof love pruexxx

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Prue, if you ever need to chat, pick up the phone as you've got my number .... it's always lovely to have a natter with you .... hope that Harry is keeping well ... :-D

You've done brilliantly with the driving and are a little marvel! .... I still can't drive too far, so hats off to you Prue ... as far as the internet goes, then you're doing v.well with that too! ....

I'm always here if you're ever worried about anything... just pick up the phone ... late morning and afternoon is always good for me ....

Lots of love,

Karen xx

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Hi karen thank you so much,foryour reply,Itsl lovely to talk to some one who understands how bad we feel at times,(and how difficult it is to carry on and try to be normal as we were before the sah,)Iseem to get so afraid ITS GOING to happen again,IFELTso much better In the start,was much better with the dog to take it off and go for a walk,(but Itstoo late to get another still got my cat,but IM Getting there,IJUST WANTEDto saythank you,Iwill phone you,as you said, keep well karen ,catch you Later lots love pruexxx

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Hi Prue,

It's only natural to feel frightened .... I think that many of us feel the same. I know that you miss your lovely dog and she helped you to get out ... it's easy to lose confidence as well .... I'm still learning to regain mine and it's not an easy journey, so I know how you feel.... I'm still a "work in progress" ....:wink:

Always at the end of the phone for you Prue ...:wink: xx

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