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About Ern

  • Birthday 21/08/1972


  • Biography
    I am a bit loud, self centered and very outgoing.
  • Location
  • Interests
    Cooking/eating, reading (honestly, I kow most people say that but I like my books), walking, cooking
  • Occupation
    IT Auditor (It is that boring!)
  • SAH/Stroke Date
    October 5th 2006

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  1. Hi Allison. Welcome to BTG. This is the place to be for support advice and chats. The folks here got me through some of my worst times during my recovery. I noticed you mentioned speech and loss of words. That's known as aphasia. I have developed that. & it is heavily affected by my emotional state. Most of the symptoms you have mentioned, I can relate to, as can most us on this site. So everything you are going through is fairly "normal". like the others have said. We are here for advice and support and a natter but the medical stuff is best left to the professionals. Good luck with the recovery. You are already on the right road. Ern
  2. Hi all. Late joining this thread to. I was in the gym working to avoid the heart attack that all the men in my family have had. On the cross trainer ten minutes in and beating my personal best. then "POP"! Was very sick. But no headache....? Paramedics said that I had a lactic acid build up. So I drove home (being sick into the towel on my lap). Mrs took me to local A&E. There I got told that I had an inner ear infection (labrynthitis). A week later I was diagnosed with the SAH. But not before I had chopped down several trees with an axe, smoked loads of ciggies, had a couple of beers and driven to lots of places. I am not the only one who is lucky to be alive after my SAH. I think,
  3. Hi Scooby Doo. I had my SAH while I was in the gym. So I can wqell understand how you feel. I started exercising as soon as I could & they were, indeed, baby steps. I began with taking short walks (at first I couldn't walk a hundred yards without needing to rest) then built those up to longer walks. then I walked to the local swimming baths and spending a little while swimming (I took a packed lunch for the trek home). After a while I was ready to go back to the gym. Now I can go for 30 minute runs again followed by a work out afterwards. So there is light at the end of the tunnel. Just listen to your body, drink lots of fluids and rest when you feel the need. Good luck. Ern
  4. Hi Erin. Sounds like you've had a rough old time of it. Like you, I worked for the government (I'm surprised the DWP treated you like that), and they gave me a pay off just after my phased return. There should be a local volunteer centre near by who could point you in the right direction. Failing that how about contacting your old neurological/rehab nurses? They could point you in the right direction. In Coventry, near me, there is an organisation called The Val Hennessey Trust. I'm not sure if they are national but the provided me with loads of help & support after my SAH. You could try googling them? How about a local church or community centre? If you find yourself near a Jobcentre, ask to speak to a disabillity employment advisor, they might be able to help you. I will say, though. When you do get back into work, please take it very slow and gentle otherwise you will wear yourself down and set your confidence back. Seeing as you worked in the DWP, I wont go on about the 16 hour rule about being classed as full time. Having said all of that, it sounds like you are doing really well & your typing is fine. Keep up the good work. Good luck. Ern
  5. Hello all, I'm six years post SAH & I am still up & down like a yo-yo (although not as bad as I was). I still get some very black moods brought on by all sorts of things. So I have some coping strategies. The biggest one I have is exercise. I have taken to running every day. I find it helps me to clear my thoughts and burm off the excess energy. I also do yoga. Its good exercise, stretches out my shrunken muscles (left sided muscle loss thanks to the coil!) and if its a particularly bad day, I spend some time with a punchbag that does help a lot! But I also lock myself away in the kitchen. food is a great comfort to me. Both preparing it and eating it. Because I don't really have anyone to talk to about how I am feeling, I tend to write my thoughts down. When I read them back to myself, I can see the improvements I have made. So I try to turn my black mood into a possitive exercise. Keep going. You are doing great. Ern
  6. Hi all. I think I am a little late in joining the conversation. I have always been a bit of a lightweight when it came to drinking. But even more so now. The last time I drank in any quantity was in July when myself & some friends went up Snowdon. It was also a bit of a reunion mixed with a lads holiday. Wanting to show everyone that I was still me, I hit the beer with a passion. However. I paid for it all in a big way. I was sick as a dog (not pleasant in a tent), & had a hangover all the way up the mountain.That evening I stuck to lime & soda. But I still felt rough the next day on the white water rafting trip (that was torture!). Thinking back on it, the main problem was my ego rather than the alcohol. I was so wound up trying to be me that I over did it. I allow myself a bottle of light beer or two a week & just relax.
  7. Hi Lisa, Its perfectly natural to be worried about the slightest twinge. I had my SAH six years ago & am still freaking out. This morning I found a burst blood vessel in my right eye:shocked:! It looks horrendous but isn't anything to worry about (or so I am told) . Luckily, the Mrs is a Dr so I can get her to look me over whenever I find something new or strange. For me that happens a lot because I am so vigilant now and the tiniest change in me triggers a panic. However, when I exercise heavily or get tired, I do get the SAH symptoms so I know when to slow down & take a break. Although I have noticed that the symptoms are getting more diminished & happen a lot less often. So it does get easier Just give it a while & things will begin to feel better. Have a happy new year. Ern.
  8. Hey Carolyn. Any help I can give is yours. You're doing a great thing there. Ern.
  9. Just another quick thought, Tracy. If you are still feeling pain, that is something you should see yur doctor about. But given time, a bit of work and some patience you will start to feel better again. Just remember the important bit always check with your doctor first. When I first got discharged from hospital (Jan 2007), I couldn't walk a hundred yards. Now I am playing football (soccer) and running and al sorts. But each step of the way, I double checked with the Dr before I started anything new. & another thing. Find something you enjoy. It makes it so much easier.
  10. Hi Tracey, Its a long journey for all of us. for me I found yoga to be an amzing help. Not just physically but mentally too. I started off with Hatha yoga (the slow gentle one), now I am following the Yoga Rythm porogramme mixed in with vinyasa. i do not go to any classes because there aren't any near me. So I am following lessons on TV. The cat likes to help by walking unbder me when I am in Down dog:lol:. These have helped me because I suffered a lot of muscle shrinkage after my SAH & lost a lot of mobillity. but now I am almost back to pre-SAH levels of flexibillity. Except on cold days. I practice yoga every morning to set me up for the day as the relaxation part at the end helps to put me in the right frame of mind for the day. My Neuro consultant has agreed that the yoga is beneficial but that I should be cautious of what I do. for instances, the shoulder stands are a big no no and if I have any pain, I should stop. so its mainly commen sense stuff. I struggle with the balances because I can't feel my left foot, but even that is improving all the time. I am also going to the gym 3 times a week. when I first started back I would sleep for almost half a day to recover. Now I can do a full 1.5 hour workout and then rush home to cook dinner for Mrs. So just take things steady and you will build up the stamina and strength to acieve your goals. ern
  11. hi Tracy, I am a great believer in yoga and have found that various techniques have helped me. I know about the technique you've just described but didn't know its name. Hope your recovery continues. Ern
  12. Hi Melissa. welcome to the site. I am sure you will find loads of support and help here. I found this site when I was going through a bad time and the people here helped me through it. Ern
  13. hi Juliette, Welcome to BTG. Like the others have said, you will find loads of support and advice here. Your story is similar to mine (I really need to post mine at some stage).
  14. Hi Dermot, I had my SAH in October 2006. Like you I had some some serious left sided paralysis (& still have some now). I started exercising (light aerobics & walking) again in February 2007 to regain some strength & co-ordination. In the March of 2007 I started swimming to build stamina. It was a full year after the SAH that I was able to return to the gym. I started with VERY light weights and gentle cardio workouts (cross trainer, rower, bike, etc) and built up gradually. I am back at the gym three times a week now and lifting heavier weights than befor the SAH and able to do a full 30 minutes cardio workout without a break. but before I started this I saw my GP who gave me the proper advice needed. Hope this has helped. Ern
  15. Hi all. I returned to work, on a phased return, six months after my SAH. In hindsight this was way too early. I was permanently tired, I was moody, irratable and snappy with a very short temper. It turns out I was suffering with Post Concussion Syndrom. The SAh also brought about a need for a change in direction in regards to my work. To be frank, I needed a new job. After about six months back at work, I was offered redundancy (with really good terms) and took it. Things are gradually looking up for me, and i am looking for that elusive perfect job. My advice would always be, take it slow and steady, listen to your body & instincts. And if things get too much, talk to your Dr. Good luck, Dawn. And stay happy Ern
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