tracy

thanks everyone God the relief, when you say you had similar experiences. Night time is a lonely time i find, which makes me feel im on my own. I dont want to wake my husband as hes been having to take more on because i cant. My GP had given me some propanolol tablets for anxiety but i dont want to take them as i would rather do it on my own if i can. If it gets to bad then i will have to take them. I think with the support from my family and everyone on this site hopfully i can do it myself. tracy S xxx

Thanks Maggie I dont see my doctor much as he just dosnt seem to have a clue, he told me he has never come across a SAH before. But i have been to 1 session of counselling, my next is end of Jan as im waiting for my results regarding my MRI showing signs of MS. I am very anxious obviously from the SAH but also not knowing why my scans are abnormal and MS. So i think your right plus i have been doing most things normally like i did before which is proving to much. I am learning to slow down but it annoys me sometimes. Tracy S xx

Hi Just some advice needed. I have a week feeling fine then all of a sudden during the night i wake and sort of have a panic attack which keeps me awake. I know then that i will wake feeling very dizzy and disconected with myself. This will last a couple of days then back to feeling fine again. Is this just doing to much which brings it on or could it be emotions as its been happening recently the day before an avent. It happened christmas eve night the night before i was going out for the day. It happened again last night, night before kids gong back to school. Wondering if its because i get anxious or even excited about these things happening. Anyone have any clues Tracy S xxx

Hi Debbie I had my SAH 29th june 2010 and going to a councellor this fri new years eve. Traumatic stress councellor, dont know if it will help or not but have to try it. I was fine for the first 4 months then kept crying all the time. Tracy S xxx

hi surfer i had mySAH 29th june had ct, ct with dye and angiogram all were told to me to be clear, a normal scan. Then in aug had an MRI and MRI with dye which again they told me was clear. So go carry on with life dnt need to see me again. But in Oct was having hadaches again so went back in hospital for 3 days. CT scan and Lumbar Puncture done all clear again. Then Nov had MRI which now shows abnormalities in which numurous white spots have appeared at front lobes and a big white mass at back of brain. Apparently this could not have been on any of my scans in july,aug,and oct otherwise they would have seen it. So i have managed to get all these white areas within space of 2 months. Being told they dont know what they are only that it could be MS. How very bizarre, to have SAH is one thing but to suddenly find i might have MS is just damn bad luck. must note that all my original scans were done at Oxford, whereas my last MRI was done at home here in Northampton. So hopefully northampton got something wrong. Just try to keep positive thats what im doing. Tracy S XXX

Hi everyone Hi rhiann I know exactly what you mean, so glad someone else ha said it to about the beating thing in my body or in my head. I so hate it, it really freaks me out which then makes the beating faster. I also get this whooshing sound in my head at night, and the jolting awake thing that some have said. In fact i dont really like bedtime because since SAH seem to have an out of body feeling when trying to sleep, like im falling out of my body. Then sudden jolting awake which makes me so anxious. Tracy S xx

Hi Bay Im going through anxiety at the moment as Donna said. My SAH was 29th June 2010 not quite 6 months yet so quite early. But i was fine Aug, Sept then all of a sudden in Oct 21010 started feeing very strange. Cant explain just weird dizzy feeing in my head like im here but not here if you know what i mean. Ive been told its the healing and anxiety that is causing it as i panic when i get strange head feelings. I also get strange feelings at night when im trying to sleep like im not in my body and jolts me awake. This in turn panics me and brings on anxiety. It really does help talking on here when you realise we all have similar things going on. Tracy S xxx

Hi Lynne I hav heard of Headway, i spoke to them on the phone with intention of going to one of their meetings here in northampton. But didnt go as i couldnt drive at that time and felt at bit uneasy about it. But since then i have been to a stroke group called Different Strokes which was nice but they do an hour of exercise first which i couldnt keep up with as im so early on in recovery. Maybe in a few months i will go back. But now im being told i might have the onset of MS so will wait to see. I know what you mean about your life before, that has been my main problem dealing with the new me, but looking like the old me. Tracy S xx

Hi Hospital said they would ring me. Doctor has asked me to go see him on monday to try and explain and put my mind at rest. Thanks everyone Tracy S xx

Hi Brenda I had my SAH 29th June 2010, im 41. I have just recently gone through a crying phase but seems to be settling a bit now. I think we all go through this at some stage its part of recovery. Welcome again to the site. Tracy S xxx

Hi Can anyone help with interpretting my letter It says My scan showstiny scattered foci of high signal in the deep white matter,particularly in the frontal lobes and a larger more welldefined focus measuring 8mm in left parieto-occiptal region. They think its not ischaemia and the differential would include demyelination. Anybody know what it means Tracy S xx

Hi Ann What wonderful news, well done to you. So great to hear stories like this when i am so early in recovery. My main problem is exhaustion and head fatigue. I seem todo okay as long as i pace myself. Hope this will be the same story for me in 2 years. Tracy S xxx

Thanks Jen Good advice, i need to keep reminding myself to pace it helps so much. The mobility scooter thing sounds good, im even thinking of using one when we go to Florida next April. In disneyland they have them to hire, not sure if i will be up to walking the whole parks by then or not. Tracy S xxx

That story brings it all back for apart from the fact i didnt have an avm and could talk okay.The way he deescribed at the beginning rolling around but te headache wouldnt go,and how he went into hospital just thinking okay nothing serious maybe a migrane but not coming out for weeks. The more i read these stories i realise how lucky we all are to be here, even though some of us have more difficulties than others. Tracy S Xxx

Hi I only had it done on the right side. Tracy S xx

Hi Im the same as Kelvin have odd pains now and then sometimes like a pulsing but quick pain.Ive had the water like feeling, like tickling feeling. Did have a sudden week of bad headaches 3 months after wasnt having any headaches then bam week of them. Went back in hospital but everything was all clear, saying it is due to anxiety. Seems fine now. Hope they clear soon for you Tracy S xx

Hi everyone Thats funny im actually having a head massage tomorrow. Its a therapist who does indian head massage at my husbands works. I had one last year obviously before my SAH which was lovely. So my husband booked it for me as a way to relax. Didnt think it would be a problem as ive not had surgery or anything on my head. Tracy S xx

Hi Phil Welcome to the site. Theres lots of great people o here to help. Im 4 months on now and the people on here have got me through so many hurdles these last few months. Know what you mean about people not seeing anything wrong, ive walked away okay as far as walking and talking an looking the same. But its on the inside thats damaged only i feel that, my family see me and think im back to normal. people seem to understand more if theres a great big cast on or scar or something. Anyway you will get lots of help on here and like you said we are lucky to be here. Tracy S xxx

Hi rhiann I didnt seem to feel nausea only in hospital. But the ups and downs deffinately. One week fine like nothings happended then next back in bed feeling flu like again. Mine is not like nausea or sickness just dizzy and disorientated. But i find anxiety makes me very bad so try my hardest to try and relax and breathe when i feel like that. The problem is that when i feel strange or heady i panic thinking something bad is starting which makes me anxious which makes it worst. Yesterday i had a not good start feeling crappy, but thought this time i will ride through it and keep going to see if it works. But worst thing to to made me feel 10 times worst, coudnt sleep well either. So rest is deffinatley the key even though we want to keep going. Tracy S xxx

Hi Anne Youve had a lot on at the moment, you deserve a cry. Im only 4 months gone now and emotional over everything, i was crying watching the 2 mins silence on tv yesterday. I find it harder to cope whento many things happen at once. Also noise, cant stand to many noises at once . I seem to feel much better after a cry maybe its just a way of getting things out. Try not to worry hopefully it will pass. Tracy S xx

Hi Rhiann Welcome, you had your bleed jst before mine 28th june 2010. Im at the same stage as you with the tiredness and headaches, and trying to look after children. I have found it hard with 2 kids it must be hard with 4. Just try and relax as much as possible as it really helps. I have found that out the hard way, I used to try and sort children out and then do all the things i used to do while they were at school. But that has made me very ill, ended back i hospital. So now when kids at school, i do one job a day and then rest until they come home. It seems to be working. I know its frustrating not being able to do everything like before but at least we are here and hopefully it will get better. Hopefully speak to you soon Tract S xxx

thanks Jen Have looked at the video, will try some of the techiques. tracy S xxx

Hi Im 4 months since SAH in June 2010. My fatigue seems to come and go, not my body tired but my head. I tend to stare and shut off, then I know I need to sleep. If I dont i get the dizzy disorientated feeling which reall makes me feel ill. Tracy S xxx

thanks Rhian and Kel I am going to counselling in a few weeks for the first time so hopefully that will help. Rhiann, I had my SAH in June 2010 as well. Tracy S xxx

Hi guys its me ranting again. does anybody have problems when sleeping. I go all day reasonably okay then when try to sleep, that fist bit when your trying to go off to sleep i get sort of jerking awake feelings. Its almost like im having mini fits but i know when there coming. It makes me jerk awake which in turn scares me so my heart gos fast and I sweat. This goes on for some time sme nights but when i eventually go to sleep im fine. Its almost like my insides are jumping each time. Its probably another side effect but is so hard to explain. Im not going to doctor as he dosnt have a clue and I cant describe it well. Maybe somebody has a similar thing. Tracy S xx