tracy

I get tingling quite a lot. My doctor says its probably anxiety which causes it. Traci

Hi Dawn Ive had some weird blood problems in my family. My mum had Fibroids too which led to Hysterectomy. Charlotte my daughter had leg surgery when she almost bled to death and needed a whole body transfusion, twice to keep her alive. I had my SAH plus I had severe heavy bleeding after giving birth to Charlotte. My other daughter Lauren keeps having massive nose bleeds, which literally cover her and only last a few minutes. Maybe there is some blood clotting link going on, maybe just co incidence. xx Traci

Hi Rachel I had the same thing happen. I was 41 healthy with 2 children when on 29th june 2010 had a blinding head pain. I wastnt sick till i got to hospital but couldnt open my eyes properly, which is why they thought i had meningitus. I was sent to the john radcliffe in oxford and stayed for nearly 2 weeks. I was sent home with medication and thats it, just get on with it. I have the same as you with fatigue, memory problems and mood swings especially when i feel angry i really cant cope and show my anger now. I am a year plus now and only really starting to get on with it. I dont think i could work fulltime as the fatigue is still here. But not classed as disabled so its like limboland. There really should be more help for us NASAH instead of just get on with it. Take care Traci x

Hi Sandy Ive flown to florida and back this year. I found it fine, i ws worried too. Was very tired though after a day at airport and flight. Take care Traci S

Hi Ryan Welcome to BTG. This site will certainly help you, it has me. 4 months on isnt long your bound to be tired and have headaches. Im a year on now and still get very tired. Take care Traci S

Hi Nick Welcome to the site. Im in Northampton not too far away. I see you love your cars, my husband has a Ferrari 360 which is his pride and joy. Would put some photos on but seem t have problems with photos. I can get them on Facebook but not on here for some reason. Anyway doyou go to any car meet ups or enthusiasts groups? Take care Traci S xxx

Hi Katie Ive definately gained weight since SAH last year. I put it down to not being able to excercise as much. I used to run every day, now i can only manage 15 mins on running machine maybe 3 days a week. I used to be 7 1/2 stone before kids, then 8 1/2 stone after. Now 9 1/2 stone gained stone since last year. Ive always wanted to stay slim but dosnt seem to be bothering me as much now. Im just thankful that im alive. Take care Traci S xxx

Hi Does anyone else have this sensation. Sometimes usually when im resting i can hear my heartbeat or pulse, and it feels like my whole body moving with the beat. I swa my GP who said not to worry its fine. Also sometimes when i stand up or move i can hear the pulsing in my ear for a few minutes. GP said this was fine too. Im assuming this is all part of the aftermath from a SAH along with the trying to sleep but cant as i feel so aggitated. Take care Traci S xxx

Janet Thats weird ive been having a lot of neck pain recently, and strange heads. I usually find that i have a good couple of weeks then bam a few days of weirdness again. I ttry not to worry anymore as that makes it worse. I also find it worse around time of month. Hang in there and take care. Traci S xxx

Hi Di I can relate too, it was last year for me i was 41 so not old. My life has never been the same since, ok i have a bit more energy and can drive again but cant remember things, confidence is low and wak around somedays like im in a daze. My head gets a strange feeling like im moving but my brain cant catch up. Ive given up trying to tell my family that i feel strange and need to lay down. So im trying to just adjust to this new feeling as it seems this is the way im going to be. I spoke to my mum the other day and told her that i hate that i sometimes use a walking stick when i feel wobbly,that people stare at me. All she said was "i know how it feels" she uses a stick. Shes in her 70s people expect to see that age group using sticks, not at 42 like me. She says well as you get older these things happen but im not old im only 42. The only reason i use a stick and need to rest is because of the SAH not my age. Traci S xx

Hi Karen This is similar to what i had. I had a MRI in Nov last year as a follow up from my SAH. Didnt hear anything, then doctors phoned for me to go in to see him. The hospital wanted the doctor to explain that some white dots wer found on my scan and that they wanted to look into it. they kept talking about demilation which i found can be MS. When i asked they said MS looked likely. They did the usual tests touching my nose and finger and walking in straight line. Was left like that for 2 months thinking i hve MS then surgeon phoned to say my scans look ok evidence of the SAH and considerable damage but thats it. He then went on to say how lucky i am with that damage to be walking and talking ok. Have left it that its the aftermath from the bleed but not ruled out MS completely. Take care Traci S xx

John Definately there needs to be more awareness of SAH. There is so much advertised about strokes, but when i tell people that my bleed is effectively a stroke, they say but your face didnt drop down. People i speak to dont have a clue what a SAH is, so i just say i had a brain haemorrhage. It really bugs me that people see me well on the outside so think thats it im healed. Take care Traci S xxx

Hi Jan Know what you mean with family and friends. Im always telling my family i dont feel great, when tey assume ican do everything. This is the one thing that really annoys me, the fact i look ok, but feel like inside. My daughter said the other day "i think your faking it" in a joke way but it really upsets me, as i would do anything to feel how i used to. Im only 13 months on and can feel ok allday some days but then all of a sudden terrible again. Take care Traci S xx

Hi Riane Welcome to the site, My SAH was a NASAH too, but im the same still so tired and can only do small activities. Well we have few canadians on site now so you can all chat while we in Uk are sleeping. Hope to hear from you soon Take Care Traci S xx

Hi Tracy I know a bit about TMJ as i was told i have it 2 years ago. My symptoms were my teeth were constantly hurting but the dentist said there was nothing wrong with them. I went to the maxiofacial in the hospital who pressed and prodded which really hurt. I have a lot of back teeth missing which i lost after my first child so now my biting is misaligned plus think i am grinding at night. I have a mouth guard i wear every night now to help this but still have problems. It has been a problem for ages now and really gets me down with tooth pain. but the dentist says its not the teeth but the nerves making it feel like tooth pain. I have even resorted to ask the dentist to take them all out to stop it. He is very reluctant as he feels i will still have the pain even with no teeth. I just live of pain killers since then Would love to know what cranial sacral therepy is, as i will try anything to help. Take care Traci S xx

Hi My concentration changes all the time. Im 12 months on now and sometimes seem worse than 8 months ago. I seem to get these strange head feelings when i seem to loose all focus on what im doing. Not sure why it happens can be fine one minute then cant think of anything. When im shown something i cant seem to retain the information. Traci S xx

Hi My NASAH was almost a year ago now and im still suffering with head fullness, like theres a massive pressure in it especially at night. Still very fatigued, memory problems and balance problems sometimes. Still get odd head pains sometimes very painful but only last few minutes. I was left too, just go home and get on with life i was told. I was even told i had MS for 2 months before they realised the MRI scan was showing just the damage done by the bleed. I look the same but everying i feel,see,do is different. For me its learning to deal with this. I long to wake up and my head feel as it did before but it never happens. Its so geat that we have people on here to speak to. Take care Traci S xx

Hi Karen Just noticed you met up in northamptonshire. What a shame it was years ago. In the pictures, was there some sort of car show on at the time. My husband goes to lots of those meet ups. Traci S xx

Hi Rhiann Sorry your feeling low about hitting the first year. Like bagpuss says im feeling low to and im nearly at my first year on 29th June. Must be something about that time. I thought i would be feeling great to get to this point but i feel rather low and weird. Maybe like Karen said the anxiety of reaching this point is taking over.Ive been trying so hard to stop the anxiety taking hold. Im thinking i might try yoga as per Sandi. Hopefully your pick up soon. Sending hugs Traci S xx

Welcome Simplesan Ive always been quite an emotional person even before my SAH. Im nearly a year on now and have struggled with emotions more than anything. I think a lot of mine is frustration at fogetting things,missing things and genererably not being able to do as much as before. I suppose its only natural to cry and get teary after what we ve been through. But it is easy to slip into depression or anxiety. take care Traci S xxx

Hi Christoffer Im nearly a year on and like you ive started having neck pains these last few days. I also had more trouble with the back of my head mostly near my neck after my bleed. I used to find i couldnt hold my head up easily almost like my head was to heavy for my body. Also like you i was doing so well, then it looks like im going backwards again. Im trying so hard not to let my anxiety take hold again and ride it out. Take care Traci S xx

Lin I told everyone you would make sense of this subject, and you did it again. When i read your posts i get my husband and children to read them too, as you seem to put into words what i want to say. How far along from SAH are you now?. I hope i gain understanding when i get to that point. Traci S xx

Hi Guys totally relate to this subject. Bagpuss, funny you say youve been a bit low these last few days so have i. Your at a year and so will i be in a few weeks. Like you say im happy i survived but some days i feel like lifes not worth living. I know that sounds bad but its true, not sure what happens as most days im happy trying to live a different life from last year. I thought it might be to do with hormones or something. Ive sort of given up trying to tell others how it feels as i dont think they will fully understand unless theyve been through it. As You say Sally im just going through the motions of daily life because i have to. some days i just dont have the will to do anything constructive. I dont trust myself anymore when out as i forget what im saying or even why im there. We need linlin she puts everything in perspective. Traci S xx

Hi there I have been fine these last few months, but this last week my weird head feeling started up again. Im 11 months post SAH now and always had a like pressure feeling in my head up until a few months ago. i can sit or lay nice and rested but when i stand up hav t wait a few seconds before moving as ifeel strange. I also have the pressure in head like my head is blowing up some days. Its usually at the back of my head just behind my ears especially on the left side. I also feel like theres cotton wool in my head while i walk around. I think some of mine is anxiety though. Please tell us if you find out though as i would love to know why it stops and starts. Traci S xxx

Hi Kate welcome to the site. I started getting anxious and panicking about 4 months after my SAH. I had to have beta blockers for awhile and had councelling which really helped. As Sandie said before angio go to the toilet as i didnt and half way through the procedure they had to stop so i could use a bedpan. My neurosurgeon was very good an calm which helps. Good luck for Wednesday, take care Traci S xx