Jump to content
Search In
  • More options...
Find results that contain...
Find results in...

Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

Gill C

Members
  • Content Count

    664
  • Joined

  • Last visited

Community Reputation

197 Excellent

About Gill C

  • Rank
    Senior Member
  • Birthday August 15

Profile Information

  • Gender
    Female

Converted

  • Biography
    suffered an unruptured sub arachnoid anurism which went undiagnosed for 6 weeks. Thnaks to Wessex Neuro & Mr Sparrow who carried out my craniotomy(surgery involvoing operating through the skull with a piece of skull removed) to clip the anni I only have problems with my right eye despite suffering vasospams during and after the op.
  • Location
    UK
  • Interests
    card making, Employment and Support Allowance, Pro Markers, Cuddling, God understands our praye
  • Occupation
    voluntary admin at rowans hospice
  • SAH/Stroke Date
    28/4/2010, 2 clip right post comm artery

Recent Profile Visitors

826 profile views
  1. I'm so sorry to hear this. Win was a real character and will be greatly missed
  2. Paul I'm so sad to hear this news (thanks karen for posting on fb for those who don't regularly visit btg now). I know what an amazing love you had for each other and the things you battled through to get Lin the best of everything. You were an incredible advocate for her and no-one could have done more. Please look after yourself and know we'll all be with you in spirit at the funeral, holding hands and giving you strength. I am at a loss to express how sad I am for you, juast know that we all love and care about you x
  3. I too felt weak and anxious being home. Its perfectly normal especially if you are pushing too hard to get back to your old life. Lots of rest and plenty of water are essential to your recovery, rest in a quiet, dark and peaceful. Don't assume sitting watching TV or chatting is rest because it really isn't!! If you broke your leg youd stay off it for 6 weeks, your brain is never still even when you're sleeping x
  4. Mine was right posterior communicating artery so I don't know if its the same area. I just had double vision and eventually a completely closed lid by the time they operated. Because I'd had pressure in the bundle of nerves which work the eye/lid and pupil they weren't sure how much vision would come back. Sadly the up and down movement and the pupil dilation didnt come back Weighed up against the comment that if it ruptured I would die (I assume because it was at the back near the brain stem) I literally had no choice. I don't think any op is without risks but personally I couldn't live with it in my head (and the awful pain I was in) It was my first ever surgery and I was absolutely terrified. I had to put my faith in the surgeons and take all the advice I was given. Vasospasms are more usual after a bleed so my surgeon was surprised I'd had them but they treated me accordingly and I was sent home weak but pain free. Hope this helps in some way, I know its easy to over think stuff if its planned in advance, thankfully there was only a day between being admitted and the operation.
  5. I had a clipping on the right posterior communicating artery which was close to the 3rd nerve of the eye. Mine wasn't a rupture so I knew I was having it. It went well although I did have vasospasms and ended up in hdu for a few days. My vision has not fully returned and I still have no up or down movement in my right eye so have to have the right lens of my glasses frosted to prevent double vision. If you want to ask anything feel free to pm me x
  6. Nathan seems OK today but I know tears are close. He went to bed exhausted at 8pm and fell asleep quickly but by 9.30 he was up and upset. He spent an hour with Ian talking about his teacher and Minecraft and Pokémon. Today we're taking flowers to the front of the reception door, I know it'll be covered in flowers by then, there were already flowers there at 8.30am I've told him its OK to be sad, most of the pupils were in tears last night. I've said if he's worried about anything to speak to pastoral care. I'm not sure how much of what he's feeling is about my surgery as he's not talking about it and I don't want to push him. I'm so grateful the school have dealt with things so we'll so far. Thanks for your support, I really needed it x
  7. Nathan is upset (tears as he came out) and has linked it to my op, but I've reassured him I am fixed and it won't happen again. He's had some chocolate (the cure for most ills) and asked to take flowers in tomorrow as school said they can. To be frank, I think the school has handled it very well and said if anyone has any questions or needs to talk to someone they can. I've stressed to him that if he's worried or upset not to keep it to himself as school will understand. Honestly, it's hit me more than him, as it brings back those awful memories of what he and Ian went through while I was ill. There's also those thoughts of why did I survive and not her. I'm so grateful to see another Christmas I promise not to moan!
  8. I've had an email from Nathans school today telling me that his teacher (29) passed away yesterday following surgery for a bleed on the brain. She passed away at Wessex neuro where I and quite a few of you were treated. School are telling the pupils this afternoon and they've been adviused to say it was a bleed in the brain. I've spoken to pastoral care and they're going to keep an eye out for Nathans reactions. They have counselling etc in place. I'm hoping he won't link this to my op which was 6 years ago and on an unruptured anni. Desperate to pick him up and reassure him I'm ok. Please hug your family a little bit closer tonight, we truly are the lucky ones xx
  9. Hi Maya. I also had an unruptured aneurysm. Mine was unstable though and had grown to 5mm. Given that it had grown and might possibly grow again I was offered surgery. I was given the choice of coiling or clipping. Given that clipping usually meant no further action would ever be needed I chose to be clipped. My son was just turned 4 at the time and like you i was terrified. For me there wasn't an option not to have surgery so it was a done deal when I went in. 6 years on apart from double vision my only major issue is fatigue. I do most things I did before although I was lucky that I didn't have to work, I did do some voluntary work but the office moved and I wasn't needed. If your anni is small and monitored for any changes regularly and if your neuro does not think you need surgery then I'd go with it. If there are changes then the surgeon will inform you of your options and advise you accordingly. Its tough but you need to trust the experts x
  10. I agree with Karen on this one. Trying to cope on your own really doesn't help. I was scared for a long time after my op. I had a lot of help from headway in the early days but I had refused their help initially as I thought I could manage. I was 6 months post op before I could accept help. From there I had some cbt which wasn't wholly helpful and was offered anti depressants but again I refused them several times. It was only when I was still tearful and anxious I decided to give them a go (about 18months post op) and yes it works slowly but I remembered how to laugh and be happy again.I lost my temper less and began to realise how low I'd actually become over time. Like Karen I wish I'd tried them sooner. Sharing on here really helps and going to a support group if you have one near you is also great. There are times though you have to accept any help that's offered by your gp or Neuro x
  11. Suzi I chose to be clipped, was offered the choice of coiling (with yearly angiograms) or clipping because it was a line drawn under the treatment I chose clipping. It was my first surgery of any kind and I was terrified but I was more scared of repeating the angio (they struggled to stop the entry site bleeding) on a yearly basis. The lady in the next bed to was coiled after rupture, her recovery was nowhere near as good as mine. I didn't rupture but had complications with vasospasms and the pressure of the anni on my brain for 6 weeks so there are people who have recovered better than me. There's just no way of second guessing what the outcome will be. Ill be crossing everything for you (if others anything I can help with just pm me) x
  12. I had an unruptured anni clipped 6 years ago. The clipping went well but unusually I suffered vasospasms after the op (I'm told this usually only happens when there's been a bleed) and was on gelofusin (sp?) For about 10 days post op. I was in HDU for about a week during that time. I don't think I was given anti consultant drugs but the name namipodene rings a bell. I was discharged with no additional media and was told the risk of seizures is greatest during the first 3 months. By the time of my review I was well enough to be discharged without further treatment. Just really saying this because I've been there and I was scared of brain issues too but you have to put your faith in the experts, if you need the drugs they'll be prescribed, if not then try not to worry x
  13. Brilliant news, so chuffed for you paul x
×
×
  • Create New...