Nita

Hi Guys Thanks for the quick replies. This started on 6th Nov and on 7th I couldn't get out of bed as my right leg wouldn't work. I got my brother to take me to A&E at teatime as I was worried that I would be worse the next morning. At first they thought it was a stroke, but CT scan showed that it wasn't. I had some physiotherepy while I was there and my leg is working a bit now, but my hand is not good either. I'm on the waiting list for home physio. I am walking with a stick now and was feeling sorry for myself, but got my fighting head back on now. One of my great friends from work came to take me into work so I wouldn't be at home on my own, wallowing in self pity. I had a great afternoon with some great, but crazy people and ready to fight back again. Love Nita xxx

After 4 years of struggling to become "almost normal" I was struck down with a viral infection that attacked my weak right hand side. Now I have another uphill battle as my right side won't work now. I was in hospital for three days, but due to lack of sleep in there, I was allowed home as I can't function without sleep. Work have been great about it, but I don't know if I will be able to go back tho.........only time will tell. Can't believe this has happened. I spent 4 years fighting a huge battle, just to be knocked straight back down again. I am finding it difficult to come to terms with. Don't know if I have any energy left to fight this too. Nita x

Mr Patel at Hallamshire..... Yeah , me too! He is not just a great neuroligist, but a lovely person too. He has really helped me, referring me to an amazing neuropsycologist when I was at my wits end, 2 years after he saved my life. I am over 4 years since my SAH and life is good now, thanks to Mr Patel. Love Nita xx

Hey there Steph After having 2 brain haemrrohages and coiling, I have another aneurysm on the opposite side too. They are keping an eye on it. It's been 4 years since the first SAH, so I just go with the flow. If it's being watched, it's safer than the people's that aren't. Love Nita xxx

Hey there Wraith Most of us on here know where you are coming from! I am 4 years post SAH and it's with me 24/7. My life changed on that day and it took a long time to accept that I will have to live with it forever. After the first couple of years I got professional help, as I couldn't imagine living with "this" for the rest of my life. Because we haven't got bandages around our heads, people think we are back to how we were before. "If only!". I have learned how to cope with things now, but please get help. Because you're worth it........ Love Nita xxx

Hiya John I was on incapacity benefit after my SAH.........until the medical. My own "doctor" was as useless as the benefits "doctor". I was given 0 points. I started to appeal, so they cut my money to a rate that I couldn't live on. At the time, I hadn't changed my doctor or had professional help and didn't know what to do. I couldn't go through with the appeal as I didn't Know what help I would get, if any. Luckily, things have changed for me now and I work, but at the time I felt that I was very let down. A good place to contact, as I am now told is D.I.A.L. Hope you sort things out. Love Nita xxx

Hi Lemonade, It is a long road, but if you get all the help you need, you will get to a better place a lot sooner than I did. Get all the help you can and if it doesn't help, ask for more. When I asked why I didn't get any help sooner than 2 years, I was told it was because I didn't ask. People who haven't walked a mile in our shoes, have no idea. But everyone on here does, so keep calling in. Love Nita xxx

Hiya Sonia and welcome to the most amazing site ever for SAH! I am 4 years down the line and this place has been a great help to me..........hope it is for you too. Love Nita xxx

Thanks Karen, but I didn't just contemplate it, I tried a few times. Thankfully I wasn't sucessful. How, I don't know? But it can be overcome if you seek help. At the time I thought I couldn't live with life after SAH, but I am living proof that it can be done. Ask for help, if not, shout for it. It can be done xxx

Hi to both of you. Welcome to BTG. I had 2 SAH's 4 years ago. For the first few months it was euphoria as I had survived them. Then came the anger, depression, anxiety and loads more. I didn't have any professional help and a doctor who knew nothing about my condition and didn't want to know. After 2 years of pain, no support and no desire to carry on with life as it was, I was suicidal! Luckily, when I was at rock bottom I had an appointment with my neurosurgeon. I "lost the plot" and he referred me to a neuropsycologist. She was so amazing, but at first I would would not have anti-depressants. I felt that was the only control I had in my life, was to say no to them. I ended up seeing a psychiatrist, pain management doctor, counciling, carry on seeing the neuro-psycologist, changing my doctor and going on anti-depressants! On the way I lost my son, my partner and nearly my mind! It's been a long hard road, but if I had the help from the beginning, maybe I wouldn't have gone through so much heartache to get where I am today! Today I am happy, but it took a lot to get here. Please take any help you can get, or ask for it. I know it's hard to when you are down, but if I had had the courage to ask for it, maybe I wouldn't have lost so much. Love Nita xxx

Hiya Kasim Sorry to hear your Mum is feeling down. She is a lovely lady and hope things get better soon. Send my love to her and my love goes out to you too. Love Nita xxx

Hi Leo I had nerve block injections for a year. The ones I had lasted for 3 months. I have stopped having them now because I felt they weren't working any more. They do work for some people, so it's worth giving them a go. Love Nita xx

It was first aired on Channel 4 in March. Had lots of response then. Got a new pen since then, so any autographs will be magnifico! lol x

It's tonight...... Sunday 13th June x

Thanks for all the good wishes. Yesterday was 4 years since my 2nd haemorrhage, I'm on Secret Millionaire tonight (More 4 @ 9pm if anyone is interested) and tomorrow is 4 years since my coiling...... loads of celebrations all in one week! Love Nita x

Today is 4 years since my first brain haemorrhage. It has been an incredible journey. BTG has been a major part in my recovery. I haven't been posting on the forum, as I have had so many problems and would not want to put people off. But I now feel that I can contribute as it would be positive, not negative. Will post again soon x Love Nita xxx

My partner and I slpit up about 2 months ago. I have struggled like I've never known before. I have to get to another city for my next scan for monitring another aneurysm I have. He used to take me. I haven't got a clue. What do I do? I know I cant drive there and I don't know how to get there otherwise. Any tips? Love Nita x

Hello there, I can't believe how people are treated after SAH! If I hadn't had a computer so I could research my condition and find out about other people who have gone through this, I don't think I would have made it this far! I am almost 22 months post SAH (not that I'm counting, lol) and still struggling so much. No one understands unless they have been there and as we don't have bandages wrapped round our heads, people just assume we are back to normal... how we used to be! Even my doctor hasn't asked just once how I am or how I'm coping! If doctors can't get their head around this, then how can we expect anybody else. This sight is the best thing that's happened to me since my SAH. You don't feel so alone when you know that other people are walking the same road as you. A great big thank you for being here. Love Nita x

Hello everyone, When I get up in the morning I turn on the computer, make my coffee and start off the day reading everyones posts. Sets me up for the day. Weather(?. I used to be able to spell. Now, every word that looks wrong, no matter how I spell it, doesn't look right!) I am ok or ! I would not have got as far as I am now, had it not been for this site. Thank you all for being so honest and willing to share most things with everyone. I know most people on here have had their relationships strengthened by SAH . But mine was ending just before mine happened . I have tried to get out of it a few times since, but wasn't up to it. Most of it due to *($5%*(_"%&(<!....... Well, I feel like I can cope with it now. It's gonna be so hard, but I feel that the I'm getting with my partner is draining energy that I could put to good use in getting myself to a better place. I have had to make desicions that prior SAH would have been hard, but after SAH, until now were impossible. (Tried and failed) I know I can do it now. It will be in the next couple of months. A lot of it will be waiting and hoping it will be soon . But I will get there and I am at a place where I know I can do it. I know there will be down days and I will need support from people who know where I'm at. (SAH wise) Everyone (most) think I'm back to how I was. I wish !!! I look normal, so Hey! I know a lot of people on here have lots to deal with, but just a hello or a smiley when I do post will be appreciated sooo much. Thanks for reading this and I will keep you updated when things start to happen. Lots of Love and Hugs Nita xxx

Hi all and thanks for the welcome. I'm so glad I plucked up the courage to post on here. I have wanted to so many times before, but just couldn't bring myself to hit the submit button! :? The five good days I had were amazing.They were over a period of about four or five weeks. No pain....doing things without total concentration....being able to do more than one thing at a time....a clear head....no confusion....feeling fit and healthy as I was before SAH! I didn't do anything differently in the run up to any of those days....they just happened! I do try to be positive, but it is hard work, as is everything I do now.I don't normally moan (much!), but it feels good to talk to people who really understand what I'm going through. I'll leave it at that for now. Don't want to bore everyone in my first few posts. (I'll save that for later! ) Nita x

Blondie, We have talked about my SAH. He also tells everyone else about it, but he is the one that upsets and stresses me out the most. Karen, My aneurysm ruptured twice. Just before the first bleed I was in the process of leaving him. Two days after the first one, I did. Two days later I had the second one and the NS told my family to prepare for the worst. 96% chance I wouldn't make it. I came through it and somehow we ended back together. We have split up twice since and got back together. He knows all there is to know about SAH and is the first to moan if anyone else puts too much on me. But he doesnt put into practice what he preaches, so I don't think the DVD would help with him. I would like to see it, so I will pm my address to you. Nita x

Hiya Blondie Thanks for your reply x My SAH was 15 months ago. The first six months I thought I could get back to the "old Nita". Sadly not. I seem to be getting worse. Tried going to work after 5 months, but couldn't do it and had to leave. In the last 15 months I have had 5 days (part days) that I felt the old Nita was there. That was Jan/Feb and I thought "yes, here we go" but it didn't continue and now I feel worse than when I left hospital. As you all seem to be getting better, i feel I may put some people off and I wouldn't want anyone to think it's gonna be like it's been for me. Nita xxx PS Used to be able to write properly. This just took me soooooooooo long and I don't think there are too many mistakes?????

Relationships - Not sex My partner tells everyone my problems, physical, mental and just plain stupid! But he just can't accept them himself. It is 15 months since SAH. We are strangers. What he says to other people and how he treats me are two different things! Any suggestions? Nita

Hiya, I'm Nita I joined in February and have been reading (almost) every day since. I have also been buying the mags and watching the tv. (Heather/Sami/etc) How do you all be so positive? You all cheer my day up and keep me going, because maybe I will get there someday too?