stephen

I have had partial seizures epilepsy for three years. I have to see the stroke specialist on the 31st. Will keep you all updated.

Hi Folks Not posted for a while. I am a worried camper tonight. I have recently found out (thursday) that I am having regular TIA's for the last three months. This week I have had four. Initially the hospital thought it was severe seizures in relation to my epilepsy (perhaps changes to my medication) that I developed three years after my SAH. On Thursday I found out that the professor of epilepsy has referred me to a professor of strokes. I have been in hospital and had CT, MRI scans that only showed the my brain was exactly the same as it was 5 years ago. So any ideas or information from folks who may have a shared experiences. Love Stephen (Clydebank)

Hi All I have been having what my wife calls partial seizures. I was on holiday with my wife and mother in law and they both noticed that i was having "the lights are on but nobody is home moments" I have been to the football and wondered how it went from 10 minutes gone until 13 minutes. My fatigue is rising its ugly head again. My sah was over 3 years ago and i wondered if anyone has had any similar episodes. they told me ages ago that the probability for me to have seizures was high but why after so long. Hope you have some answers before i go to the G.P. Best Wishes Stephen

Welcome Tracey. You have done the best thing by starting on this forum. My family and friends are supportive but they don't know the new experiences you will have to get used too. It's great to speak with others who have had similar issues. Just remember to sleep as much as you can, your body needs the rest so don't fight it.

Hi Sally I have sent you a private message I hope you get it. Stephen

Hi I have read your messages and it drives me nuts. I can stand for 30 mins, sit for ages and talk well sometimes. Other days I sleep all day, take analgesia, get horrific mood swings and struggle to find words sometimes. I cannot give them any consistent information about me as my condition changes every few days. They drive me nuts as Glasgow has a very high level of people on benefits they judge us the same. I wish I could work as the £568 per month I get does not meet the minimum wage.

Hi Anders and welcome to BTG. Your English is great and the people on here are very helpful. They even understand me and I am Scottish. I also have 2 dogs, Jack the Jack Russell and Barney who is a big dog who sadly does not know either his mum or dad and the vet is fed up guessing what type of dog he is. You seem to have built some coping strategies. Hope to speak soon.

Hi Ern and welcome to the site. I have been using the site for 2 years and it has been a massive part of my recovery. Flying advice is best to ask your consultant and remember the travel insurance could be more expensive.

Congratulations on your annie versary. Hope St Martin is a nice as the brochures say as i am going in March.

Hi I had issues initially with my GP as he knew very little about brain injury. We spoke about it and he told me he would learn as we moved along. He has been super and backs me up with everything. It may sound cheeky but ask the GP what his knowledge of brain injury is and give him some leaflets from Headway. Remember we experience the symptoms they don't.

Hi Everyone I have had panic attacks since my sah and hopefully been quite open about it. A 17 stone man standing crying in Morrisons is very tough but i am trying to gauge the anxiety before i go out and then have plans to manage the attack. i was lucky and went into rehab for 4 months and this is when i worked on anxiety. I still see my psycologist every week and we discuss them regularly. As mentioned earlier i am accepting the adjustments i need to make to give me a meaningful life and i am enjoying it. Perry stated earlier that the jobs and roles we had done previously, i was a about to start a service manager in a homeless drug rehab unit with people who have mental health issues. Stephen

How did i miss this posting, probably asleep. I sleep for Scotland and i do not fight the sleep but listen to my brain when it tells me to sleep. I have very vivid dreams that are not pleasant but my doctor and others put that to the side effects of Citalopram my anti anxiety drug. The side effects are not nice but better than the anxiety. Stephen

Donna I used to get a feeling in my head that another sah person i met and they had it also. It is like water running in my skull and it felt a bit like i had spiders running inside my head. I know sounds a bit crazy but when i had this i felt so tired and lethargic. I explained it to my consultant and he said our brains do create strange sensations. The feeling to fight this is natural however i have became a lot better since i started to take brain breaks. This will sound crazy again but i will try to explain: If i am concentrating for more than an hour or so i then take time out to do something relaxing like walk the dogs or read the paper or surf the web. This does help me get more out of a day. I feel like i am physically getting better but my brain is still needing time out, more than my body does. My initial problem was that i wanted to return to doing what i always did before my sah. Now after some heavy discussions with my psychologist i have accepted that i need to make adjustments to my lifestyle. I at this time cannot do what i used to do and i have accepted that this is me after my sah. I hope this makes some sense and i hope you get some answers. Stephen

Hi Sean Welcome to BTG, we are a super bunch of people even if i say it myself. I felt terrible when i met my named nurse and could not remember her at all. All the best Stephen

Yes i agree. I quickly after about 4 weeks, tried to read via internet about what happened to me. It scared me stiff so i agreed with my wife to ask my consultant about it and try not to be a self taught student. My life is so different after my injury and yes i am better for it as i don't take anything for granted and make sure i tell the people around me how much they mean to me. Stephen