paul99

hi caroline from what i know and i have asked my friend in queens sq a shunt normally functions ok sometimes they do get blocked and have to be either changed sometimes flushed rarely but that normally happens within a few days of being inserted if you have had it since june i would think you will not have any trouble try not to get fixated on it blocking enjoy each day as it comes and be happy best wishs xx

just checked no it wasnt me 2004 i was elsewhere thank god otherwise it would have been to spooky

lauren when did you have your sah if you were taken to kings college hospital are you sure it wasnt me taking you in that was my patch at least you had the maudsley hospital where i think you ended up if so this is spooky

hi dans wife welcome to behind the gray re your posting lin and i were partictipating when my darling had her sah 28/8/08 at first i was so embarressed i told everyone lin was sitting on the settee then found this section and because i felt guilty i owned up to the true facts and i honestly know how you feel and how you felt believe me im still feeling guilty but better for being honest even though others tell me not to im pleased your husband is recoverying lin is still not ?comotosed or not fully with it i hope she does recover i made a choice im not going to tell lin if and when she wakes up some remember some dont remember what happened i would suggest take one day at a time and in the long term all i could say is take it slowly cuddles and carress's and let nature take its course and try not to let the fear take control just be natural and caring and i really wish you both well slowly slowly chatchi monkey

good on you lauren its about time you got away and relax and s**d the family you have to come first now its your health and happiness you have to look out for have a cracking time in the sunshine and enjoy i think it is more stress than anything else you have been on a very steep learning curve and learnt to release what has built up inside over many years go and have a fantastic time and if you want while your out there and you see a computer cafe send us a postcard just to make us jelouse if you dare lol sorry spelling go for it girl and enjoy and congratutions on everything you have done best wishs xx

anything brought for someone who has been ill ie disabled with some limitations is vat exempt you just sign a waiver and you get it vat exempt look on disabilty web site

hi lauren congratulations on getting it all out in the open it took some guts and you should be so proud s***d the family as such dont go down or we will have to smack your bum well done sweetheart i think a letter to your sister wouldnt go amiss stating when you will take mum out and leave a copy where mum is so they know whos going to take mum out dont you feel crushed or belittled in any shape or form pm me and rant and rave and if i can help you i will just let me know i cant force you but im here if you want me will pm you WE LOVE YOU if nobody else will say it

elaine just read your posts you mum has made a smahing recovery and the earlier she gets mobile the better she will cope more power to her elbow and it shows that she has what it takes it nice to hear people recovering so quickly her memory will return eventully and you will have to fill in the blanks for her but the main thing is to take one day at a time and enjoy mum tottering around and be happy lots of hugs and cuddles for you both and good luck

yes did watch it mixed feelings it seems so sureal i just wish it was like that for everyone but it was very informitive

hi dawn thats good news and im pleased for you take one day at a time and enjoy have fun and try not to worry to much just enjoy good luck xx

elaine try sucking an extra strong mint the peppermint produces saliva i found that it does help keep your mouth moist hope this helps lin is produceing to much shall i ask her to let you in on the secreat best wishs xx

hi janet sorry to here your neck is giving you a lot of gip i have ankolosing sponodlytis arthritis in the neck and i got a wheat bag from the shops a pound shop or a health shop you put it into the microwave for 2mins or three and then drape it around the neck it does work wonders it relieves my pain within mins and the pins and needles eases off very quickly its the weather if it gets damp and cold it plays me rotten but get the wheat bag some have lavender in and they smell nice and relaxes me and i drop off to sleep very quickly it helps when i go to bed makes me all nice and cozy and sleepy i think there about £1-00 to £3-00 try and see you will have to be carefull dont burn yourself you will find the best heat by trial and error good luck lots of love

hi sharon here a huge hug and cuddle for you and to say im thinking of you and pray things get a little better for you each day theres no shame in taking time out dont forget you have gone through the mill as well can you not get away and rest for a couple of days to try a recharge and get some frsh air and try to relax or altenitively find a punch bag and punch it to pieces untill you so tired or the bag says enough is enough sweetheart drop me a line if it helps please dont forget were all in it together and we are with you 100/% have another hug or shall i send you a tin of choclate sweets all my luv xxxx

hi phil welcome to the btg i think you will find so much support i think you will have to listen to your body you have gone through a huge trauma and it will take time to get used to taking things easy for a year or so you among most survivors on here have felt frightened as well my lin is still going through it and is still fairly poorly but hopefully she will pull through you have done very very well recovering so quickly and i hope your scan comes back clear unfortunantly sah do happen like yours but they will find out why and give you peace of mind from what everyone says on here is that they all have symptoms and weird feelings that go in time im fortunantly lucky not being a sufferer but as a partner of someone who has had a major trauma and worked in the health field for thirty years i understand how you feel and wish you well but many on here will support you and answer your questions i do really hope your scan comes back clear and that you move on to a full recovery best wishs

hi laura welcome to the site im sorry about your brother i really am but to see you here means that you are moving on and the fact you are seeking help via what seems to be a genuine dr who cares i hope will set your mind at rest and you will be able to move on in the knowlege that hopefully you may be in the clear this site as helped me no end and is still doing so for which i will never be able to repay except in being here for everyone else dont be shy everyone one here has made a remarkable recovery and are here to support any others that find us one thing which might help is that your brother didnt suffer and you have to remember the good times as he would have liked you to dont dwell on his passing but remember the fondness and happiness you had together and pick one bit in particular and hold on to it and be happy dont let it drag you down i hope i your case things are ok and you find yourself in the clear but we are always here to support and cheer you up as the song goes [you are not alone ] i wish i knew who sung the song someone said it may have been micheal jackson ?? but laura hold in there and keep us updated and stay in touch there are many signs given off but it could also strike without warning but hey we could walk off a pavement and get hit by a bus thats the way of life be happy and go for it laura enjoy try not to let it take over your life and good luck

hi joanne try not to worry about dads breathing this is normal my lin is doing the same its the brain triggering the deep breathing but in deep breathing he is excersieing the rest of his lungs as people are recumbernt in bed they only use the top half of their lungs so it is a good sign lins eyes are open but i think she is there it just as karen says the brain is taking a break as it heals when you see him next ask him to blink if he can hear you i asked lin to blink once for no and a double blink for yes ad the kick i get from seeing her blink twice worked magic for me and as everyone is telling me its a long old haul to better health i wish you and dad a speedy recovery well as much as he is capable of in his own time best wishs

sharon i do agree with karen try and take time to regroup and take a deep breath as karen has told me to do the same it does work and you need to take care of hubby as well carol the words will come in time so dont fret i am able because of the support here to be able to put my work hat on and relate what i did in my job and how i treated patients who are just like me and gone through what im going through sharon will email you what i have thought of so far hugs and cuddles

sharon please dont give up when you see mum just try and hold her hand and try to reasure her that shes not going to die i found if you can get her into a quite room and just the two of you and talk quitely and try to be reasureing and tell her you will always be there for her and try and bring up all the happy times you have had in her life and see if she remembers and try and get her to talk to you it maybe the staff are treating her as a dementia patient rather that a stroke patient and not talking to her as such i found in my job and with lin i have to talk to her normally and explain waht is going on because i found she was so terrified when the nurse tried to take blood [lins tight like that she wont give anyone blood ] i spoke to her and told her looking directly into her eyes that its going to be ok the nurse just wants a little blood so they can keep an eyes on her that did seem to work the terrified look went and a more peaceful look apppeared it is so important to explain what is going on before it happens i did try and ring but im always at the end of the phone so a very big hugS and cuddle to you and mum and as the song goes YOU ARE NOT ALONE SPEAK TO YOU LATER XXX

sharon when does mum go back to see the nurosurgeon or nuroglogy consultant please i do send you a very hugh hug from lin and myself will pm with my number if you want a chat please feel free

hi sharon i have read all you say and i might be able to give you some hope i have been speaking to a friend who works at queens sq in london who has helped me along with everyone on here and the info is as follows the frontal lobe controls the following physical increase or decreased interest in sex cognitive personality and behavioral eg chidish joking silliness self centered behaviour inabitily to see how others are reacting lack of initiative inpropriate social behavoiur emotional lack of anxiety or concern for the future impulsiveness restless irritability impatience it seems that your mum is suffering with all these problems i would suggest that you confront the dr with the above with all the above no wonder she is being uncopertive she is still recovering in regard to the last selection and i would think they would think before they act please ask the dr and maybe you will get proper answers to your questions and peace of mind i hope this helps and thank you for being there for me god bless

hi lauren have sent a pm i think this is because people who dont understand sah or any other illness tend to be very hurtfull because of ignorance and fear and their own mortality when i was in the ambulance service i saw a lot of this type of behaivior i tried and succeeded in getting them to either get into hospital and gather as many leaflets as they could and from ot dept at hospital and try to understand what people are going through after not only sah strokes and dementia and senility and many other woes dont let them get you down and try to get them informed i did have some success and have been thanked for it six months down the line when i have seen them going in and out of hospital lauren ask your sister infront of the family when you see her what is normal ? and what is she frightened of i promise you she will not know what to say and then you come out and say there is no normal because every one is different so there is no normal just compliance and i would be interested in what she says when you ask her what is she frightened of ? is it because she sees her possible future god forbid because dementia can be inherited stay strong sweetheart and dont let the buxxxgrs get you down i think we are all here so rant away ive done it and lovely karen hasnt black balled me yet