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About paul99

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    Senior Member
  • Birthday 24/05/1948

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    west midlands
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  1. paul99

    17 years on

    hi lisa I would take what super Mario and Clare are saying to you I have a feeling what's wrong but he needs to see a neurologist as a matter of urgency so push gp or speak to the secretary of the surgeon who treated your husband way back when don't take no for an answer please nobody needs to suffer like he is when help is available so seek and speak to gp good luck to you both
  2. paul99


    hi Tara Although it sounds scary, its common for a flap to be taken out to relieve pressure. Also if mum has fluid then the ventricles maybe blocked hence the infection which can be treated with antibiotics. Please try not to worry too much and if the ventricles are blocked that is something else that can be sorted. The main thing is to support mum and not let your fears show. Wishing mum well and that you relax a little because this is fairly common procedure. Keep us informed on how mum progress's, stay strong and take one day at a time please and make sure you have time for yourselves.
  3. paul99

    13 years post SAH today.

    well done super girl an inspiring message and long may it continue sweetheart maybe we could put you up for doing the three peaks next year lol but everything aside you are an inspirational person who had the foresight to set up BTG as an aid to your recovery enjoy your new life and by the way the spaghetti and meatballs look tasty lol have a fun day sweetheart hugs and cuddles
  4. paul99

    Personality changes?

    Hi Katie Nobody deserves to be on the scrap heap post bleed and that includes you. I understand where your coming from and can only suggest that you talk to your gp and ask to be referred to a clinical psychologist who would understand how you feel and offer some support so that you could be able to control your outbursts and discover what triggers the outbursts which is obviously down to the region of the brain which has been affected. The old adage of count to ten before answering could apply but you are human and everyone reacts differently to situations that occur in daily life. Does your employer know you have suffered from an SAH the psychologist tests are different from a clinical psychologist who work with you as a person and not follow the so called guidelines thy help you come to terms and help manage the changes you are experiencing. I'm not sure the hospital have forgotten you if you have other annies it would be prudent to ask the gp to refer you back for another scan and check up just to give you peace of mind, and just remember you are not alone we are here for you Good luck and remember count to ten lol hugs and cuddles xxx
  5. paul99

    Lower back pain

    Hi Mandy Yes its normal to have back pain and discomfort, it takes three months for the blood to be absorbed back into the body via the spinal tract and it can lead so some severe discomfort in the early days. 8 weeks is certainly very early to expect blood to have dissipated this soon but it does get better over time, good luck.
  6. paul99

    New here, comfort and advise please

    Hi Linda I'm sorry about your Mum, but she has survived and is making good progress, even at eight weeks. I would recommend that you ask Mum to be listed for a rehab centre. You haven't said where you are in the uk but I do know of several rehab centres and one in particular. I will send you a private message to gain more information. The hospital do have a phyiso department but a rehab centre will help Mum with all aspects of Mums recovery and you can self refer Mum to rehab. 75 is not old nor over the hill try and get the experts to view Mum and take it from, there don't give up. Confusion is normal at eight weeks so is the N/G tube. Mum needs support not consigning to a nursing home just like that. I know their under pressure, but eight weeks being to soon, good luck to you both xx
  7. paul99

    New Member: Rook

    Hi Rook I'm sorry to hear about mums bleed but glad she made it and came back to the uk and that she is due for discharge. Several things need to happen, are the hospital aware of mum is living alone? Ask if a care package has been or is being put in place for mum to have carers come in several times a day to get her up and take care of private functions and to ensure she has all the help she needs as you have to return to Denmark to work. Is there anyone near mum at home who could be of assistance to her when she does go home, like meals on wheels. Rehab appointments which she will need help to go to i.e. ambulance service this should all be sorted before mum is allowed home. The district nurse carers and all the support you can get which can be arranged at the hospital mum is in, don't let her go until this is all sorted and details are correct for mum wishing you both well
  8. paul99

    dilly new member

    Hi Dilly I'm glad you have found the site I understand your concerns but be rest assured that should further intervention be necessary it will be carried out in a speedy manner if required. It will be down to a neurosurgeon to decide so take one day at a time and try to be positive. Best wishes to the family
  9. Hi Umut Thank you Win.. Yes Umut there are others who have gone through the same as you and may have some input to help you and mum. I'm sorry if I seemed to confuse you that is the last thing I would do to you. I'm still here for you but leave the forum for all to contribute take care xx
  10. Umut Please remember there are other people who have such a wealth of information, flattered as I am I would rather you address all comments to the open floor. I will comment when I feel appropriate, but thank you for your trust.
  11. Umut The answer is very difficult, its a very difficult thing to answer as every patient is different . There is no one size that fits all. It is the same as asking how long is the piece of string. Doctors err on the side of caution I believe and I hope mum will wake up when she is ready. Put your hand in hers and ask her if she wants to come back and to squeeze your hand if she does. All you can do is wait and its a horrible time and so much will go through your mind but all you can do is be patient and wait. It can take another three weeks , nobody knows for sure but taking one day at a time would be the ideal thing to do. Be there for mum , squeeze her hand , talk to her , and tell her you all love her and you want her back. It is a shame no one is the same as each bleed affects people very differently and there will good days and bad ahead and we can only hope and pray mum shows signs she is aware. All the best Paul
  12. Hi Umut Take it from today but remember your mum is a individual and we cannot say for certain how things progress. It depends on Mum's inner strength and well being. Just be patient, be there for her and learn to take one day at a time. So far mum has survived, let mum do all the running so to speak. There is nothing you can do except hope and pray mum makes the necessary steps to recover. Time is not a factor just yet, one day at a time, remember.
  13. Hi Umut I'm sorry about your mother but we all hope things will improve in time. however you are so so early post bleed and it can take up to three weeks before any change will be noticed. Mum has taken a huge injury to her brain and it will take time for that to even settle mum has a tightrope to walk over the next twenty one days. you have done right in playing voices and music to her. I started a diary and left it in the ward so others could write any comments in it. I know my partner was out of it for three weeks plus but was also moving her limbs. its going to a very long marathon its not going to be a sprint and you are starting on a roller coaster recovery your going to have some major ups and downs but hoping mum will pull through. Wishing mum and the family well take care we will be here for you, take time for yourself as well.
  14. paul99

    23 year old son of SAH survivor

    Hello Mike Your mum will never stop improving, it takes time and a slow pace for mum to get back into mode as such. The rehab will could continue for months and possibly years, it depends on her stamina and support anyone can give her. You will have ups and downs, but that's normal, I promise, but the good days will take over as time goes on. This is a marathon and not a sprint. We are here for you should you want to vent or have problems. Wishing you and mum all the best xx
  15. Darcy Contact the neurological discharge team at the hospital and ask for some support . They can ensure some support should be available for, I believe, up to six weeks. The old adage "if you don't ask you don't get". Hope all goes well.