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paul99

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Everything posted by paul99

  1. Sarah Mums memory will always be with us as long as we live. Remember the good times, hugs and cuddles xxx
  2. Sarah I'm shocked and saddened by mums passing i don't come on here very often due to some very serious health concerns which involve hospitalisations please remember the good times and remember mum will always be in your heart and in everyones memory hugs and cuddles sweetheart just take time for yourself xxx
  3. congratulations colleen its lovely to know others are making strides ahead may it long continue enjoy your new life and be happy hugs and cuddles
  4. Hi Maeve I'm sorry about Mum passing. Remember Mum with the love you had together and the happy times and the funny times which Mum made you laugh and smile. Hugs and cuddles to you both.
  5. Hi Tori I'm sorry I seemed to have missed a lot of your postings. please don't get upset about the peg its there to maintain mums weight and it will be removed when mum gains weight and maintains it as it is better in the tummy than the nose so mum will be a lot happier. My Lin was in the old n/staffs and yes they were brilliant to her although sometimes the nurses seem to be over stretched hence the food was still on the table. are they thinking of mum going into rehab elsewhere after they deem her fit enough? if you see Simon Shaw give him my regards a nice chap, wishing you and mum well take care and try and take time for yourself please xx Paul
  6. linda You will experience many changes and feelings over the next three to four months, it's part of the healing process. Drink plenty of water and listen to your body and sleep when your body tells you its had enough for now. Good luck xx
  7. Hi Kris Just take one day at a time, keep hydrated with lots of water. It does help with the headaches. Good luck and safe motoring should you continue. Take care.
  8. Hi Kris Your neurologist maybe right in respect of straining, you will have many a symptom which worries you as you are still in the very very early days of recovery. The headaches and other symptoms are normal as the brain has got some blood surrounding it and it will take up to three months for that blood to be reabsorbed back into the body. Try not to allow the anxiety to take over, the bleed happened and you survived. You are talking to people who have gone through exactly the same and its very unlikely to happen again. Many who have suffered a NSAH are now leading normal lives with very little after effects and some with very minor effects. Enjoy your new life Recovery can be years not weeks, but as you progress in your recovery the less you take notice of it. I would recommend that you drive when you feel better. You don't say if you are in the UK or not but if you are be wary because bleeds of the brain is a condition which is recorded to the DVLA by the surgeon by law, hence you might be breaking the law. We wouldn't like that, take one step at a time, please drink plenty of water and try to relax a lot more. Best wishes
  9. Aandrea The figures you are quoting relate to the Glasgow coma scale which hospitals use on admission and it's a moment in time. It does not relate to how a person recovers, that is very much down to the patient. It does not have any relevance to recovery. All it relates to is whether your are awake and whether you are responsive and the answers you give at that time. Look forwards to the future and making improvements as each day progress's, good luck
  10. Hi Kris Welcome to the site. Glad you have come out the other side, good luck on the angio on Thursday. There are many reasons for bleeds and non aneurysms bleeds which your seem to be related to. The drs will set you straight when you get a follow up appointment There are many myths and suggestions relating to sah. There is one related to the loo as well i.e. straining too much. There is no rhyme or reason one has a sah. It is though and has been proven its normally genetics I would start by taking baby steps first drink plenty of water and above all listen to your body. Don't over stretch doing things, sleep when your body wants to. Sex is not the main reason for sah its when the anni ruptures on its own cause normally because the walls have weakened and they let go. Evidence shows more happen when things seem to be going ok but there is a possibility during sex, but that will happen immediately not down the line I would suggest that you have a second chance of a new life one step at a time and one day at a time there will be the odd step backwards but many steps forwards good luck and hope to hear from you soon with updates
  11. Jan We love you for who you are now not what you were before. You have come through the hardest part of a brain bleed and have moved on with such courage and determination with John's support to a wonderful women who has such a lot to share and give. Be proud darling of everything you have done and will be doing in the future. Massive hugs and cuddles to you both xxxx Paul
  12. Hi Topsy First thing you can try and do is relax and enjoy your second chance of a good life due to you. I'm sorry that you have suffered twice but in all honesty its going to very unlikely that you will ever have another bleed. The first was due to a traumatic injury, the second, well that's anybody's guess. The surgeon would have scanned you before surgery as such and if anything was obvious they would have told you about it. So please try and settle, I know its hard but you have come through two episodes and the vp shunt will keep your brain in a healthy state for the future. Good luck to you.
  13. hi Stanton Welcome to the site. Recovery is an on-going episode, you never stop recovering. The old saying of little and often is the answer you may very well recovering at a faster rate than you think. Its the little things that catch you when you suddenly think I didn't do that six months ago, so little and often is the answer I think, so keep up the good work and no stress .Enjoy your second chance of your new life good luck
  14. hi Chris sorry to hear you are suffering branch block. this I believe can be sorted by a cardiologist at a hospital with drugs. I hope you seek treatment soon if they haven't already started to treat you. best wishes
  15. hi jan im sorry you seem to be having a down day and im sorry that somebody has rained on your parade by being insensitive and unfeeling could I suggest that you take their comments with a pinch of salt. a lot of improvements are down to the person affected i.e. you. time is a great healer and with your determination I think that you will do more in the future and not be aware of the improvements you may make as the time goes on and then you can say I've proved you wrong. so bad day yes but you are doing whatever you can and that's what matters. have you though of asking for a second opinion re the eye? If you can see if your gp would refer you to the QE hospital in Birmingham I know it might be a trip but if you don't ask you don't get so to speak. just wishing you a happier day and lots of virtual hugs and cuddles xx paul
  16. hi pj Don't start self medicating, Your body wont accept it. With the trauma your brain has undergone stop take time out. Booze is not the brains friend. It takes three months or more for the blood to dissipate from your spine, every one wants too race back to full health straight away. It doesn't happen like that, it takes time. Everyone who has a bleed has a different rate of recovery you are not exempt if your body needs sleep then let it sleep. Don't fight it. The sooner you accept that things are happening at a slower pace then let it. It is possible your doctor does not understand sah's and its legacy. As Clare said see a neuro psychologist or a clinical psychologist to help you through the bad patch you are going through. In the early days of recovery there are more bad days than good. Talk to your boss ask him to look on here, it will give him an insight as to what you are going through because its ignorance that they are not more forgiving and understanding I would also suggest that you speak to the gp about the drug you are using for headaches as its also used for other symptoms. Use conventional pain killers. I think the drug you are using may be responsible for the nightmares There is no shame in seeking help from those who understand your situation i.e. the neuro psychologist or clinical psychologist as soon as you can And DONT YOU DARE THINK ABOUT CHECKING OUT OF THIS WORLD. Your family needs and wants you in their life. They want you back, and as soon as you feel able see the drs and get help. We are here, your life and family are more important, so is your happiness. Slow down, take a deep breath and seek help and if its necessary change jobs. Drink plenty of water, slow down. You have a second chance of life, grab it and enjoy with help Regards and I hope you take things on board. Wishing you well. We are always here for you
  17. hi palhuc The peg can stay in for quite a while but as hubby puts weight on once he proves he is stable they will remove it when the time is right. Please don't take hubby not talking to you too much to heart I think its because you are tired and exhausted I've been there and got the tee shirt I've been visiting every day for nearly 9 years come the 26 august this year or is it ten but since lin has been in the home I have taken time out once in a while which is really important for you own sake. Take time out drop to two days to give your body and mind to really come to terms of what you have gone through with hubby and try to regain your strength Do you have friends or family you could visit say over a long weekend away from you home environment it may sound harsh, but I did it for the first time after 9 months although, I slept while my friends held my phone just in case and when I went back to the home... boy did I feel a lot better! Yes I did check every day by phone but I did feel a great deal better on my return I would expect that phyiso could come in with there input to help hubby with his hands, take care
  18. hi palhuc that's not a silly question, its one many carers ask. the answer is nobody knows how someone recovers and how far they go. everyone is different. its like the question -how long is the piece of string? everyone is unique and only they can answer that question sorry take one day at a time and be prepared for the odd step backwards now and then hugs and cuddles
  19. hi palhuc really pleased about hubby and achieving the swallow reflex. now he could start to eat proper meals, albeit slowly, you don't want to slide back which shows in his witty replies to you. great stuff. I would now request a meeting with the case worker and ask why the surgeon is still involved and why he has not referred him. insist that hubby is reviewed by a neurologist from a rehab centre as a priority. the pressure area is of some concern but there are some exercises which can be done and if the vac therapy is working then it hopefully shouldn't be long before his restrictions will be lifted. im sorry if I am out of line giving you such advice in the respect of btg rules but you need to seek help from someone. are you allowed to approach the rehab centre directly? if so do so ask for help. are they saying you cant look after hubby if he came home? is the house suitable for wheelchair? has anyone tried a wheelchair at home? there is so much to take into account are you strong enough to care for hubby if he came home? I wanted lin home but due to the stress and aggravation I've had with hospitals my health suffered big time with heart attacks and the ensuing health issues. I know lin is safe and I see her everyday all day and we can still do what we want, so there is hope no matter how long it takes. take care xx
  20. hi palhuc I understand what you are saying but put a formal request in to the hospital and ask for a neurologist to come in from a rehab centre to review hubby and see what he says because he will be the expert if they refuse then take it to the hospital manager or director because what they are doing is immoral as macca says there is so little known about the brain and that's the problem. I presume you and hubby are insured im sorry if im wrong but the earlier rehab get him the better as for forcing him to shave his beard that is unforgivable ask him when you are alone if it was his own choice to take it off or if he was coerced to take it off know there are many on here who have suffered grade four and five make an impressionable recovery's she is talking rubbish my story is under the carers section my darling lin which shows how I have had to deal with what happened good luck hugs and cuddles make sure you take time for yourself xx
  21. Hi Palhuc Thank you for replying, yes six months is still very early in his recovery but the option of improving is still there and will be for a long time yet that part never stops. Yes I do understand about the D, Lins Dr was the same, it makes me angry when I see or hear about it from others. The Surgeon has done his job but he should have handed hubby over to a Neurologist for on going rehab the Neurologist is the Specialist. I think from what you are saying, the vac therapy was working then stopped, could be because they couldn't get a total seal around the wound hence the failure to continue healing and the restart commencing again. I think that you should insist that hubby be referred to a rehab centre which I know they have in Canada. Yes, Karen set up BTG here in the UK as a result in her incident and it has been a God send to me and to all who have joined and viewed the site. BTG has many people from all over the world coming on getting answers and support which has not been forthcoming from the hospitals from which people get reassurances and the knowledge that they are not alone. There are people going or have gone through exactly the same scenario as yourself. Please keep us updated, good luck.
  22. hi palhuc You haven't said which part of the country you are in. The hospital can start vacuum therapy where he is so ask why hasn't it been started, my lin had grade five pressure sore and the care home she is in tried for eighteen months to try and heal the area . I asked for a surgeon to review her he came in and examined lin and stated he wanted vac therapy, within three weeks the sore had totally healed but the area will always be a vulnerable area. I know it cost £1200 per week but it worked . I would also ask the hospital to refer him to a rehab hospital, I know of two and I know the one lin went to did a marvellous job. Its when she came back is where some problems started. I would ask why no intensive phyiso is being carried out I could give you more help if I could but keep pushing for a rehab centre and the vac therapy. I will send you the two rehab centre that I know of by private message good luck and regards to hubby
  23. Hi Palhuc Everyone is different in the way they recover. There will be times that things move quickly but please be prepared for things slowing down and appearing to slip backwards for a while then starting to move forwards at their own pace. It is a long progress recovering take one day at a time wishing you well and your hubby good luck please keep us updated and welcome to btg good luck
  24. Hi Gemma Welcome to the site and im pleased you have found us your mum has made a remarkable recovery long may it continue all of the symptoms you describe seem to be normal and may recover in the longer term which I hope will happen sooner rather than later. The question of travel you need the neurosurgeon insight and advice as it is early in your mums recovery so next time mum goes in for a review ask all the questions write them down before you see him, good luck.
  25. Hi Luke I'm sorry you are going through such a worrying time, but having gone through this with my partner a week is so so early. Your Mum has gone through a major op and it will take time to recover. It will be a slower recovery but hopefully Mum will come through ok. A type five bleed is quite a major bleed in its self, have patience, start a diary and be there for Mum as you have been. Wishing you all well.
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