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Skippy

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Everything posted by Skippy

  1. Hi Karen I was seriosuly thinking about anti-deps about a month ago - so for you to only just need them at 16 months after what you've gone through and are left with is remarkable. I know that I still feel like the SAH rules my life and even though I have no physical symptoms left the mental side has still tried to raise its ugly head over the past few weeks. I know whatyou mean about wanting to have just one day as you with the SAH being in teh forefront. Its the first thing I wake up thinking about and the last thing before I go to bed. I don't think its a case of us feeling sorry for you or sympathising but cos we've been through the same we can empathise with you. Sending a very very very big hug sweetie (hope that doesn't sounding patronising cos its not supposed to be) Lots of love Sami xxxxxxxxx
  2. Hi Guys My advice is if you have a partner in life make sure that they know how you are feeling each day and let them know that open arms, cuddles and love are very good medicines and that laughter really is the best form of medicine. Sami
  3. Hey Louise Yep I'm the same with the handbag thing and shoes!! Men don't understand that you can only use a certianhandbag if you'r wearing a certain pair of shoes and there are certain trousers that go with certain tops that others just don't. Paul always asks why I have so many when I can only wear one pair at a time and use one bag at a time!!!! I'm going to have a clear out this weekend and anything that I have not worn or used in the last six months is going to the charity shop!! Any excuse to go and buy new ones!!! I must admit that it was a lot to take in yesterday. i was astounded that the bleed had been in the temple area when I felt it in the back of my head and for the last 11 weeks thats where I thought it was. But its comforting knowing what the sensations in my head are. He said that the tightening headachey feeling will be my brainkind of saying "Jeez I'm fed up with this" and I have to say I know just how it feels!!! Hope you're not over doing it tidying up and sorting handbags and gladrags! Catch you later Sami xxx
  4. Hi Guys I woke up this morning feeling completely different. There is no little anxious ball in the pit of my stomache and when I feel a twinge or sensation in my head then I'm not worried because now I know what it is. Andy, I think I'm the kind of stubborn assed person who refuses to let anything beat me and, for me, getting back to work as soon as possible was best. I'm going to ring the DVLA today and let them know what my Neurosurgeon has said. I think us all meeting one day is a fab idea. We can try and arrange it so that us and our partners meet in the middle somewhere - which is gonna be hard for our US friends though Karen, know that you pop in now and again Have you heard from Andy H? Wondered how Heather was doing. Catch you laters Sami xx
  5. Hi Thanks Karen - glad to beone of yours girls - under the circumstances Glad you're feeling a little better today too. A few more days rest and you should be a lot better. Oh the nuerosurgeon agreed with yours about the Ginkgo - now isn't that strange a GP says yes and nuerogurgeon says no I didn't realise that the artery wall regrows under the anuerysm but glad to know that it does - had visions of parts of the clot breaking away!! Can look forward to Pink in concert with a bit more gusto now!! You look after yourself and that well earned halo of yours. So glad to met you and allthe others on here. Do you know how Andy P is getting on? Talk later Love Sami xxx
  6. Erm excuse me young lady - thought we'd instructed you to lay down and rest for a couple of days But thanks for the well wishes - feel really postiive again now I know what all the weird feelings in my head are from and that I can do what I want to do!!!! - apart from smoke but hey in the long run it'll be a hell of a lot better for me anyway!! Take care and rest up young lady - I'm sure you have a halo to polish anyway!!!!! Lots of love Sami xxx
  7. hi guys Just got back from my appointment and the news is fantastic. I had a category two bleed and the 2cm info I was given was the size of the clot around the anuerysm - the anni itself was about 5mm. They will check for compacting in February which will be six months from the dates of the bleed. I can resume all normal activities. He said that the thing they will check for is the artery wall healing itself below the anuerysm and that will be done by cat scan and if after a year there is nothing abnormal they will discharge me completely. He also told me that it was a right temporal bleed - which has affected my emotional sensors - hence the down time!! The sensation I can feel in the back of my head is where the blood clot is still dispersing down my spinal column and this will take about another month to subside. He was really nice and answered all my questions and also told me that I am doing remarkably well and am free to carry on driving when I feel ready so I may well write to the DVLA to let them know what has been said and give them his name incase they want to write to him. So all is well in Rossigirl world today. Catch you later Love and big big smiles Sami xxx
  8. hi Guys Well today is the day that I see my neurosurgeon for the first time and get to look at the evidence that I actually have a brain!! Appointment is at 2pm this afternoon, so will let you know how I go on. Sami xxx
  9. Hi Apparently the intake of two to three litres of water a day aids the blood flow around the body and therefore eases headaches. Dehydration causes the muscles in the scalp to contract which, in effect, is what causes headaches. I definitely notice if I haven't had at least two litres a day of non-caffeine fluid and if I have a coffee I always compensate with an extra glass of water - the same if I've had alcohol - I'll have a couple and then a soft drink or water. I'm getting through so much cordial I'm sure Robinson's profits will be up by 50% this year!!! Catch you later Sami xxx
  10. Hi Yeah its a kind of feeling as if someone is pressing on it constantly. Siobhan has only just started to feel comfortable touching the back of my head again. Bless her, she thought that she'd be able to feel it or it'd hurt me -even though we told her it was under the skull. We've decided that we're going to take her to the consultants appointment with us to put her mind at rest and also so she can ask any questions that she might have. Love Sami xx
  11. Hi I notice mine more when i'm tired, stressed or haven't drank enough water!! Its quite worrying as I feel like its going to go again but if you have it too Karen then it should be OK as our anuerysms are in a similar place and if its the coils settling then at least when i see my consultant on Wednesday I can ask him if this is the case. Am also going to ask where the hole in aneurysm was and then depending on that, what is the likelihood of having to be re-coiled at some point. Not a pleasant thought but at least its preventative rather than life saving :? Sami xxxx
  12. Hi Karen Have you looked into become charity funded as Salford have removed us from their website or are you feeling pretty confident that people will still find us? Sami xx
  13. Does anyone think they can feel their aneurysm? I can feel a constant pressure in the back of my head where it 'popped' and a slight 'burning' sensation at the right temple area where it bled into and damaged the brain when I passed out. My GP reckons that I won't be able to feel it - but if I have a ball of platinum coils the 3D size of a penny then surely I'd be able to feel it. I think the sensation in the right temple sensation is the blood filtering back through into the damaged area and it repairing. I also have a tightness at the back of the head where I felt it pop - again has/did anyone else experience this? Sami xxx
  14. P.S. Thats a lovely pic of you and Louis (did I get his name right?) Andy. Sami xx
  15. Hiya I've lost confidence in Doctors just recently with my Doc saying I can take the Gingko, Karen's saying no, the pharmacist saying no and then 2 herbalists saying yes. Will be interesting to see what the Neurosurgeon has to say!!! Sami xx
  16. Hi Karen I suffered from severe headaches for months last year and when we got back from Plymouth when I was discharged we found the paracetamol/codeine tablets that the Doc has prescribed for me dated December last year. They did ease but on the day of my SAH I had a headache all day long but put it down to the lack of coffee as I used to be a huge coffee drinker. The other thing is that I actually have a naturally low blood pressure and even during pregnancy it was never higher than normal, so for the anuerysm to have burst through high blood pressure is a mystery to me. But I do believe that people suffering from more headaches than is classed as normal should be monitored or scanned for aneurysms or weak artery lining - prevention rather than cure has got to be more efficient surely. But yes, I'm with you on this one. Sami xxx
  17. Hi Karen Don't know if the below will be any good - but anything is worth a try. http://www.charityfunding-online.com/index.asp http://www.charity-fundraising.org.uk/f ... ding.shtml Sami xxx
  18. Hi What does it/would it take to become charity funded? Would you want it to be - is there anything any of us can do to help? Sami xx
  19. Hi Karen Its a huge shame that they've removed the link from their site - I'd never have found you otherwise. Policy? Beauracracy and red tape really gets me riled. How can it be a personal site when it helps so many where the NHS ****** well fails!!! :evil::evil::evil: A very angry Sami xxxxx
  20. Hi Karen As soon as the Christmas decs go up in our city centre I'll take pics and up load them and I'll do the same when we've got ours up at home too. Its a lovely idea. Sami xx
  21. Hi Thats how I was when I had a really bad day last Saturday - I'd had three really good weeks and then bam - worst day. I know that I'm only 9 weeks in and am probably expecting too much from myself already but I am a naturally impatient person and I think my strong nature has probably helped me through this as well as the support from family and friends and you guys on here. The Ginkgo was helping too but now we're all confused as to whether or not its safe with such conflicting advice. I've not taken the St Johns Wort since Saturday but I feel fine and positive - its holding onto that feeling that sometimes wears me down. You take it easy today and get as much rest as possible sweetie Sami xxxx
  22. Hi Karen How weird is that!! Now we have one Doc saying yes and one saying no, one herbalist saying yes and one saying no and a pharmacist saying no. No wonder we're confused. I'd decided that I'm going to ask the specialist when I see him before taking it again anyway - wonder if my Doc looked into the thinning strength of it? If it not that potent perhaps he thought it'd be safe. Oh well Love Sami xxx
  23. Hey Louise Sorry to hear that you're feeling bad today. Lack of sleep and disruption can do that to someone who hasn't suffered what you have so you're entitled to feel the way you do. But remember that you have come this far and you are doing really well. 7 is generally thought to be a lucky number and if its seven years on Wednesday then this may be the turning point for you. Like Karen said - just think when you have that lovely decorated bedroom and a haven of peace this will all have been worth it. Rest up as much as you can today and don't beat yourself up for feeling the way you do today - its your right to have bad days sometimes. Sending a big big hug Love Sami xxx
  24. Hi Karen Do you think thats because you're already on other medication? I'm not taking anything at all apart from paracetamol now and again. Maybe the fact that it stimulates blood flow would interfer with your meds. Sami xxx
  25. Hey Annie Paul is 14 years my senior and from experience I've found the older man to be a lot more stable and secure. Besdies which at the end of the day - age is just a number - its the feelings that count and we all know how precious those are. You guys brighten every day. Catch you later Sami xx
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