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Everything posted by Skippy

  1. Lori, if this is chest pain and it worries you and eases with aspirin, please either take yourself to the ER or try to get an appointment with your Doctor.
  2. Don't worry about the time it takes to reply - as long as you're getting the info you need. What you've said above is exactly the reason my friend has the pain she has. Hope you find a solution x
  3. Congratulations Colleen - thanks for the update, always nice to know how people are getting on xx
  4. I remember you joining Louise - I'd not long had my SAH and was in desperate need of support and advice - to think that you were already 7 years in when you joined is amazing - I hadn't managed 7 days without needing something or someone to understand. I do remember I was the 9th person to become a member on the wonderful site and it's gone from strength to strength. Louise, I'm so very proud of how you've come on - you may not feel it but you have grown in confidence on here, have given some very insightful and compassionate advice and have become a very integral part of this very special community. All that remains to be said is "Congratulations on your anni-versary" and it is a great privilege to have watched your journey and to count you as a friend xxx
  5. It's my hands that stay the coldest longest - the rest of me can be nice and toasty but my hands remain freezing - only way to warm them is to hold a nice, hot cup of coffee - in the summer to cool them; a nice, cold beer
  6. Hi Sarah I'm 48 and in the last year or so have felt like I'm "going through the change" - I've noticed increased headaches around the "time of the month" and also feeling that I'm not as alert as I was 12 months ago. Also feel at times that I'm not paying attention as the concentration levels have altered. As for temperature regulation, I've suffered with that since my SAH. If I get cold i can't warm myself up and if I get hot, I can't cool myself down - that part is definitely not linked to the menopause for me.
  7. Sarah I'd take your folder with these letters to your next appointment and ask them to explain - even if its to point out to them that its not instilling confidence in you if these are mistakes. Not good for your nerves at all hun x
  8. I can completely understand and empathise with this - it's like listening to myself. I gave up on the books for a little while and read magazines instead - especially those with puzzles in and did those too. Now, I'm reading on average 2 books a week. The tearful and weepy days I also had - I asked my GP to refer me to a counsellor as I was diagnosed with PTSD - it might be worth talking to your GP about this. I was doubtful at first, but my word, how that man helped me was amazing. Please look into it. Don't watch over your husband preparing meals, if people ask if you're OK then answer them truthfully - its the only way they'll begin to understand what you're going through. Never feel ashamed, embarrassed etc - you're a very special person - you survived. Give your mind and brain time to heal and take baby steps - keep a diary of the good and bad days and watch as the bad days become less. The first time I realised this, I danced around my back garden laughing my head off - it felt so good. It will happen, listen to your body and take things slowly - as if you have had a broken leg and can't be a quick as you were.
  9. Hi Carolyn Welcome to BTG. Again, as others have said, you're very early in recovery and headaches, unfortunately, are part and parcel with the fatigue and memory issues. Mine didn't stop for nearly 6 months (mainly due to still trying to do too much too soon) and I didn't stop needing an afternoon sleep until a year later. Tell us a bit more about yourself too - if you feel up to it. It can help you, and others, identify with different recovery, circumstances and experiences. Good luck with your recovery and remember - it can be a long road to recovery, but you're allowed to make as many pit stops along the way as you like. Keeping hydrated and listening to your body are really important too xx
  10. Hi Bev Sorry to hear your symptoms have returned. There are a couple on here who have shunts and I'm sure they'll respond in the morning. To be honest, they generally have good things to say about having a shunt to alleviate their issues.
  11. Hi there Used to remember my dreams in vivid detail - now, nothing! Unless I'm jolted from sleep or something happens during the day to jog the memory, I don't remember a one.
  12. Hi Charlie, Yes it may well be because you're on your mobile - its on the top menu bar where its starts "Welcome, Support Information" and so on.
  13. Hi there I've no limitations at all from a doing what I want to do point of view. The only thing I have had to stop doing is my exercising (used to run and step aerobics) as I can't stand the vibrating feeling I get in my head. Take your experts advice, but if you're not sure why they've given an answer, question it to find out. Enjoy your trip x
  14. Hello and welcome to BTG Matt, I struggled to sleep too and I couldn't take codeine either - it made my headaches worse and I was rushed back into hospital 3 weeks later with another suspected bleed - it turned out to be an analgesic headache brought on by the codeine, so your partner is definitely not alone. Sound advice from Super though - plenty of water is key to keep the brain hydrated. The pain in the back and legs could be from the blood dissipating down the spinal column - mine took about 3 months to go. Definitely take your partner to the GP for advice but maybe see if you can also contact their Neuro team for their advice and knowledge would be more indepth. As for sleep, yes, let your partner sleep when they need to sleep whatever the time - it should eventually regulate itself.
  15. Yeah Chris - agree - Get to work on it Bri - fantastic attitude to have - its how I got where I am now too - go for it!!
  16. Hey Sallios I had horrendous back pain after, and was also told it was the blood leaving the spinal fluid - the thunderclap headache is caused by the blood invading the fluid around the brain as it's an irritant to it. I was advised it would take about 3 months to dissipate and to be honest, for me, that was about right. Best wishes for a good recovery x
  17. You're welcome Karen - first thing I do when I get home is log on and have a look xx
  18. HI Sarah See what the team have to say after the angiogram and try not to worry or feel you have to make a decision until then. Agree with the fact that you can trust your Neuro team . them having kept you safe all these years. Personally, having had one rupture and another not, I would have the surgery and risk that minimal percent rather than take the chance of having another one rupture. I have two anni's - they are close together and they made the decision themselves during my life saving op to coil the other while they were there - so luckily I don't have to make this decision (although I haven't been scanned for over 11 years and do wonder whats happening up in my old grey matter). Talk everything through with them after the angio and see how you feel about things then x
  19. Hey there Firstly, yes you did survive and yes, it there is a point in it. I can tell from your post that you were the oil that helped your household run smoothly. I know how that feels, it was the same for me. I had to instruct/shout/scream at my hubby to do the stuff I should have been doing - my daughter was only 9 at the time and even then, she did what she could. The best thing I did, besides finding this website, was talk to my GP about seeing a counsellor/therapist. From the feelings you describe it sounds very much like PTSD and you do NEED to see someone to talk this over with. You're feeling guilty that you're putting your family through this, angry that this has happened to you and frustrated that you can do nothing about it. As for the weight - with you again - I put on a stone in a month as I couldn't continue my exercise regime - which was step aerobics three times a week, jogging and swimming three times a week. Acceptance at this time will be the hardest hurdle but is also your best friend. Accepting the "new" me was the only way I could move forward. Accepting that I needed to talk to someone impartial was the first step on a long, emotional journey. But remember, its a long road to recovery, but you're allowed to make as man pit stops along the way as you like. Please see your GP and ask for therapy or a counsellor - it will be a massive help to start your journey. You've stalled at the starting line but in all honesty, you really have done the hardest part of all - you HAVE survived. This life may be different and it's up to you accept and adapt to it and also ensure those around you are aware of the journey you have ahead and also how they can help you along the way. Good luck my friend xx
  20. WOW Well done you!!! I couldn't have run for a bus after 7 months, let alone a half marathon!! I hope you're very proud of your achievement. Congratulations x
  21. Hi Von Welcome to BTG and the family. Sorry, however, that these are the circumstances under which we all meet here. The only information I can give you - after talking with Google, you understand is the following explanations of the conditions you have written in your post. None of us here are medically trained and cannot, therefore, offer you any medical advice. The information below is purely from looking at Google - maybe do a little research of your own, or get someone to help you do so. From Google Intracerebral hemorrhage (ICH), also known as cerebral bleed, is a type of intracranial bleed that occurs within the brain tissue or ventricles. ... In many cases bleeding is present in both the brain tissue and the ventricles The parietal lobe is at the back of the brain and is divided into two hemispheres. Inferior parietal lobule has been involved in the perception of emotions in facial stimuli, and interpretation of sensory information. The Inferior parietal lobule is concerned with language, mathematical operations, and body image, particularly the supramarginal gyrus and the angular gyrus. Hemianopsia, or hemianopia, is a visual field loss on the left or right side of the vertical midline. It can affect one eye but usually affects both eyes. Homonymous hemianopsia (or homonymous hemianopia) is hemianopicvisual field loss on the same side of both eyes.
  22. HI there and welcome to BTG. I' not sure that any of our members have given birth after an AVM but there are a couple who have since their SAH. You say your neurosurgeon is no longer practicing, but surely there will be someone in that department who can look at your records and and your case and advise your Obgyn accordingly. Ask them to write to them as your surgeon is no longer practicing.
  23. Hey Vicki Welcome to BTG. I have a friend that used to be on here and she was clipped. Ever since she has had pain at the clipping site. She's been told that they may have trapped a nerve whilst putting in the plate and that, unfortunately, its something that she would now have to live with and cope with with pain management. She does OK but there are days when it still gets her down that all this time after she's having to still take meds to cope with the aftermath. I hope that they can find a way to help you manage the pain x
  24. Hey there I was exactly the same as you describe above. Bending to put anything away felt like a heavy weight on my head. Moving suddenly made it feel like my eyes were trying to catch up in slow motion to where I'd moved my head to. The woolly feeling - definitely! Feels like you're trying to think through fog and that your brain is wrapped in cotton wool. It does get easier as time goes by and all our journey's are different. I'm coming up to 13 years next month and, for the best part, I actually sometimes forget this has happened to me - or at least I don't think about it so much. Its hard to adjust in the early years, but your husband will find a "new" him and his "new normal". Wishing him, and you, all the best xx
  25. Gorgeous darlink!!! - Wish I looked half as good lovey. Happy Anni-versary - you're an inspirational woman who a lot of people owe their sanity, and possibly their lives, too - I know I owe you big time!!! Lots of love and hugs xxx
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