Guest Hannah Posted March 28, 2007 Share Posted March 28, 2007 Hi all, Just checking in as I haven't written a post for a while although I do lurk around the boards a few times a week catching up with everyone on here has been up to. Just a recap really, my mum had a SAH in late September last year and after various trials she is now in a speacialist rehab unit in Norwich. Still. Improvements are coming quickly she can now walk using a frame and is allowed out of her 'cell' on Saturdays to come home overnight. I feel bad for saying it but I can't belive how much hard work this is! Although I say there are so many improvements I suppose I am comparing this to lying prone in an acute hospital ward, when you take in the whole view of how things were there is still a long way to go. The main difficulties at the moment are dealing with distractability when doing a task and a lack of insight in what she can do. Its very difficult trying to balance safety and keeping her on track with what she is doing when she feels as though I am nagging her. It sounds awful but sometimes mum does act like a child in so far as testing boundaries, almost manipulating a conversation so that I am left with nowhere to go go except where she wants me to. This doesn't seem to make sense, an example is when she tells me that she wants to book a short break away this weekend. Now I know she is only allowed home for a single night and that mobility is still severely limited so this cannot happen just yet, but mum is unable to let it lie accuses me of being unreasonable, trying to put barriers in her way etc etc almost constant niggling, I can't not reply because she won't let me and she can spot a plattitude a mile off. In someone who hadn't been through what she has you would almost think that she is deliberately trying to wind people up. All in all very difficult and very wearing. Or perhaps its me? I just try and stay patient and know that she is still improving. I can't believe we are now six months in, in some ways it seems like yesterday. The doctors hope that she will be out of hospital in the summer - which is something that we are all looking forward to. On a different tack (in my long and rambling post) I remember posts a while back on hereditary issues and Karen posted a good link to the Val Hennesey Trust page. Well, I went to the GP a short while back for various other things and I mentioned what had happened to my mum - imagine my surprise when I get a neurosurgery outpatient appointment through.... now I wonder what thats all about. I'll let people know if its anything interesting or if this consultant has radically different views from everything I've read. Sorry about the length Take care Hannahx Quote Link to comment Share on other sites More sharing options...
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