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Vasospasm


Guest Shiree
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Guest Shiree

Did anyone have a vasospasm after their SAH? I had one about day 9, they injected me at the site by going in at the top of my leg (bizarre) and then I spent a few days in the Critical Care unit because they push up your blood pressure to try and stop any more. My NS told me it was common in my case (being young, fit and having a low blood pressure). I also got a growling for being underweight but i sure don't have that problem now!!! :lol:

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Hi Shiree

Like you, I was underweight before my SAH and my blood pressure was very low too: 90:60.

They kept my BP up too in Intensive Care to prevent vasospasm.

I think when they go in, as you put it, through the top of your leg, they were going in through the femoral artery, which is the main artery they use to go in and coil an aneurysm (well it was in my case anyway).

Big hug

Lesley xxx

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Guest Shiree

Hiya Lesley

I was pretty out of it when all that happened. It took me a couple of days to ask my hubby why my bikini line had been tended to (blush). Tell me about your recovery.....

"hugs"

Shiree

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Hi Shiree

Yes I had 2 vasospasms, one on day 3 and one on day 7 post coiling. The first one was a big one and I remember I lost feeling on my left side and my speech was slurred. I was immediately taken down to be scanned again as they suspected another bleed but fortunately it wasn't. Luckily both times I responded well to treatment for vasospasm- I was put on a "fast drip" and had an injection. I think you are more at risk from vasospasm if you still have quite a lot of blood in the site of the rupture, post coiling. I had quite a big bleed.

I have tinnitus and loss of hearing in my right ear and I suspect it's because of the vasospasm but no one seems sure.

Anne x

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Guest Shiree

Hi There

Yes I has a big bleed too. But once again I have not alot of information on how this impacts on recovery.

Or if having a vasospasm is a factor in recovery?

The only real problem I have is terrible headache all the time.

"hugs"

Shiree

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Hi Shiree

I was told it takes longer to recover from a big bleed. I think if the vasospasm responds well to treatment then it shouldn't have too much impact on your long term recovery but I'm not sure about this. I blame the vasospasm on my loss of hearing but no one really seems to know for sure. I suppose it's all part of the syndrome after having a SAH. Headaches seem to be common after SAH. I haven't had any myself but I think that's quite rare but I've had other problems.

Anne x

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Shiree/Anne

I too had a major bleed & subsequent vasospasm - what is interesting is as the weeks have gone the hearing in my right ear has deteriorated! I thought this may have been down to wax ( :oops: sorry!) but now I will definitely add it to my list for the hospital visit in August.

Good days, Bad days - that's the road for the moment, not quite a roller coaster but as frustrating as the damn GPS system when it takes you somewhere you don't want to go!!! Just think calm thoughts, inhale deeply, exhale, yawn - ok doesn't work for everyone :?

Take care

jane

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Hi,

I think that it probably depends on what artery/area was affected and damaged by the bleed.... I didn't have vasospasm .... I think.... as I was given very little info ..... but did have seizures....during the SAH and after surgery.... my bleed was in the right post communicating artery and very close to my eye ..... but, it's left me with visual problems in my right eye and tinnitus in my left ear (which has got better, but seems to return when I'm having a bad spell and I can be plagued with dizziness)....I stroked on my left hand side, before I got to hospital. I also feel that it's left me with balance problems and seems to have affected my hormones, pituitary gland etc .....as since the bleed, I'm still calcium deficient and anaemic (folate)....my periods also stopped for about 3 months after the bleed .... and when I have a period now, I really suffer .... almost like my teenage years... If you're having problems post SAH, then you must go and consult your Doc .... a simple blood test can rule a manner of things out ... xx

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Hi Karen

Just read your reply and I must get my iron levels and calcium levels checked out. (I also had seizures when I came round after the coiling operation itself in ICU, but thankfully only twice and never since).

My right ankle has developed tendenitis and I'm hobbling around. Also my wrists are aching all the time - it just might be related to those Nimopodene tablets we all took which are calcium inhibitors?

Also noticed I'm definitely anaemic.

Whatever, I'm going to have a word with my GP.

You are always a mine of information! What would we do without you?

Love and hugs

Lesley xxx

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Karen

Thanks for your response and info. Maybe I will mention the ear and eye problems but so far all he has suggested is that I make a list to ask my neuro specialist at outpatient apptmnt! He admits to knowing very little about SAH and has made no attempt to supply me with any - I have booked my next visit with another Dr in the practice, maybe he will show some interest? As I have said before if this site and you fab people did not exist I would be floundering in the dark!!!

Hope everyone else has been helped and supported the same way xxxxxx

Jane

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I've just seen the ENT consultant today again - I got my hearing tested 3 months ago but it's not improved. The ENTconsultant says the loss of hearing in my right ear is due to the vasospasm I had and there's nothing they can do. I'm disappointed as I can't listen to music anymore as it just sounds like noise as I miss out on some of the frequencies and they think a hearing aids won't help as I can hear well at other frequencies. Am bit disappointed about this as thought I would be offered a hearing aid.

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Hi Anne

Sorry to hear about your news, i am also very dissapointed for you. Maybe you could still try a hearing aid, i know they said they dont think it would help... dont know till you try... just a thought.

Take care

Love Tinaxx

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Guest tekemeee

I seem to be different than most - I had extremely high vasospasms the entire time I was in the unit - which was 23 days. In fact, once they started doing the doppler on my head to check for vasospasms - they could not believe that - the higher the numbers got - the more worried they became. The guy told me that did the doppler each day that I was the first patient that he had ever had that had such high vasospasms and was awake, alert and able to carry on conversations with him. I never went into any kind of coma - never had to have any kind of surgery - but they seemed to think that I was in high danger. The 26th of this month will be 5 years - that is SO HARD TO BELIEVE! since the day of my SAH. It seems so long ago - yet the memory is so vivid with me - I guess because I was awake the entire time. I have no known problems at all since the SAH.

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Guest Shiree

Hiya Tekemeee

Wow sounds like you dodged a bullet there luckily!! Thanks heaps for your post and to see that you came out of the whole SAH experience with no known side effects is music to my ears.

I just love a happy ending :D

"hugs"

Shiree

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