Majella Posted January 31, 2021 Share Posted January 31, 2021 Hello everyone It has been quite a while since I posted and I reached my NASAH 1 year anniversary on January 3, 2021. Hard to believe. The second half of my year was taken up with endless specialist appointments, scans and tests for a number of reasons I won't bore you with. At this point everything has improved in varying degrees with the exception of one area. I experience loss of power or weakness in my arms and legs accompanied by breathlessness every day. It is more pronounced when I try to do things like changing a fitted sheet, mopping the shower or any other thing that takes that little bit of extra exertion. Walking more than about 10 metres has the same affect. Physios saying there is nothing metabolically wrong and it is not due to deconditioning. My Dr is arranging a CD scan looking at the possibilities of hydrocephalus or permanent damage as I had a large volume widespread bleed. Wondering if anyone else with a NASAH has had similar experience. With thanks and kind regards Allejam Link to comment Share on other sites More sharing options...
Tina Posted February 1, 2021 Share Posted February 1, 2021 Hi Allejam Congratulations on your 1st year NASAH Anniversary. Good to hear that there has been improvements. Sorry to hear you are still having problems with weakness and breathlessness. I hope your scan gives you some answers. I had an SAH and found things took at least 2 years and even longer to improve. 13 years down the line i still have to pace myself as still get the dreaded fatigue. One year is still very early in your recovery. You had a large volume widespread bleed. Wishing you well with your ongoing recovery. Please let us know how you get on. Take care Tina Link to comment Share on other sites More sharing options...
jess Posted February 1, 2021 Share Posted February 1, 2021 See a ent as vertigo and ear problems can cause those symptoms xxx Hope you feel better soon xxx Link to comment Share on other sites More sharing options...
Majella Posted February 1, 2021 Author Share Posted February 1, 2021 21 hours ago, jess said: See a ent as vertigo and ear problems can cause those symptoms xxx Hope you feel better soon xxx Thank-you for your response Jess. Interesting observation, as I have longstanding vestibular challenges pre-existing the bleed. Kind regards Majella Link to comment Share on other sites More sharing options...
Majella Posted February 1, 2021 Author Share Posted February 1, 2021 Thank-you Tina for you encouraging words, they give me hope. It's all a bit scary again at the moment. Kind regards Majella Link to comment Share on other sites More sharing options...
Bev75 Posted February 3, 2021 Share Posted February 3, 2021 Hi Allianz, I had SAH nearly 3 yrs ago with left sided weakness. I was diagnosed with post heamorrhagic hydrocephalus a year ago and since then have had 2 different types of shunts fitted. I'm using a walking stick as it helps me to feel the floor when I walk. I'm finding fatigue is still a big battle on a daily basis and was told it can take your brain a long time to recover. My Parietal lobe was damaged, I try to keep a positive outlook, taking it one day at a time. 1 year is still very early in your recovery, keep being kind to yourself and try not to overdo on your good days. Kind regards Bev x Link to comment Share on other sites More sharing options...
Majella Posted February 3, 2021 Author Share Posted February 3, 2021 Thank-you for responding Bev. I think I'm hoping that what I'm experiencing is a continuation of neuro fatigue because that feels like it still gives me hope that I can achieve further gains. Kind regards Majella Link to comment Share on other sites More sharing options...
Recommended Posts
Archived
This topic is now archived and is closed to further replies.