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kempse

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Everything posted by kempse

  1. Great news Zoe - roll on Wednesday! Best wishes, Sarah
  2. I know what you mean about getting stressed out by it all Donna, having felt the same, but whilst angios are not the nicest things in the world, they are only done to check that everything is ok and do come to an end. I don't think there are any timescales set in stone - I had my check up one at 4 and half months following my initial coiling, having had my first consultant appt at 3 months, so I think it must all depend on the individual case. Best wishes for Thursday and also your Wednesday appointment. Sarah Mace - I'm sorry to hear you were treated that way when you chased them up - the mind boggles!! Hope you get an appointment through soon.
  3. kempse

    Hello

    Hi Ash, It's understandable that life is so hectic at the moment, so it is nice that you have even managed to post an update on here at all. Good news that Mum has managed to feed herself. The smiles and laughs from her will be most welcome - I hope the good progress continues. Best wishes, Sarah
  4. Hi again, I did post on your other thread but on reading your story I'm quite moved that you had to endure all that! I wish I could offer you some useful advice but I didn't suffer any weakness, despite having severe vasospasm, so I can only imagine what problems it all entails. I should think the white blob of light that you are experiencing in your vision is very annoying and not very helpful that they can't tell you whether it will go or not. I have experienced a lot of zig-zag flashing lights in my vision since sah and although it is not there all the time I do find it frustrating and inconvenient when it does appear - like it did last Saturday morning when it woke me up at 4am! So I can empathise to a certain degree on that one. I'm glad you are near enough to see your family regularly and hope the day soon arrives that you are able to join them at home. Best wishes, Sarah
  5. Please don't feel guilty Zoe, from what I can gather you have remained pretty strong throughout and I admire you for that. It has not been an easy ride for you and you have every right to be feel like this at times, the pressure on you has been immense so don't worry about your feelings - you are only human after all. Getting it off your chest has possibly helped a bit but certainly don't feel guilty - the tears should also release some of the tension - I'm sure none of us would deal with it any differently to you. Just wondered if you have spoken to anyone at the Brain and Spine foundation - a chat with them might just help you a bit. Not sure what else to suggest but hope you will feel more positive tomorrow and just remind yourself how well you have coped over the past few months- take care, Sarah
  6. Hi Erin, A very big welcome to you - it is wonderful to have you here in person, you have done remarkably well with your post today and Alan has done a great job of keeping us updated. You are doing really well and I'm sure you will find much advice and support on here over the coming months. I wish you well with your walking target and hope everything else improves over time - I expect it will take a lot of sheer determination and hard work, so don't worry about posting your story just yet. I hope your two children are ok - love and best wishes to you all, Sarah
  7. Hi Steph, I must confess I had not heard of Terson's syndrome until you started this thread. I am glad that you did moan to your Consultant and got referred to an opthamolgist who subsequently made the diagnosis - I don't think you should have to resort to moaning but I do think that in many cases it is the only way to get yourself heard and things done. I had my sah in November 2008 and have suffered with visual disturbance ever since. I mentioned this to my consultant each time I saw him and he eventually referred me to an Opthamologist in July last year, who suggested it was the aura of migraine. I have only recently seen a copy of the letter that she wrote to my Consultant/GP which stated that, as I had not had any episodes of visual disturbance for the 3 months prior to seeing her, there was no need for her to see me again. There was certainly no mention of Terson's syndrome in my case, but the letter did state that my other aneurysm was going to be coiled which was news to me and apparently news to my neuro Consultant too when I asked him about it recently! However, the visual disturbance returned shortly after that and became very frequent in May/June/July of this year. In the middle of June I had an episode of double vision, which I had never had before. Bearing in mind my other, unruptured aneurysm is sitting close to the origin of the opthalmic artery I was rushed into hospital and was checked out by CT scan. I was told it was probably an acephalgic migraine. I was however sent to have an MRI scan (1.8.10) and saw my consultant on 9th August who told me there was nothing new to worry about, but they thought the double vision could have been caused by an 'old' stroke which they had found evidence of. I did not realise I had had any other stroke other than the sah and I still don't understand how that could have suddenly caused the double vision:confused: Anyway, I again mentioned to him that I still have the visual disturbance and he said I was to go to my GP and get a referral to see a neurologist as he wanted to get to the bottom of it (so do I). I saw my GP on 11th August and as I had not received an appointment through by yesterday I rang the surgery to chase it. To cut a long story short I have now got that appointment for 28th September - not far off two years since the visual disturbance started! So I will wait and see what he has to say. I also had to have more coils put in the aneurysm that had ruptured so I really can understand how all this can get you down. I'm not sure if any of this will have helped with your own concerns but I wish you well for your appointment on 10th - I hope you get it sorted and things don't drag on like they have with me. I think that my problem is that I probably don't moan loud enough! Sarah
  8. kempse

    Tracy

    Hi Tracy, Welcome to BTG. I think you have done really well to post at all, so soon after your sah. The beauty of this site is that you can post as and when you feel like it - you never need to feel alone - there is always someone around to share their experiences and help out if needed. Take care, Sarah.
  9. Hi Lorraine, Welcome, it's nice that you have written your story and a relief that you have not been left with any diabilities. There seems to be a lot of confusion in the medical profession between migraine and sah which is very worrying. My sah was in Nov 08 and I am still miffed that the paramedics didn't take me to hospital immediately - 6 days later when I eventually got there! But I am here to tell the tale which is what we have to be grateful for. I wish you well for the future, Take care, Sarah
  10. Hi Donna Marie, Welcome aboard - glad you found this site - it certainly helps being amongst people who have suffered the same misfortune. There are many people on here who are able to offer help and support if needed. I think we will all understand if you find posting a bit tricky at the moment - I remember trying to text someone in the early days and had to give up in the end, as I just couldn't do it - it will become easier over time. With best wishes for your recovery, Sarah
  11. Morning Gill, Sorry it was not all good news yesterday. I realise that you have to wait to hear more which will not be easy - it sounds like you are feeling exactly the same as I did when I was in a similar situation. I hadn't discovered this website at that time so I am sure you will find the support on here invaluable. I shall keep my fingers crossed that you can drive again soon - that would be so good. I do understand how you feel, so just give me a nudge if you think I can help in any way. Sarah
  12. Hi Steph, I was in a very similar position to you this time last year whereby the aneurysm that had ruptured needed more coils putting in. I had months of waiting and finally had it done last October, a month before the anniversary of the first coiling. Life carries on, but I found the waiting game pretty intolerable at times - particularly when it was all cancelled on the day I was due to go in. I do hope you get it done fairly soon so that the awful waiting is not hanging over you for too much longer. Take care, Sarah
  13. Hi Alan, Good to hear from you. It sounds to me like Erin is doing really well and although it can be a slow journey she has made progress and like you say done remarkably well. I'm sure you and the kids will keep her focused. Look forward to your next update, Best wishes, Sarah
  14. Glad to hear you have that out of the way Angela - the only symptom that I can recall was an enormous bruise around the entry site, so can't really help with your other symptoms. Hope it all settles soon, best wishes, Sarah
  15. Hi Sam, Nice to meet you, so to speak. I remember being registered for a while before posting, but am glad I did as I don't think you can beat talking to others who have been through a similar experience. Flying home in that condition must have been horrendous - good job your GP was on the ball. I can understand peoples confusion with the name Sam - I have a son called Sam and his girlfriend is called Sammy! Look forward to hearing from you again, Best wishes, Sarah
  16. Hi Jo Sorry to hear that you are being put through this. Last year I had a letter, dated April 09, saying I needed more coiling done - within the next 3 weeks. Those 3 weeks turned into 6 months so I understand your frustration. On one occasion, on the morning I was due to go in, I was all packed awaiting nervously for a return call to tell me what time to go in and lo and behold they couldn't find me a bed - that was not news I found easy to swallow - it is such an anxious time anyway, so any delay just makes it worse. Family and friends could see how it was all affecting me and often told me to complain, but I never did, I understood they must have more urgent cases than me so I tried to be patient - but my emotions were all over the place. Feeling fobbed off is not an ideal way for you to be feeling with this hanging over you so it may be worth looking into PALS as Karen suggested. I too have a second unruptured aneurysm and if that ever needs coiling I am not sure how I would deal/cope with any delays etc., if the same were to happen again. I hope you are not waiting too much longer, all the best, Sarah.
  17. Wishing you all the best for Thursday - I don't care for them either, but they do come to an end and that's what I try and focus on. Take Care, Sarah
  18. Hi Alan You certainly have a lot going on at the moment. It's good that you have family around who are helping where they can. I hope that Erin will make good progress over the coming weeks - the fact that there is no holiday cover for the physios must be very frustrating though. I hope the kids enjoyed their stay in the bungalow over the weekend. I wish you all the very best and a Happy Birthday to Erin for later this week. Sarah
  19. Hi Sonia Welcome aboard - look forward to reading your story in due course. Best wishes, Sarah
  20. Zoe, Pleased to hear that Richard has had his op today - it's good that they are keeping an eye on him overnight - hopefully he will be back on the general ward by the time of Sunday's visit. I hope you are feeling ok and can manage to enjoy the last few hours of your Birthday. Sarah
  21. Hi Kasim It's great that you have posted to let us know how your Mum is. I have not personally met your Mum other than on here at BTG, but could sense from her posts that she is a lovely person. I know she was not particularly looking forward to having the coiling done, but I am sure it was the right thing to do. I think most of us would be feeling a bit down if we were in her shoes - just let her know that we are all thinking of her and look forward to hearing from you, or your Mum, in the near future. Sorry I can't answer your question re stent/balloon. Sarah
  22. Hi Mace, Welcome aboard! Sounds like you were in a good place when the unfortunate happened. It is very recent for you so hopefully your symptoms will ease in due course - at least on here you are amongst people who know how you feel. Wishing you the best in your recovery. Sarah
  23. Hi Gill, Quite thought I had posted on your thread, but it appears not - perhaps cos I have spoken (so to speak) in the Green Room. Anyway, welcome to the site - I know you have found it to be godsend -it certainly helps being around people who can relate to your situation. I'm sorry to hear it took so long to get your diagnosis, that unfortunately seems to happen all too often - I, for one, called 999 as my heamorrhage was taking place but the paramedic just left me saying I had probably got better things to do on a Saturday afternoon than go to hospital!! I hope your eye improves for you over time - my eyes were not affected but I have recently started to worry as I have an unruptured anneurysm close to my opthalmic artery and was rushed to hospital on 26th June with double vision. I have not had any double vision since but that was the reason for going for an MRI on Sunday and I have an appointment next Monday with the consultant - which I am getting a bit anxious about. Wishing you all the best in your recovery, Lovely photo album by the way. Sarah
  24. kempse

    Hello

    Hi Ash, Haven't posted on your thread before but I have been following your story and it is good to hear your Mum has moved with little disruption. There are a lot of positive things that you have reported on - I hope the assessments go well on Monday - I am sure with the continued love and support of your family, your Mum will continue to do her best. Sarah
  25. Wishing Richard all the best for his op on 6th August - hope you manage to relax a bit afterwards and enjoy your birthday. Like you say, another move forward. Sarah
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