MaryB

David, you recently said your doctor changed your medication. Can this be a reason for the "early" winter blues? I say early my dear because you live in MICHIGAN when it is early winter:frown:. Maryb;-)

Ok, I could finally read and understand what you are doing!! That tells you something right there! Anyway ...way to go~ wonderful idea. COunt me in if you need me.

Good for you! I think we all need more vacations or holidays! I had no problems with the flight at my one year mark. I did however have a balance issue at the airport with the people mover, the lights coming on where you walked ( great idea whom ever thought of that never had a seizure). It is a problem I think I have that has more to do with either my fibro or brian tumor. But the flight was a breeze and I was relieved. I did however decide against going to the national convention this month as I did not want to be in charge of myself and carrying luggage, escalators and they have those same people movers in Florida I would have to use. But mine issue is balance and fatigue. If I were going on vacation I would not have an issue with all of that but not for business I cannot count on my brain to follow with that plan. Good Luck Mary

Jord. I had no coils but if it helps I have been complaining etc for months and I NOW have a bad cold and my ears hurt etc......... just would of been nice if one of the 4 Dr. I saw would of looked in my ears or said something about my chronic sore throat. I was really feeling rough I do not know if it is all due to this bug but that is where is I am now. Good Luck. Maryb

macca, I understand that guilty feeling as I feel I am not sufffering as bad as some. BUT if you were here I would ask if you if you are Cathoilic! All my Catholic friends are always feelign guilty. I kid you Catholics as I was raised mostly in your church but still my poor C friends.........lol

clap clap clapping my hands with joy! Wonderful news Dawn. I would take less pay for less stress any day of the week. I am very happy for you, Merry Christmas, maryb

Merry Christmas, Congrats, and Happy New YOU! Wonderful news. big hugs everyone. maryb

Being tired, not drinking enough water and doing too much all make me a mess. I cannot take a bunch of noise either. I work for a veterinarain and I swear somedays the dogs have just changed his color of fur to fool me. i certainly do not remember clients like I use to either. No you are not alone. maryb

Ok, so I sound like a drunk here- well maybe Keith as welll :razz: I do drink a glass of water with my alcohol - I also do not seem to even get a buzz but bet I would if I had a gin & tonic or vodka but both scare me. I cannot sip I guzzle as I am always thirsty.

I had my glasses fitted last week but still have a tender head. I have them on top of my ears most of the time. Hope you are feeling better darlin!

LOL at the responds to this question! I am afraid to ask if I can have a drink as I am sure my answer is NO ~ I am afraid of wine...maybe 1 glass. Bad bad memories of wine.

Well, shame on me!!!!!! I can drink beer like a man! I do not do it daily but every 10 days or so I can down a beer in 3 gulps such a welcome satisfying taste from water!!!!!! My limit I am ashamed to admit is 5 maybe 6 and I cannot say I feel it much at all. If I know I am going to have alcohol I cut back on other meds that day but I never can sleep well if I drink.

Ok did not mean to sound GRIM. I trying to make a point that b4 and after all this head stuff I like to be prepared.

Merry Christmas Lin to you and your family. We all have been wondering how you have been getting along. Glad to hear from you! MaryB

Bev, Early on I was pulled off all pain meds because old Neurologist thought I was having rebound headaches- which I think I maybe was. Anyway he put me on a seizure medication & I felt worse than ever. I only took it a week and threw it away. Glad you were able to enjoy the party. This is how I cope. I try real hard not to waste my time worrying about things that may not ever happen- I have a friend that worries about everything and makes her life and family crazy - literally. She has real reason for the concern and worry but on the other hand the time she is a constant unhappy nag to her children and husband ~ I wish with all my heart she would enjoy the time and be thankful for what is good and not all the “what if’s” . What I have learned from being close to this situation is to enjoy the good times and be prepared for something beyond my control. I carry a medication list with my Dr.s names and all my freaking conditions in my wallet. I am much older with grown kids and so I knwo this is a bit different for me. I have updated my living will with stronger language and carry that as well in my purse. May sound silly but it makes me feel secure- In my worse case scenario which would be my brain tumor will grown and I will not be able to make decisions for myself and I feel better knowing that in the rare case that happens my family, friends, doctors and lawyer understand my wishes. I feel I can do nothing more than that “just in case”. I tell people freely that I love them and they make my life better, I sometimes get into slumps where I am not as thankful as I should be but it is not pity for me more like being tired of being sick and tired. One thing I have found to be interesting is the inspiration you give without knowing you do. I have a few that say I am their rock for being so strong & keeping my sense of humor– where as I look to others I love that have gone through horrible & unthinkable tragedies & have to “deal” with their struggles daily they are my rock. In life I think if we do not learn lessons from observing others etc we are missing the opportunity to find knowledge that is useful and easily stored for when we need it. It is not to say everyday is a bed of roses but so many lesson are out there that we miss tend to not think enough about. When my children were young and we both were healthy we took out large life insuracne policies. I wanted to my children to have a live in or constant "nanny" that would provide stability to my boys and woudl take some pressure off my husband if God forbid they were motherless. It gave me comfort to know I had instilled basic good values in them and I knew they would be ok as I felt i was a free enough spirit as a mom that spoke about things all the time and was open with them. It is how I am . I like to be prepared for the worst case scenrio (SP?). And when I do not need my plan it was money well spent to give me piece of mind. I often ask what is the worst thing that can happend??? What coudl you do about it? Sorry for the babble again but this is how I cope......... I have a plan, baby! XOX maryb

Bev are you on seizure medications?

Oh, gosh....how I babble on and on. I was wondering you eye pain gals if your head ever just feels so tender you cannot find anything soft enough to lay it down on? I cannot even stand to wear my glasses and last week had ot have them adjusted as they felt too tight.

Hi guys I was reading your post, I do not get nausea or dizzy but am off balanced just now at 14 months out and I have always had floaters in my right eye for many years. About 6 months or more prior to SAH I had what felt like a sparkler light up in my right eye and it was the freakest thing ever. I have some vision lost that was minor in both eyes. Have you had your eyes checked my a Neuro eye Dr? My regular eye dr never sees anything but you need a Neuro Eye person to do some special test. My vision loss is at 10:00 and 2:00 so I often feel like I am going to run into something. My bleed was missed as well, they saw my stroke but missed the bleed ( unknown cause- NASAH). They also found a little brian tumor next to my brain stem ~ that was a bonus gift I think!! LOL Anyway I use to and still do off and on get those awful stabbing eye and head pains on the right side of my head. It is when I over did it, sunlight or LIGHTS got in my eyes or I read, computer work etc... It comes and goes. I started being wobblely (SP) a few months back and I wonder if my balance was off b4 and I just was not moving as fast as I am now but I cannot walk and NOT look down at where I am going. If I think I shold look at that cute little bird in the grass it will make me dizzy. If I don;t STOP to look and keep walking same as driving. I keep my eyes on the road. My neurologist told me a few weeks back that I was having an anixety attack and I politely told him "NO", I have more of a Where am I? & What am I doing here attacks at Malls, markets etc.. I do think I may have a little PTSD at times, not with it happening again. But with seeing head injuries or people playing sports and banging their heads. Thank GOD my kids are out of school and done with sports I would be freaking out. My neurologist just added a second anti depressant to my Cymbalta for my Fibro. I sleep great and I think it has taken some anxiety away that made me anrgy with co workers etc... . I feel like I am totally on uppers and downers. I take ritalin so I can stay awake past noon everyday and NOT sleep until dinner time. Which does make my quality of life much better, plus it woke up the part of my brain that could not process just getting up and making soup or something I did for a million years. Early days to me are the first year. My how one changes so much. I do not think I had any one huge issue but a bunch of smaller or medium ones that ended up making me crazy. I was much to brain drained the first 4 months to really care about anything. It took me close to 9-10 months to really begin to wrap my head around all that happened. I say rest rest and rest some more. Drink as much water as you can and do not worry about the small stuff. I kept thinking this is never going to end - it does not at 14 months but it changes. Or at least that is where I am at now. PS. I was complaining I was ill for 6-12 months or more about being completely exhausted and not feeling "right". I just think Dr know less than we think they should. I knew something was wrong but I was not having headaches yets or anything but exhaustion and not feeling well.

Congrats KeL Bel!! Gee the way you get around I woudl of thought it was your 10 year anniversary!!!! You inspire me, you really do! AND you were a great help to me early on so I want to not only congrats to you but thank you!! Maryb:-D

Kris, I have not moved but have handled some major issues and pressures the past 15 months. many prior ot my RITALIN!!! ........ As I am sorting Cards & gifts today I have no idea how I did some of the stuff and got through it but I managed it somehow. You will be fine, just do not think too far in advance.

Slowing down has always been hard on me. I am busy lady you know! I have told people and believe sometimes God taps you on the shoulder to get your attention & if you do not listen he may break your leg to make you listen to him, other times he may just HAVE to hit you with a sledge hammer right in your head to make you pay attention. Yes, it took me a long time to get I was not going to bounce back from this set back. I think I can beat or do anything I set my mind to but ....not s0 much anymore!! I had to surrender almost like an alcoholic to alcohol I have no real control over my brain healing other than I need to rest it. I cannot over do or I will pay dearly. My dream is to fly by the seat of my pants again! maryb

Jord, That is very odd, I agree with Sandi Wise Woman! I get a muscle spasm under my right breast, right under my rib cage. It is a real big muscle spasm and it freaks me out. I have no idea why and no one will tell me anything but it is a yelp kind of pain when it happens. Sorry that is the best I can do to help you with that weirdo pain. Good luck, mary

That is wonderful Michelle. With all that is on your plate ( Dylan) the level of stress you have everyday should just wear you, never mind the SAH! I am happy to read this post, as much I seem to alway think when will this get better I must say everyday it gets better I just EXPECT more!!! I expect to feel like I was 20 years old on most days. I forget that was 33 years ago until I see a photo of myself! Well done sister! Hip Hip Huray!! Pretend we are all throwing you up in the air. MB

Best WISHES Vanessa, I am so happy for you! I hope it is a smooth transition and all goes well! You will at least be surround by a great support team!!! Please do not forget about us! Take Care and drink your water, don't over do it either. Be patience with yourself as well. maryb

Steve, Welcome. I would continue to tlak to your Dr. MRI with or with out contrast is only one test. I know for a fact I had several MrI's, Ct scans, angio's etc. You should not just blow this off if it continues. I am sure it is nothing but better to be safe. It may be a nothing more than your body telling you to take it easier. I know that seems REALLY UNFAIR since you were ok up until recently. All of us will agree that if we over do it we get a headache. I just saw my GP last week and he advised me to stop before I get the headache but that is not always easy to do. Also when pain wakes up at night that is something your doctor would want to know - any kind of pain is gauge on if you can sleep through it. I often wake up after a nap or in the morning with a headache but it wears off once I start moving around. Have you done more reading, computer work etc? eyes checks? etc... I had recently gone to the airport and between the parking garage, people mover, elevators, escalators & not being on a main floor and the lighting there I was unsteady for 36 hours. It was so weird and I do not know why but my balance was off and it was freaking me out and I had not even gotten on the plane yet. My balance is a new issue I did not have before and although I think at times it is because I am healed and doing more I suffer with it or is it something new happening in my head? Good luck, mary