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Colleen

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Colleen last won the day on May 20 2016

Colleen had the most liked content!

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About Colleen

  • Rank
    Established Member

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  • Gender
    Female
  • Location
    Texas, USA
  • Interests
    pets, good fiction, ecology

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702 profile views
  1. Dearest Gem, it it is with such a heavy heart that I've read of your losses - first the tripping from SAH and then the final blow from this dread virus. Your poor dad an innocent victim unable to shield himself. There are just not enough words in my vocabulary to tell you how sorry I am. I so so hope you find solace in the poem Daff has shared and in good memories. I pray you will find comfort and that we all will move past these terrible times we are in. again my condolences to you and your family. With love, Colleen
  2. Thank you Daffodil. That was lovely, honest inspiration..and congrats on the eight years!, Colleen
  3. Hi Sarah, I can't imagine what you've been going through. I do not think I could be that patient waiting either. I truly hope you get the answers you need when you go in Monday and fully agree with Macca; do not let them have an inch! You are owed a full explanation of what is going on and all the options in full detail. I will keep you in prayers (belated Happy Birthday also, sorry to miss your day) Colleen
  4. I'm also in the USA. Following my SAH due to a ruptured aneurysm in 2008, I had a cerebral angiogram prior to release from the hospital. This procedure was repeated at years 1 and 2. After that, I had annual CTA scans for the next three years. I continued consultations with a neurologist until a few years ago, but had no more imaging. Colleen
  5. Dear Sunflower, Welcome to this wonderful forum. As has been said, you will find a wealth of information here. You do not mention whether your SAH was due to ruptured aneurysm or other cause. Regardless, two months out is very early in the healing process. It takes time for the blood to break down within the confines of the brain and that could be a source of discomfort. It's also not unusual to be scared and worried over ever small sensation. Best to check with your neurologist regarding all the possible short and long term impacts from the SAH and chances of a repeat. In any case, you should be taking care not to stress or strain yourself to give your brain time to heal. Is help with the babies possible? If so, ask; people don't realize the impacts of SAH because you can't see them. As for being alone with the babies, is it because you're afraid you'll collapse or something? Perhaps a medical alert device would lend more confidence until you feel stronger. I know I felt scared sometimes being alone after my ruptured aneurysm, but I didnt have children to care for. I hope your family is there to lean on and that information you can glean from this site helps. Prayers for your recovery, Colleen
  6. Hi Lori, i went through a ruptured aneurysm 11 years ago. For me, it came on after a morning shower; no exertion and no history of high blood pressure, though I had been under stress at the time. MasterCard, I also had serious anxiety. I found herbal teas helpful, just the process of making them and sipping them. Some have calming herbs as well - chamomile comes to mind. I also had a sweet dog that would lay against me and keep me company when my husband was at work. I remember being pretty limited at the time regarding exercise and reading gave me wicked headaches, so it was tea, tv, and the pets. It just takes time to heal. If the anxiety is extreme, speak with your Drs. PTSD is not uncommon in SAH survivors. Best wishes, Colleen
  7. Congratulations on the five years of progress as every year gives us a bit more comfort and advancement. Super congrats on the retirement and volunteering! Colleen
  8. Congratulations on this milestone Anni-versary Louise. And I also thank you for your thoughts today and for all you have shared over the years. I can appreciate your gratefulness for Ronnie as I too have a supportive husband who has helped me get through when I needed encouragement. May you and Ronnie be blessed with many more years! Love, Colleen
  9. Hi Carolyn, Congratulations on the progress you have made, never underestimate the significance of smallest achievements. In addition to Subs explanation I would suggest that following SAH our brains may have trouble adjusting to too much stimulation. I recall after my time in the hospital experiencing similar anxiety on the ride home. In my case it was cars and buildings streaming by as we were in a city. It's almost like a bit of phobia after being kept in semi- confinement. To this day (11 yrs now) I will become anxious in the grocery store when I am very tired because of the visual overload - too many colors, shapes, labels and the other shoppers. then there is the fact that may of us has a degree of PTSD following the trauma, and rightly so. You may feel safer at home. Or , the SAH may have damaged a potion of the brain that controls fear.. You are still early on in recovery and will find things get better as you go. But, If these symptoms continue to bother you, speak with your neurologist. I waited way too long and could have alleviated much of my anxiety sooner. Best wishes, Colleen
  10. Good morning all, hard to believe, but it's been 11 years to the day of my ruptured aneurysm. BTG has been such a blessing during this time. So, I get to go out and celebrate by having a troublesome tooth pulled. I debated the appointment date but there were no other options for the tooth and I need to feel better! Have a good day all! Love, Colleen
  11. Congrats on the fourth year and here's to many more years going forward! Colleen
  12. I had an aneurysm that ruptured and was coiled immediately. During assessment, a second aneurysm was discovered and was not a candidate for coiling due to its shape. Two months following the rupture I underwent a craniotomy during which both aneurysms were clipped for good measure. Hospital stay for that surgery was two or three days and I was back to work full time within the month. I had annual check up scans for the next four years to make sure everything was holding. My neurosurgeon is well known for his research, skill, and compassion. We cannot tell you what you should or shouldn't do and the specifics of your case are unique to you.. However, I would suggest if you feel you have unanswered questions, you could seek a second opinion from another neuro specialist and go from there. Best wishes, Colleen
  13. Hi Yun, No trivial questions when it comes to brain surgery after effects. I also had clipping. The incision ran down my right side hairline. Don't want to be too graphic but scalp was pulled back and skull bone removed to get to where they needed to go. The skull pieces were repaired with "bondo", and these areas ache when the weather changes or I'm tired or stressed. As for the scalp, it was explained to me that as all the disturbed nerves heal, it would feel tingly or itchy or like something was crawling . That took a very good while to go away. Even now, 10+ years later, sometimes I get a sensation of numbness, usually associated with fatigue, stress or too much caffeine. But nothing like the early days. It does get better, slowly but surely. Colleen
  14. LOL Casey, I got pretty upset when my neurologist told me part of my brain had died and I was being stubborn trying to fight my way through on my own. The meds he prescribed have helped but I keep the dosage low. I think just coming to grips with reality was invaluable for coping. Thanks for for the video Daff, I'm sure it will help many. Colleen
  15. Have you found Pediatric Intracranial Aneurysms on mc.vanderbilt.edu? It was published in 2010 but makes an important point about the advances that have been made in recent years. Also, just in my brief perusal, it appears that UCSF is a most excellent facility. You are blessed on that score. Best wishes, Colleen
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