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Colleen

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Colleen last won the day on May 20 2016

Colleen had the most liked content!

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About Colleen

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    Established Member

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  • Gender
    Female
  • Location
    Texas, USA
  • Interests
    pets, good fiction, ecology

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598 profile views
  1. LOL Casey, I got pretty upset when my neurologist told me part of my brain had died and I was being stubborn trying to fight my way through on my own. The meds he prescribed have helped but I keep the dosage low. I think just coming to grips with reality was invaluable for coping. Thanks for for the video Daff, I'm sure it will help many. Colleen
  2. Have you found Pediatric Intracranial Aneurysms on mc.vanderbilt.edu? It was published in 2010 but makes an important point about the advances that have been made in recent years. Also, just in my brief perusal, it appears that UCSF is a most excellent facility. You are blessed on that score. Best wishes, Colleen
  3. Well, I hit the ten year mark today. Overall I'm doing quite well, though last week I had my first major anxiety attack in quite some time. It was bad enough to send me to the dr, who prescribed better living through pharmaceuticals. Whatever it takes to keep on keepin on! Many thanks to all of you for this site and for making so many of us all across the miles keep from feeling alone. Love, Colleen
  4. Congrats on your lucky 13 and thank you so much for this site. It's truly a lifesaver for so many!
  5. Good evening and welcome to this lovely site, First I want to commend you for your strong spirit and being so supportive. I always tell people that in some ways, the early days of the SAH was harder on my husband than on me. Despite a pretty serious bleed and a craniotomy two months later to fix a second aneurysm, I recovered pretty quickly. I do not have children, but I was back to work full time after three months. That said, I never have had the same level of energy and stamina that I had before the bleed. ten years later and I'm having one of those weeks where I've "hit the wall" and the least discord makes my brain hurt. And even though I've been told the chance of a bleed happening again is slim to none, I still have to deal with a certain amount of fear when my head hurts.. You mention that you' d be surprized if your wife had any "remarkable" cognitive changes. That sentiment is pretty common when one isn't bearing physical scars and is operating at a high functional level. A common directive from medical staff is to "go live your life" because after all, we are just so blessed to be here and able to walk and talk at the same time.. But as my current neurologist tells me, no one gets away free. Where there is brain bleeding there is brain damaged and that part of the brain had a function, whether it's controlling fear or anger or joy or memory or expression or attention span. And whatever that impairment may be, it's worse whenever the fatigue hits. Please continue to urge your wife to have an assessment so the best path forward can be planned for her. I stubbornly waited years before I sought help. Things still aren't perfect, but they are better. Just knowing I wasn't imagining the changes helped immensely. i can also say that I read posts on this site for a long time before I posted myself, so if your wife isn't comfortable with the idea of conversing yet that is understandable. I do hope she'll read though, to see that whatever she's experiencing isn't unusual for what she's been through and she isn't alone. Our hearts go out to you as you adjust to this new normal and we all hope you both find help and comfort here. Colleen
  6. Only your doctor can answer that for you. Each case is different. But I did find vitamins, particularly B complex, help with energy and stamina.
  7. I will echo Paul's advise and suggest you see a neurologist who can explain what area of your brain was affected by the bleed. Sometimes just knowing what area was impacted - and the activities that area controlled - will at least help you understand your actions and accept yourself. No one is worthless due to a medical event. And I can relate to having outbursts. Sometimes I just put my hand over my mouth and wait til I've thought a bit. I also take a mild antidepressant. I've talked to others who had this problem post-SAH too, so you are not alone. Colleen
  8. Hi Tara, welcome to the site. It seems no matter where we are, doctors have a tendency to just turn us loose after the SAH and repair of vessels ( if necessary). Kind of like " congratulations, you survived, go live your life". I know I had a brilliant neurosurgeon and interventional radiologist, but there was little to no discussion over what to expect after. I struggled for five years before I finally saw a neurologist who explained where my brain was damaged, what that part of the brain controlled, and why I felt like I had attention deficit disorder and memory lapses. There just aren't any freebies. Your mom has damage. She has blood that has to dissapate ( like a large bruise on the brain) and probably still has some headaches that affect her will to get up, or eat, or visit with family. My best hours after I came home were laying on the couch with my dog Annie, bless her heart. So do not delay in getting your mom to a neurologist. Most GPs simply don't have the level of training to help with this. Beat wishes to you. And remember to take care and time for yourself. You cannot help mom if you are all a frazzle.. Colleen
  9. I would be interested in the source of that quote. Thanks. Colleen
  10. Hey Darcy, So not quite two months yet since the SAH. He will steadily get better. I was back at work within three months but mostly was doing desk work and did not have complications from the bleed. And I wont lie; fatigue was an issue for a long time. Just keep his dr apprised of his recovery status and try not to stress. I'm guessing if you're mowing you are down south somewhere. Learn to use the mower, it's great relaxation! Seriously, I know it's hard but he shouldn't stress about the grass. Priorities, you know. The main thing is getting better. Prayers for you, Colleen
  11. So good to hear from you Iola and congrats on the 5 year anniversary! You've made great strides along the way. Moving on to the ten year mark myself and you are very correct- we are never the same as we were before. However, the BTG site is excellent proof that we adapt brilliantly. You go, girl!
  12. Hi Stephen, As all have said, you don't just get over an SAH like you would a bout with flu. I'm wondering if perhaps you started feeling better and then started doing more, perhaps having a set back. I know it's frustrating, but you really must allow time for healing. Stamina takes a long time to come back around and fatigue often results in headache. As others have said, see your dr about symptoms that concern you. Best wishes, Colleen
  13. Hi Darcy, I'm sorry to hear about your husband. As others have said, it takes time for the blood to break down as it has nowhere to go. The way it was explained to me is that it is like a bruise; the blood has to degrade, but while it is present it is an irritant to the brain tissue. And I know when I had the headaches, I often felt nauseous. My dr actually suggested if I normally drank coffee to go ahead and drink it since caffeine withdrawal could aggravate the headaches. That said, I drank a lot of water and herbal teas after I came home. It will take awhile but hopefully he'll feel better soon. Colleen
  14. Well I'm a bit late to this party, but I do congratulate you on your accomplishments and joyous attitude. ( and I too would love a cleaner). May you have many more journeys and adventures. Happy Trails! Colleen
  15. Congrats, Casey and so happy to hear your recovery has been so outstanding.. Always uplifting to hear when others are doing well! love, Colleen
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