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Colleen

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  • Content Count

    208
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Colleen last won the day on May 20 2016

Colleen had the most liked content!

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About Colleen

  • Rank
    Established Member

Profile Information

  • Gender
    Female
  • Location
    Texas, USA
  • Interests
    pets, good fiction, ecology

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662 profile views
  1. Hi Lori, i went through a ruptured aneurysm 11 years ago. For me, it came on after a morning shower; no exertion and no history of high blood pressure, though I had been under stress at the time. MasterCard, I also had serious anxiety. I found herbal teas helpful, just the process of making them and sipping them. Some have calming herbs as well - chamomile comes to mind. I also had a sweet dog that would lay against me and keep me company when my husband was at work. I remember being pretty limited at the time regarding exercise and reading gave me wicked headaches, so it was tea, tv, and the pets. It just takes time to heal. If the anxiety is extreme, speak with your Drs. PTSD is not uncommon in SAH survivors. Best wishes, Colleen
  2. Congratulations on the five years of progress as every year gives us a bit more comfort and advancement. Super congrats on the retirement and volunteering! Colleen
  3. Congratulations on this milestone Anni-versary Louise. And I also thank you for your thoughts today and for all you have shared over the years. I can appreciate your gratefulness for Ronnie as I too have a supportive husband who has helped me get through when I needed encouragement. May you and Ronnie be blessed with many more years! Love, Colleen
  4. Hi Carolyn, Congratulations on the progress you have made, never underestimate the significance of smallest achievements. In addition to Subs explanation I would suggest that following SAH our brains may have trouble adjusting to too much stimulation. I recall after my time in the hospital experiencing similar anxiety on the ride home. In my case it was cars and buildings streaming by as we were in a city. It's almost like a bit of phobia after being kept in semi- confinement. To this day (11 yrs now) I will become anxious in the grocery store when I am very tired because of the visual overload - too many colors, shapes, labels and the other shoppers. then there is the fact that may of us has a degree of PTSD following the trauma, and rightly so. You may feel safer at home. Or , the SAH may have damaged a potion of the brain that controls fear.. You are still early on in recovery and will find things get better as you go. But, If these symptoms continue to bother you, speak with your neurologist. I waited way too long and could have alleviated much of my anxiety sooner. Best wishes, Colleen
  5. Good morning all, hard to believe, but it's been 11 years to the day of my ruptured aneurysm. BTG has been such a blessing during this time. So, I get to go out and celebrate by having a troublesome tooth pulled. I debated the appointment date but there were no other options for the tooth and I need to feel better! Have a good day all! Love, Colleen
  6. Congrats on the fourth year and here's to many more years going forward! Colleen
  7. I had an aneurysm that ruptured and was coiled immediately. During assessment, a second aneurysm was discovered and was not a candidate for coiling due to its shape. Two months following the rupture I underwent a craniotomy during which both aneurysms were clipped for good measure. Hospital stay for that surgery was two or three days and I was back to work full time within the month. I had annual check up scans for the next four years to make sure everything was holding. My neurosurgeon is well known for his research, skill, and compassion. We cannot tell you what you should or shouldn't do and the specifics of your case are unique to you.. However, I would suggest if you feel you have unanswered questions, you could seek a second opinion from another neuro specialist and go from there. Best wishes, Colleen
  8. Hi Yun, No trivial questions when it comes to brain surgery after effects. I also had clipping. The incision ran down my right side hairline. Don't want to be too graphic but scalp was pulled back and skull bone removed to get to where they needed to go. The skull pieces were repaired with "bondo", and these areas ache when the weather changes or I'm tired or stressed. As for the scalp, it was explained to me that as all the disturbed nerves heal, it would feel tingly or itchy or like something was crawling . That took a very good while to go away. Even now, 10+ years later, sometimes I get a sensation of numbness, usually associated with fatigue, stress or too much caffeine. But nothing like the early days. It does get better, slowly but surely. Colleen
  9. LOL Casey, I got pretty upset when my neurologist told me part of my brain had died and I was being stubborn trying to fight my way through on my own. The meds he prescribed have helped but I keep the dosage low. I think just coming to grips with reality was invaluable for coping. Thanks for for the video Daff, I'm sure it will help many. Colleen
  10. Have you found Pediatric Intracranial Aneurysms on mc.vanderbilt.edu? It was published in 2010 but makes an important point about the advances that have been made in recent years. Also, just in my brief perusal, it appears that UCSF is a most excellent facility. You are blessed on that score. Best wishes, Colleen
  11. Well, I hit the ten year mark today. Overall I'm doing quite well, though last week I had my first major anxiety attack in quite some time. It was bad enough to send me to the dr, who prescribed better living through pharmaceuticals. Whatever it takes to keep on keepin on! Many thanks to all of you for this site and for making so many of us all across the miles keep from feeling alone. Love, Colleen
  12. Congrats on your lucky 13 and thank you so much for this site. It's truly a lifesaver for so many!
  13. Good evening and welcome to this lovely site, First I want to commend you for your strong spirit and being so supportive. I always tell people that in some ways, the early days of the SAH was harder on my husband than on me. Despite a pretty serious bleed and a craniotomy two months later to fix a second aneurysm, I recovered pretty quickly. I do not have children, but I was back to work full time after three months. That said, I never have had the same level of energy and stamina that I had before the bleed. ten years later and I'm having one of those weeks where I've "hit the wall" and the least discord makes my brain hurt. And even though I've been told the chance of a bleed happening again is slim to none, I still have to deal with a certain amount of fear when my head hurts.. You mention that you' d be surprized if your wife had any "remarkable" cognitive changes. That sentiment is pretty common when one isn't bearing physical scars and is operating at a high functional level. A common directive from medical staff is to "go live your life" because after all, we are just so blessed to be here and able to walk and talk at the same time.. But as my current neurologist tells me, no one gets away free. Where there is brain bleeding there is brain damaged and that part of the brain had a function, whether it's controlling fear or anger or joy or memory or expression or attention span. And whatever that impairment may be, it's worse whenever the fatigue hits. Please continue to urge your wife to have an assessment so the best path forward can be planned for her. I stubbornly waited years before I sought help. Things still aren't perfect, but they are better. Just knowing I wasn't imagining the changes helped immensely. i can also say that I read posts on this site for a long time before I posted myself, so if your wife isn't comfortable with the idea of conversing yet that is understandable. I do hope she'll read though, to see that whatever she's experiencing isn't unusual for what she's been through and she isn't alone. Our hearts go out to you as you adjust to this new normal and we all hope you both find help and comfort here. Colleen
  14. Only your doctor can answer that for you. Each case is different. But I did find vitamins, particularly B complex, help with energy and stamina.
  15. I will echo Paul's advise and suggest you see a neurologist who can explain what area of your brain was affected by the bleed. Sometimes just knowing what area was impacted - and the activities that area controlled - will at least help you understand your actions and accept yourself. No one is worthless due to a medical event. And I can relate to having outbursts. Sometimes I just put my hand over my mouth and wait til I've thought a bit. I also take a mild antidepressant. I've talked to others who had this problem post-SAH too, so you are not alone. Colleen
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