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Colleen

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Colleen last won the day on May 20 2016

Colleen had the most liked content!

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About Colleen

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    Established Member

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  • Gender
    Female
  • Location
    Texas, USA
  • Interests
    pets, good fiction, ecology

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  1. Colleen

    13 years post SAH today.

    Congrats on your lucky 13 and thank you so much for this site. It's truly a lifesaver for so many!
  2. Colleen

    New - Reassurance Needed

    Good evening and welcome to this lovely site, First I want to commend you for your strong spirit and being so supportive. I always tell people that in some ways, the early days of the SAH was harder on my husband than on me. Despite a pretty serious bleed and a craniotomy two months later to fix a second aneurysm, I recovered pretty quickly. I do not have children, but I was back to work full time after three months. That said, I never have had the same level of energy and stamina that I had before the bleed. ten years later and I'm having one of those weeks where I've "hit the wall" and the least discord makes my brain hurt. And even though I've been told the chance of a bleed happening again is slim to none, I still have to deal with a certain amount of fear when my head hurts.. You mention that you' d be surprized if your wife had any "remarkable" cognitive changes. That sentiment is pretty common when one isn't bearing physical scars and is operating at a high functional level. A common directive from medical staff is to "go live your life" because after all, we are just so blessed to be here and able to walk and talk at the same time.. But as my current neurologist tells me, no one gets away free. Where there is brain bleeding there is brain damaged and that part of the brain had a function, whether it's controlling fear or anger or joy or memory or expression or attention span. And whatever that impairment may be, it's worse whenever the fatigue hits. Please continue to urge your wife to have an assessment so the best path forward can be planned for her. I stubbornly waited years before I sought help. Things still aren't perfect, but they are better. Just knowing I wasn't imagining the changes helped immensely. i can also say that I read posts on this site for a long time before I posted myself, so if your wife isn't comfortable with the idea of conversing yet that is understandable. I do hope she'll read though, to see that whatever she's experiencing isn't unusual for what she's been through and she isn't alone. Our hearts go out to you as you adjust to this new normal and we all hope you both find help and comfort here. Colleen
  3. Colleen

    Personality changes?

    Only your doctor can answer that for you. Each case is different. But I did find vitamins, particularly B complex, help with energy and stamina.
  4. Colleen

    Personality changes?

    I will echo Paul's advise and suggest you see a neurologist who can explain what area of your brain was affected by the bleed. Sometimes just knowing what area was impacted - and the activities that area controlled - will at least help you understand your actions and accept yourself. No one is worthless due to a medical event. And I can relate to having outbursts. Sometimes I just put my hand over my mouth and wait til I've thought a bit. I also take a mild antidepressant. I've talked to others who had this problem post-SAH too, so you are not alone. Colleen
  5. Colleen

    Fatigue and memory

    Hi Tara, welcome to the site. It seems no matter where we are, doctors have a tendency to just turn us loose after the SAH and repair of vessels ( if necessary). Kind of like " congratulations, you survived, go live your life". I know I had a brilliant neurosurgeon and interventional radiologist, but there was little to no discussion over what to expect after. I struggled for five years before I finally saw a neurologist who explained where my brain was damaged, what that part of the brain controlled, and why I felt like I had attention deficit disorder and memory lapses. There just aren't any freebies. Your mom has damage. She has blood that has to dissapate ( like a large bruise on the brain) and probably still has some headaches that affect her will to get up, or eat, or visit with family. My best hours after I came home were laying on the couch with my dog Annie, bless her heart. So do not delay in getting your mom to a neurologist. Most GPs simply don't have the level of training to help with this. Beat wishes to you. And remember to take care and time for yourself. You cannot help mom if you are all a frazzle.. Colleen
  6. Colleen

    Collagen rich food

    I would be interested in the source of that quote. Thanks. Colleen
  7. Hey Darcy, So not quite two months yet since the SAH. He will steadily get better. I was back at work within three months but mostly was doing desk work and did not have complications from the bleed. And I wont lie; fatigue was an issue for a long time. Just keep his dr apprised of his recovery status and try not to stress. I'm guessing if you're mowing you are down south somewhere. Learn to use the mower, it's great relaxation! Seriously, I know it's hard but he shouldn't stress about the grass. Priorities, you know. The main thing is getting better. Prayers for you, Colleen
  8. Colleen

    Finally - 5 Years

    So good to hear from you Iola and congrats on the 5 year anniversary! You've made great strides along the way. Moving on to the ten year mark myself and you are very correct- we are never the same as we were before. However, the BTG site is excellent proof that we adapt brilliantly. You go, girl!
  9. Colleen

    Feeling rough again

    Hi Stephen, As all have said, you don't just get over an SAH like you would a bout with flu. I'm wondering if perhaps you started feeling better and then started doing more, perhaps having a set back. I know it's frustrating, but you really must allow time for healing. Stamina takes a long time to come back around and fatigue often results in headache. As others have said, see your dr about symptoms that concern you. Best wishes, Colleen
  10. Hi Darcy, I'm sorry to hear about your husband. As others have said, it takes time for the blood to break down as it has nowhere to go. The way it was explained to me is that it is like a bruise; the blood has to degrade, but while it is present it is an irritant to the brain tissue. And I know when I had the headaches, I often felt nauseous. My dr actually suggested if I normally drank coffee to go ahead and drink it since caffeine withdrawal could aggravate the headaches. That said, I drank a lot of water and herbal teas after I came home. It will take awhile but hopefully he'll feel better soon. Colleen
  11. Colleen

    Fourteen Years Later

    Well I'm a bit late to this party, but I do congratulate you on your accomplishments and joyous attitude. ( and I too would love a cleaner). May you have many more journeys and adventures. Happy Trails! Colleen
  12. Colleen

    5 years

    Congrats, Casey and so happy to hear your recovery has been so outstanding.. Always uplifting to hear when others are doing well! love, Colleen
  13. November 1 marked the nine year mark for me! I meant to post that day, but between newish responsibilities at work and a newish wild and crazy dog that gets me up way too early for walking, I have a hard time keeping my eyes open at night. I got to celebrate the day with a 4 hour conference call in the morning and a 1.5 hour meeting in the afternoon, which I had to spend an hour driving to and from! So I guess you can see I've recovered fairly well. Even so, I still find great comfort in the posts that remind me my lingering sensations and memory issues aren't just my imagination. While I dont post as often I inwardly celebrate all your victories large and small and sympathize and pray over set- backs and hardships. I am very thankful to have this family to come to. Much love to you all, Colleen
  14. Hi Sairah, I too had a craniotomy for clipping aneurysms and went through the whole crawly, itchy head thing. You must remember when they did the surgery they had to pull the scalp back to some degree, disrupting vessels and nerves. The creepy crawly sensations are from the healing, much like an incision will itch as it heals. Fortunately, I was told to expect that. It can go on for quite some time! I find too that cold, damp weather makes the affected skull bones ache, so am careful to keep hats handy in winter. After more than 8 years, the area o skull that was cut out and replaced has sunken somewhat. Also, do not be surprised or alarmed at random pains. I've spoken to others who've had SAH and it seems a common experience. Disturbing, I know and I won't say you get used to it, but more tolerant perhaps. Best wishes, Colleen
  15. Colleen

    toothache

    Hi Topsy, i was was also reluctant to take medication for my anxiety issues and attempted to " go live your life" for about 5 years before seeking help. I also take an SSRI, different med than you are prescribed, and at the lowest dose. It helps. You should discuss your concerns over the medication with your doctors or pharmacist.
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