Jump to content

Recommended Posts

Posted

Has anyone had this? if so what happened to you? are you waiting for it to be replaced or a metal plate? I was curious as i dont know anyone else that has had this, and wondered what the procedure is too fix it?

Posted (edited)

I never had that but after a year with hydrocephalus ..and being in dreamland they put a shunt in my head to get rid of water pressure build up/hydrocephelus (can never spell that word )..I had a shunt fitted...dunno if its same or what..but good luck

to you both xx ....my Dad got kicked by a horse once and he had a metal plate in his head ...he used to let me tap it lol

Good luck once again

Love

WinB143 xx xx

Edited by Winb143
Posted

hi alison

lin has had her skull removed due to her sah and they needed to leave it out after three nearly four years i requested that lin be refered to another hospital who is now going to put a titainium plate in within the next few weeks she has been measured and the plate is now ready there were concerns over an eeg but this has now been resoloved

lins bone flap is still within the abdomen they have decided that the risk of infection was to great and that the bone flap would have had the edges disolved so its being left in place hence the titainium plate lin has problems because the atmospheics are playing havoc with lin and is having a detrimental effect on her

i believe the flap is normally replaced after six to nine months depending on the patients condition and need

you can ask the neurosurgeon when he is going to replace the flap basicly its a lesser operation than clipping but as with all operations there is that horrible risk which scares the pants off me but if its going to possibly give lin her best chance then its worth it i found the new drs very caring and willing to do whatever they can for lin if i can be of any help please let me know take care

Posted

Hi Win and Paul, so lovely to hear from you both :) and ty for your replies.

did you get any good tunes on ya dads plate Win..chuckles. I dont know what is going to happen with Chris, will find out more in Aug when we go to the hosp i guess. He is quite frightened at the thought of having the op, i tried to keep him calm and say all the right things to him, but i would feel the same no doubt, at one point he said ' i dont wanna have it done i am happy like this' awwww. but i chatted with him and said he would be safer and be able do do more things with replaced, he agrees but i totally understand his concerns.

Interesting about Lin, Paul. Glad to hear she is all fitted for the plate, a scary time too tho. Big hugs for Lin xx. I call Chris Iggle Piggle, a character from a kids tv show cos they have the same shape head at the mo..chuckles, he thinks that is funny. i also noticed when he is dehydrated , the dip in his head is way more prominent so i try to encourage him to drink more.

Well its all a waiting game..was told this from the start smiles. thank you again for your replies and Win i dont know what a shunt is, only heard that in a train yard setting...chuckles. hugs and love to you all. My thoughts are with you both xx Have a great week xx

Posted

hi alison

the op is just cut the skin screw the flap or plate in situ the skull does not have any pain as its bone now we all know that you watch in the night garden signs of a misspent youth he he i wish chris and yourself well take care

Posted

oh right scoob, did you have an op to replace the skull or are you waiting to hear about it?

Chris's dent is about 3 inches high 6 inches long it does look quite strange, i am used to it now, but some days its very prominent others its less.

After he had a clip fitted, he began to get worse so it was performed to purely save his life and release pressure.

I think when chris has had it delt with he will be able to move forward even more, its kind of stopping things right now, and i tell him its still early early days in his recovery.

Posted (edited)

As far as I know they are leaving it as is. I've never been told anythin bout it I've just had my six month scan so I guess I'll b told more when I go see specialist. But my dent looks different thru the day too. All I know is I'm here an thats all that matters

Edited by Scoobs

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...