kpaggett Posted November 6, 2012 Share Posted November 6, 2012 Anyone have any suggestions for really weak feeling legs? The FEELING. I can do challenging yoga poses and hold them...so I am not actually weak, but I feel weak like I'm going to collapse and it gets progressively worse as the day wears on until bed when I just flop down. Any ideas? ~Kris Quote Link to comment Share on other sites More sharing options...
Winb143 Posted November 6, 2012 Share Posted November 6, 2012 Kris, Try doing alphabet with feet so A would be / then \ then across for centre - and so on xx good luck. now got anything for groin pain where OT cracked my legs apart by pushing down on them with all her weight Helpppppppp lol ..no serious !! I can hardly move. Love WinB143 xx Quote Link to comment Share on other sites More sharing options...
amexdm Posted November 6, 2012 Share Posted November 6, 2012 Kris, My legs are weak all the time. Sometimes they hurt quite a bit too. I have no idea why. I assume because of fatigue. My fatigue is very strong. I did ask two doctors and they didnt seem to have a clue. A GP and a neurlogist. My GP thought that since the SAH my brain may be sending incorrect signals to my legs and cause pain or weakness. When you get tired, they say the legs are the first thing to go. Unfortunately I have accepted it as a part of my life as they hurt every day and don't know if it will get better. If anyone else has any ideas, please let us know. David Quote Link to comment Share on other sites More sharing options...
Wem Posted November 6, 2012 Share Posted November 6, 2012 Hi, My legs regularly feel 'heavy' Not sure what causes the sensation though it tends to be worse after periods of inactivity, which is quite frequent as I am trying to rest and avoid high fatigue levels. I usually try to walk it off with varying levels of success. I have given up asking for medical advise for symptons such as these, as the responses are nearly always vague and do little to allay my fears. Good to hear I am not alone in living with unexplained sensations. Wem Quote Link to comment Share on other sites More sharing options...
amexdm Posted November 6, 2012 Share Posted November 6, 2012 Ok Kris, Now my legs are heavy and killing me. All this talk. Just kidding Kris. Activity seems to help, as it may be partially restless leg syndrome. Wem- I agree with the medical thing. I mention my legs hurt and they look at me like I'm from Mars or making it up. They seem to not believe me or not have a clue. Mine need to be cut-off today. David Quote Link to comment Share on other sites More sharing options...
Winb143 Posted November 6, 2012 Share Posted November 6, 2012 My shins also feel hurty (Win no such word) achey even !! Keep well and keep legs fit xx Most of All Keep Legs ! WinB143 xxx Quote Link to comment Share on other sites More sharing options...
MaryB Posted November 6, 2012 Share Posted November 6, 2012 Once I got on Cymbalta my leg pain went away. I had bad leg and feet pain PRIOR to SAH with my fibro. Just saying. Quote Link to comment Share on other sites More sharing options...
kpaggett Posted November 10, 2012 Author Share Posted November 10, 2012 Win, I've been trying your / \ exercises and the \ / won't do anything for me since I'm so open in my hips, but the /\ ones are good. A thing I've been trying is wearing my old gate belt around my hips for some time each day. It feels very supportive and steady, but it makes me a little dizzier. How strange. I had my husband try it and he said it made him feel weird in the head too. Anyway, I'll report after about a week or so. Sorry David to make you feel worse! I keep thinking, 'No pain, no gain' so maybe our legs will get better! ~Kris Quote Link to comment Share on other sites More sharing options...
Winb143 Posted November 11, 2012 Share Posted November 11, 2012 Good Luck Kris, My leg alphabet things were to get me walkng as my legs were totally weakened after a year of no use. I used to walk with my legs closed like a shuffle lol. Once again Good luck keep going xx Love WinB143 xx Quote Link to comment Share on other sites More sharing options...
AnnieT Posted December 4, 2012 Share Posted December 4, 2012 Hey Kris Not sure if this is the same thing as you get, but I often get very twitchy legs that just won't settle or relax. They almost move of their own accord! This is usually in the evening at the end of the day before I go to bed and so I equate it with tiredness. It's so annoying that I have to get up and walk around because otherwise I wriggle and fidget. It always goes eventually. Not sure if it's a nerve thing or blood flow? Wierd... I guess building up your muscles would be a good place to start - squats with weights and stretches etc - to strengthen your legs? Annie Quote Link to comment Share on other sites More sharing options...
kpaggett Posted December 6, 2012 Author Share Posted December 6, 2012 OK, I've determined that it is from use...only it hits later after the intense using is over as you still have to use your legs throughout the day (like after a work out, but later on that day). I surmise that to our neurons we are doing high kicks all day, so the neurons actually fatigue instead of the 'Normal' way of muscle fatigue after a hard work out. I am able to work out fine, but I pay for it not muscularly, but neuronally. I remember doing this weird experiment as a undergrad in biology that involved muscle V. nerve. The muscle tired first which saves the nerve from ever fatiguing, but when I continued stimulating the nerve over and over, it finally fatigued and fatigued so rapidly and totally...not being able to produce the signal to even cause a little twitch in the muscle. I find that this makes me type slower too as my neurons are slamming the keys the whole time. I can't sense this when I am typing, but if I try and slam them...it feels exactly the same. Or if I try typing the way I used to before SAH, I don't depress some of the keys fully. My poor neurons, doing so much these days. I found out from a sleep specialist that restless legs/unwanted leg movements at night are common for SAH. I had these at first. My legs would fly up in bed even as I couldn't consciously move them at the time. What a strange thing. I was given Seroquel for it at the time. It did help me sleep, but I had some other side effects that bothered me so I stopped. Any other suggestions would be great. Thanks for all so far! ~Kris Quote Link to comment Share on other sites More sharing options...
donna79 Posted December 8, 2012 Share Posted December 8, 2012 Kris, First time i have seen your post so sorry for late reply x x I do get this x x sometimes like the feeling that when i am sat down my legs feel to weak to walk again x x really strange x I know this sounds strange but its like i have to tell myself that I can walk and that I WILL NOT collapse x x its a horrible feeling and sometimes worse x x its like my brain is saying one thing but my legs another x x x its so hard and even 4 years on I find things hard x x I get so frustrated with myself for feeling like this and feel i should be over this by now x x x I am my own worse enermy x lots love donna xxxxx Quote Link to comment Share on other sites More sharing options...
kpaggett Posted December 10, 2012 Author Share Posted December 10, 2012 Donna, We are sisters in this! The feeling of collapse is so strong after I've been sitting in the evening and get up to go to bed. For a while, I couldn't do anything downstairs because it was so hard to make the trek up to bed. I've never actually collapsed either, but I feel like I'm going to at any moment. I used to go for long walks and now it is so hard to do...but I do it wondering if it will ever get better or if there is a pill that can get rid of this awful feeling. Frustrating! ~Kris Quote Link to comment Share on other sites More sharing options...
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