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Everything posted by donna79
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Love and prayers sent your way x x x x
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April, I cannot say how long it is until you can fly, Like Penny has said but what I do know is it took me 5 years to get my nerves under control before I flew again.... When I did I loved it x x Think I felt better than others hehe.... My ears were fine and my HEAD lol which for some reason I thought would explode from pressure ( mind the expression) .. But please speak to the doctor on Friday, Each one of us are different x x x ALL special but different hehe Lots Love Donna xxxxxxx
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Hi Glynn, Welcome to the family x x x look forward to hear more from you x x oh and fellow Nottingham here x x I live in moorgreen near Eastwood x x donna xxxxx
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Hi Leanne, I would say it is normal to want to be on your own x x its hard not not to shut yourself away BUT for you you need to get out and about even if only round the block then back home x x x fresh air was my miracle cure and still nearly 6 years down the line it helps me loads x x x Like Tina I also had counseling x3 times and it helped me loads to talk to others who do not know you is a blessing x x I used to feel I was always putting on family x x x I lost all my so called friends and must admit I do still struggle with trust due to friends abandoning me when I needed them x x x at BTG they are an amazing family and without them I would be lost x x we are all here to talk and help and understand each other x x x Love and HUgs to you Donna xxxxx
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Hi, I don't read to much into different types of sah strokes but I know there are many..........I worry to much so the least I know the better hehe that's what my doctor says x x your hubby sounds like he is doing well ....small steps and one at a time x x recovery is/can be a long road x x I know having my hubby by my side and all of Btg has been my greatest help to where I am today x x x sending you lots of hugs and positive vibes x x x love Donna x
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Susan - New member - Don't know what to expect
donna79 replied to SMS2503's topic in Introduce Yourself
Hi Susan welcome to the family x x x everyone's recovery is different but you always find someone who can help you here x x x any questions please ask x x x look forward to hearing more from you love donna xxxxx -
Hi Amy, i am 5 year post sah and have no support apart from on here by all these fab people x x when I left hospital I was told to just get on with my life and that was it x x leading me to panic attacks and depression by the unknown and still am at that stage x x i think more support when leaving hospital is very important x x I even offered to go to my hospital to speak to other survivors but they said no x x x i really hope you manage to find further support for sah survivors x x love donna xxxxxx
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Hi marg, i am nearly 5 years in after my sah and have problems with my ears x x x crackling and funny noises x x x but docs say they are fine x x i am a massive sufferer for panic attacks x x x they are less now but I still get them x x I like Karen still suffer with anxiety and meds do help but at the moment I am going through a rough time with dizziness and nausea and have been referred to a councillor for support this will be my 3rd time x x x if there is anything I need to ask I do x x my doctors and on here there is always someone who can calm me down x x x if you have questions please ask x x x love donna xxxxxx
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Thank you all, I do listen to all your advice x x i have seen a consultant for sleep problems and the tests have come back fine x. So another thing ruled out x x i am due to see doctor on Friday to discuss results and I will mention my ears Sami because they do cause me problems x x i have a virus at the moment so not helping me at all x x on antibiotics so making me feel sick x x I keep pushing myself its hard at times and I think it is this that gets me down x x get fed up of feeling like it x x x but thank you so much guys for your advice x x x you are all very special to me x x x love donna
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Danny welcome to the family x i look forward to hearing more from you x x x zany questions please ask x we are all here to help x x donna
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Thank you guys I am overwhelmed with the advice and help x x I am normally a bubbly person and used to be the life of the party x x I don't know if this dizziness is something I have to live with or not x x I am seeing a sleep consultant on Thursday has hey feel it could be related to that so will see if any outcome and will keep you all updated x x this virus I have at he moment is playing havoc on my head at the moment x x x I should be working tomorrow so I think. Am going to try and push myself and see how I go after 3 days on sofa x x coughing and ear ache x x I really aim to go abroad this year and when I have had m MRI and results I am going to book x x my biggest fear that I will feel worse with my dizziness and be sick and panic x x x x but I want to take my 6 year old on a plane and watch him in the pool x x x whos flown at all and how long was flight x x x thanks again donna Keith I don't seem to be able to find the info you sent me last time x x do u have more copies ???
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Happy 1st anni. Versary x x hope your feeling better very soon x x
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Hello all I seem to be on a negative spiral at the moment and I have been referred back for some councilling (this will be my third time) I am 5 years since sah in April and every day still is a task for me x x I have headaches, dizzyness everyday and cry alot I spend every other week at the doctors with the above and normally end up crying in surgery x x I have tried every med and they put it all down to ANXIETY (which yes I do suffer alot from) but mostly brought on by the above feelings x x Does anyone else suffer with these and the fear of it being something going off in my head x x I am due my MRI in April and even though I hate them (clostraphobic) ? spelling I keep telling myself that if I get the all clear from this then I WILL go abroad and live my life I am fed up with everyday being a chore and think my family have had enough to x x I have no close friends to talk to and close family have their own personnel issues x x If there is anyone out there struggling please feel free to message me x x I really dont think we are alone x x I am also poorly at the moment with a virus so my whole head is hurting x x x ONE DAY I WILL WAKE UP AND BE OK X X Sorry to be on a downer x x no one else to talk to x x x lots love donna xxxxx
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Further Coiling Required and Absolutely Terrified
donna79 replied to Fern's topic in Subarachnoid Haemorrhage Discussion
Hello Fern, I am awaiting my scan for april this year and am scared they will find something because i had a remenant on my aneurysm x x So I understand a bit x x x All I can say is like you x x x I wouldn't be able to live with the fact that it could burst at anytime (i am a massive worrier) and like you I would opt for treatment x x x I search the web many times to try and find answers of why and curse but what I have found is we are all different and so are all cases x x x I am sure that there are people on here that have gone through what you are x x x Big hugs to you hun and stay positive x x lots luv donna we are all here for each other x x -
My legs feeling weak all the time?
donna79 replied to kpaggett's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Kris, First time i have seen your post so sorry for late reply x x I do get this x x sometimes like the feeling that when i am sat down my legs feel to weak to walk again x x really strange x I know this sounds strange but its like i have to tell myself that I can walk and that I WILL NOT collapse x x its a horrible feeling and sometimes worse x x its like my brain is saying one thing but my legs another x x x its so hard and even 4 years on I find things hard x x I get so frustrated with myself for feeling like this and feel i should be over this by now x x x I am my own worse enermy x lots love donna xxxxx -
Hello all, Not been on for ages, back and forth to the doctors to try and sort out my dizzyness/spinning head. I am walking into things and getting headaches now and sooooooooooooooo tired all the time x x which adds to my emotional state and I hate putting negative comments in here...... I am coming upto 5 years and just feel like i have come to a stand still x x I just feel rubbish all the time and have to force myself everyday x I get so angry with myself has i should be grateful I am alive.. I force myself to do things and then whoosh feeling in my head and I have a panic attack x x I carry on with what I am doing but finding I am not enjoying anything anymore......its just hard work x x I am so grateful to be alive x x I have just lost a friend in a accident in Thailand and I know every second of life is precious x x I just feel I cant live the life I want because of how my head feels x x feeling dizzy and sick all the time and plays havoc with my vision (had eyes tested and they are ok) x x I have every med and none work so doc says its something I may need to live with CHEERS DOC I am being ref to a sleep specialist to see if can help at all because I am always tired x x I am sorry to go on AGAIN just feel alone and fed up 5 years nearly and still not been abroad because of my head spinning x x Just looking for any advice ? lots love donna xxxxxx
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Nottingham SAH support group
donna79 replied to VanessaW's topic in Subarachnoid Haemorrhage Discussion
Hello Vanessa, Like Sami said I did go to the support group at nottingham when I had my sah in 2008. I stopped going because I dont drive and found it difficult to get and look after my 2 year old (at the time) and my husband also used to work thursday night x x However he now tends to have Thursdays nights off. It used to be every other thursday so must of changed x x I have Elva's number so may drop her a call and see if she still runs it x x I am going to go on the 4th and will try and find out more x x do you know what time and where abouts the meet is ?? Look forward to meeting you x x donna xxxxxx -
Hi Stephen, Glad you found us x x we ALL understand and any questions just ask x x I was 28 when I had my sah 4 years ago and didn't return to work for 7 months, not just trying to deal with dizzyness and headaches but also the coping with what I had gone through.... Take your time and listen to your body (its always right) I still don't listen x x Donna xxxxxx
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Jess, Happy 10th ANNI - VERSARY x x x x x you are an amazing person who has helped me through some rough times and I would like to say now a HUGE thank you x x x x x and I am sure I will have many more questions for you in the future x x x lots love and a massive hug from ME XX
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Bev. I do get these feelings 4 years on with the added effect of dizzyness x x x (which scares me its all happening again) I go to the doctors because I am that scared about the sensations but they dont seem to have a clue and give me meds x x it happens about once a month x x I was told it could be virtigo x x speak to the docs hun x x I am there monthly hehe x x lots love donna xxxxxx PS .... When I worry I do feel worse though x x
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Headaches help? and depression
donna79 replied to Shawcar's topic in Subarachnoid Haemorrhage Discussion
Shellie, 4 weeks is very very soon x x BUT I remember it well x x all the symptoms you had and panic attacks x x x causing my depression x x its hard because you want answers all the time but no ones there (BUT WE ARE) My Doctor said to me she had never dealt with a SAH patient before so it was new to both of us x x :roll: so I had no answers xx All my answers I find here and support x x they are my family and I owe everyone my life x x x At 4 weeks I was still to nervous to do exercise and still do sometimes at 4 years on x x Listen to your body and what it is telling you x x x My pains got easier and I now deal with them better x x x I think the worry of it happening again is always going to be with us but for myself its not something I think of daily anymore x x x x Hope this helps a bit like Karen said everyone's recovery is different x x x just take your time x x here any time you fancy a chat x x inbox me also x x lots love donna xxxxx -
Hi Shellie, Welcome and look forward to hearing more from you x love donna xxxxx
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Pregnancy following SAH
donna79 replied to Patsy Robertson's topic in Subarachnoid Haemorrhage Discussion
Patsy, I am 33 and have a boy who is 6 x x I suffered a SAH 4 years ago x x x x all the joy and smiles me son gives me makes me want another (oh and the fact that he has asked me LOADS can we have a baby i want a brother or sister) hehe My way of thinking is x x x whatever will be will be x x if i get pregnant then it is meant to be and I will deal with issues on the way x x I know fatigue is going to be a BIG issue for me because it was with Jack x x x all I wanted to do then was sleep x x x Things happen for a reason hun and we only get one life x x and the love yolu have/get from your child is amazing x x x I am at the moment trying and even though I am VERY nervous I know that people on here will help me through x x x Everyone is different hun BUT we are survivours (Second Chances) x x x And also last time I had a C section and I would again x x not the best but ouchhhhhhh with labour too x x x I am a wimp x x LIN - so excited for you x x x hope all goes well x x x lots love donna xxxxx -
Vick.Hobs, YES I totally understand x x x I lost my friends x x one moved away x x x and my other one was being so two faced behind my back and then had the cheek to say to me "I can't believe you fell asleep when I visited you in hospital x x x bearing in mind I had only just come out of ICU x x Unfortunatly not having the confidence now I don't have any close friends x x x Just my sister is all I have x x and friends I have made on here who I know are always there for me x x x x x x All I can say is it is such a shame you live along long long way away otherwise we could of been friends who understood x x x But who needs countries to stop that we are all friends on here and I am here ANY time you need to talk x x x lots love and hugs to you my FRIEND love donna xxxxx
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