bogbrush

Hi Debbie Not everyone that comes on here uses the chat room, it can be a bit sporadic at times, but it is there for people that want to use it. I don't know where you got the idea that you are "not supposed to say about other internet stuff" I suspect that someone has been giving you duff information. Glad that you are finding the site helpful. Regards Keith

In an attempt to cut down on the cigs, some one told me to only smoke after meals. I'm now on 20 meals a day Regards Keith

Hi Kim and welcome Thanks for sharing your story and so sorry that you lost your Dad to the same thing. Glad to hear you've made a good recovery. Regards Keith

Hi John I, or should I say my wife was given that excellent booklet whilst I was in hospital as Lesley Foulkes was one of the nurses involved in my care. I did try to read some of it whilst I was in hospital, but it was swiftly confiscated and given back to my wife I found this and was amazed at the conclusions: Patients surviving subarachnoid haemorrhage without neurological symptoms have a good prognosis and should be encouraged to return to a normal lifestyle within about three months. http://www.pubmedcentral.nih.gov/articl ... id=1837314 The full text of the article can be read by clicking on the pdf link Regards Keith

Something definitely needs to be done, but where do we start? Let's start with GP's I've been doing some rough calculations on SAH in my area - Borough of Basingstoke and Deane - and from what I can establish there are around 13 cases per year for a population of 152,000. That's around 1 per month. There are aproximately 90 GPs in the area so assuming even distribution, each GP will come across a SAH patient once every 7 years or to put it another way around 4 or 5 in their entire career. This bears out something I read quoting a similar figure. So, the problem from a GP point of view seems to be one of education. It's not something they regularly come across, so have little or no experience of recovery or aftercare. My own GP has been quite good, but I'm thinking of writing a letter to my GP practice manager in an attempt to highlight the situation and try to find out if my figures are anywhere near accurate. I will post here anything I write. Like you Scott, I was treated at the Wessex Neurological Centre and have a copy of their excellent guide written by one of their SAH support nurses, Lesley Foulkes. It is available from Amazon, price £2 http://www.amazon.co.uk/Subarachnoid-Ha ... 231&sr=8-7 Any help I can give pulling information together etc, I would be happy to do so. Regards Keith

Hi Debbie Welcome to behindthegray. You are amongst people here who understand what you are going through. Looking forward to hearing more of your story when you feel up to it. Regards Keith

Hi I found this interesting article about memory problems on the Brain and Spine Foundation Website: http://www.brainandspine.org.uk/helplin ... index.html Regards Keith

Tragic indeed. A very sad case, but it all comes down to money. Hospitals staffed by junior doctors with limited experience working long hours and encouraged to carry on alone. Raising awareness will go some way to addressing the problem, but unless more experienced help is at hand, and staff are encouraged to seek that help, I fear that this will continue to happen. I'm not blaming junior doctors, they do the very best that they can with limited resources, but help should be made available and scans in cases like this one should be a priority. Regards Keith

Hi Barbara and welcome to behindthegray. I can imagine that not knowing why it happened must be very hard to deal with. There is a topic in the Subarachnoid Haemorrhage Discussion forum that you may find helpful called "Non Aneurysm SAH". Click on the link below. viewtopic.php?f=1&t=76 Regards Keith

Hi Terry Welcome to behindthegray. Everyone here is so supportive. Regards Keith

Hi Caroline Well done getting back to work. It really does give you a sense of normality and helps to re-build confidence. Take it easy though ... or you will pay. Regards Keith

Hi lilnan Welcome to behindthegray. A great site with lots of support. Regards Keith

Hi Shelly I also had an aneurysm rupture in the left PICA (posterior inferior cerebellar artery) and the artery was sacrificed (sealed off by coiling) the day after rupture. That artery is one of the six (3 left, 3 right) that feed the cerebellum, which controls balance, coordination and fine motor control. Both my NS and my GP were concerned about balance and coordination, but luckily I have had no issues in that department apart from the odd spell of dizziness. Regards Keith

Google Is Your Friend Regards Keith

Laura, GIYF Regards Keith

RTFM = Read the f***** manual. Regards Keith

When I can't get something to work, I have to go and fish the manual out of the dustbin, which is where I threw it when I opened the box If all else fails ... RTFM. Regards Keith

Hi Derek Welcome to behindthegray. Look forward to hearing more of your story. Regards Keith

Hi Tina I think a few of us have had scares like that, me included. Hope everything turns out OK for Dee. Will be thinking of you both. Regards Keith

Hi Helen and welcome to behindthegray. Look forward to hearing more of your story. Regards Keith

Hi Sorry, what were you saying? Like most here, my short term memory can be poor, but only at home. Like Myra, I might forget if I've taken my medication, forget if I've put sweetners in my tea, forget why I've just opened the fridge, things like that. At work, I often have to keep many details in my head, often quite technical ones, but I don't seem to have any trouble doing so. Regards Keith

Hi Zolabud Welcome to behindthegray and glad that you feel at home already Interesting story. You certainly had a hard time which can't have helped with your recovery. The misdiagnosis is all too common. I had all the tests done (except the essential CT scan) and although I was not misdiagnosed exactly, the diagnosis was mismanaged with more weight on the migraine instead of the SAH. They got there in the end though, I'm pleased to say. Regards Keith

Hi Richard and welcome to behindthegray. Look forward to hearing more from you. Regards Keith

Sharon, that was beautiful. You just made a big man cry It could have been written for my Dad. Regards Keith

Sorry to hear Dee is unwell when you are both dealing with the aftermath of his SAH. Best wishes to you both Keith