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Xmartz

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Xmartz last won the day on August 2 2015

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About Xmartz

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  • Birthday 11/11/1968

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  1. I don't have pain, but my vision was greatly affected. I need trifocals now and for some time had left sided neglect...my vision was ok, but my brain wasn't recognizing things on the left peripheral. I went through 4-5 months of intense vision therapy. It was harder than occupational, speech and physical therapy combined! It helped a lot though and I'm finally back to driving, although it took 3 years! God bless! Mandie
  2. Has anyone's healthcare team explained how this type of bleed is different from an aneurysm? I mean, Non-Aneurysm SAH or Perimesencephalic SAH...what exactly is that? What are the chances of it happening again? my docs seemed puzzled as to the cause altogether. Frustrating
  3. I definitely still have bouts of vertigo 4 years out. Looking up and down affect me the most!
  4. I could've wrote that post myself, and I am 4 years out! Esp. Telling my family members the same thing over and over and forgetting what I was going for and repeating it to myself! Thanks for sharing! I hope you continue to improve! I was an EMT, but can't multi task anymore; an essential aspect of the job!
  5. Hi folks! First I apologize for being MIA for awhile. I've been trying to find a PT job since my brain can't function in my previous career area. I am wondering if anyone has a family that has figured out how to strike a balance between giving you a break because you have brain problems and treating you like a child. i forget things all day and my husband and teenagers still get extremely frustrated with me. But when I ask them not to get so frustrated they remind me that I don't want to be treated like a child. How do I help them understand?
  6. So true about everyone looking at you like you should be back to your normal just weeks after such an event! Please trust your instincts though. Just three months after my SAH I had a subdue all bleed. Although I had a headache, something about that one just seemed off and I'm so glad I went. Luckily this one was MUCH smaller than my SAH was. Please keep us updated! Mandie
  7. I have continued to have anger and aggression issues three and a half years post SAH. I get to the point where I throw things sometimes and really yell sometimes over small things. When it happens it brings up thoughts of my disability and just makes me more angry. Is this an issue that anyone else has had this far out? thank you so much
  8. Hi, looking for advice on how to handle that voice in my head that keeps telling me how stupid I am and will always be every time I make a mistake, lose something or just get frustrated because I can't do little things. Especially when family is hard on me because they just can't get it thank you!
  9. Thank you so much for your positive words of support. It feels great to be able to talk to others to totally understand what you're going through
  10. Hi Friends, Just need a bit of some uplifting words I think. I had been doing so well and for some reason this week hit like a wall and I can't seem to get through it without crying. I think I grieve sometimes just over when I have lost, half of my brain, any kind of job, which is pretty much any kind of social activity most of the time, my driving. I know I'm not supposed to describe myself this way but I just feel like such an idiot half of the time or more. It sucks when it takes three hours to make dinner because I miss placed something every five minutes and it takes me 15 more minutes to find it. This was not me before, I was so much different. I was so more put together. Don't get me wrong, I am very grateful to be A miracle after a 6 cm bleedand to be here right now, and people love to remind you ,"well, you are still here!" But they don't understand that being here still is such a struggle from day to day. I apologize for being negative, I am not usually a Why me sort of person, but for some reason I seem to be stuck in a rut in the past week or so and I just can't seem to get passed it. Maybe it is the fact that I am alone with my thoughts and feelings too much? I used to have days like these, but not weeks. I am just having such a hard time holding it together. I feel like I could cry continuously for some reason. It's like I am so emotionally hurt that my heart actually aches physically. Does anyone else have weeks like this?
  11. Vermont girl, I struggled for six months after my bleed with severe headaches only to find out that the narcotics I was taking were giving me what they call"rebound headaches". The drug helps at first but then I would get a worse headache Later in the day. I cut back on the narcotics and my doc gave me a combo of Benadryl and a nausea med,(either compazine or phenergran). Basically makes me very tired and I sleep off the bad headache. This worked out much better for me. Good luck finding your solution! prayers! Mandie
  12. If you don't mind, could you share with us what your Neuro docs say about this? Thank you!
  13. You may want to sit down and look at your finances/budget and see if there may be a way for you to cut back to working part time. I don't know if you're from the U S but I was put on social security disability to help supplement our income. l can't for the life of me understand why your Neuro docs would think you could go back to your normal routine so fast! As said above, CHECKING OUT IS NOT AN OPTION! We have all been given a second chance and there is a reason for us to be here or the Lord wouldn't have helped us thus far. Your family and friends need you! You can always find someone to talk to. I don't know if we can send private messages on this forum but I'd be glad to be here for you any time you need an ear! Hang in there and don't give up on those patient advocates. Let your family help. They need to know that you are still in the early stages of recovery as well and that you need help. Hugs?And prayers ? Mandie
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