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Winb143

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Posts posted by Winb143

  1. You just keep as happy as you can Pat, and this is a good place to give vent to your feelings

     

    We have all been through it so at least we know how we are feeling and a trouble shared is a trouble halved.

     

    Good luck and chin up and I'll keep my 2 up.  I had 3 but been on a diet ha xx

     

    If you see a chubby old dear with a stupid grin on her face and singing songs  say "Hi Win" ha ha xxxxx

     

    • Like 1
  2. Hi Pat,

     

    I agree with Skippy as I am Win the singer of happy songs lol xx

     

    When I had my SAH/Bleed I was told "No Stress"  now we all know life is filled with stress and worries, so I wondered how to alleviate that. 

     

    I found singing my brothers songs stopped me getting too uptight,  but that is me only and for others it may differ .

    I also found a smile helped as I read somewhere when you truly smile sadness stops ....so I'll try anything !! 

     

    See Doc if really worried, as it is always best to see Doc as he/she can put mind at ease.

     

    Good luck Pat and welcome to BTG hope you feel better soon and maybe one day see you in Green room xx

     

    Win xxxxxxxxxxx  (Who has had many strange heads since bleed)

     

     

    • Like 2
  3. Hi Carly, 

     

    It is natural to stress, but it isn't good for us xx 

     

    I was so glad I remember nothing after having a shunt put in to stop hydrocephalus.  

     

    As Clare and Tina have said,  Let us know when you are having it done,  and we will be waiting for you to tell us how you got on xxxxx

     

    Chin up if possible  

     

    Best wishes

    Win xxxxx 

    • Like 1
  4. Mandie I awoke nearly a year after my coiling  and my head itched like mad, fleas I thought lol.

     

    I rinsed my hair in warm salt water (I say I did but my Daughter did) as  my Mum always swore by it and it seemed to help.

    I had coiling and shunt not a Craniotomy  but it really itched bad  and salt water seemed to clean around holes/dent and scars in head.

     

    Do not do it,  but what do you have to lose besides some water and salt lol ... Good luck and hope head stops itching xx

     

    Got me scratching head xxx 

    Love

    Win xx

    • Like 1
  5. My Surgeon told me not to stress as it is bad for us but we all get it !! 

     

    I handle it by singing happy songs as it helps me, but not hubby  xx 

     

    I do get bad days but the good outweigh the bad and I keep away from family who keep telling me there problems.  

    I say "I cannot have sob stories Sis as I need happiness"  Some Sisters understand this,  some do not..

     

    Surround yourself  with times when you laughed until you cried tears of happiness xx Keep a smile at hand.  Most of all look after you while getting better.  Yes be Selfish if need be xx

    Smiling helps and other little methods to keep stress at bay. 

    Good luck 

    Win xxxxxxxx

    • Like 1
  6. Hi Elaine,

     

    What others have already put,  as I have a shunt in but before the shunt I was asleep and remember nothing.

     

    OT's were trying to make me do exercises and I just cried when they came near me as my hydrocephalus was bad !! 

     

    When you get out of bed do everything slower than before bleed, I was told to sit up then wait, then swing legs out of bed and keep still. 

    I do not feel as giddy when I do this,  but when I jump out of bed I do go giddy still we have to take it slower after a bleed.

     

    Now you keep getting better and have more good days  xxxx

     

    Love

    Win xxxx  (I put jump out of bed but me and jump do not go ha ha) xxxx

     

     

  7. Make the most of good Days  Mandie xx Lovely aren't they lol xx

     

    You have been through a lot and can come out of it  knowing we are survivors ..Well Done You xxx I still draw matchstick style lol  xxxx

     

    Palhuc,

    I think I told you, I was told I'd never walk again but I can walk 200 yards on a good day not long but it is getting better, and tell hubby to keep his chin up and you also xx

    I had an SAH4  and do not remember anything until shunt was in xx

     

    Pleased for you Mandie   hope your days keep getting better and when they aren't sing happy songs  xxxx  my answer to all ills

     

    Be well Both

     

    Winb143 xxxx

     

    • Like 1
  8. Yoyo Hi,

     

    My Daughter found this site and it helped her as she didn't like asking her Dad all the time ie "Dad will Mum get better".  He'd say "of course but when" ? 

     

    I came on here and was not alone anymore, there was others who laughed and joked about their bleeds etc.  Made me feel like "Oh there is life after an SAH"

     

    It is hard for our loved ones and I cry or want to shout at hubby or Daughter, but it isn't their fault or ours this happened.  It happened and I try not to stress and I sing instead.

     

    You will make it as you have survived xx  Now take hubby out for a coffee weekend and keep your happiest face on if possible.  Things do get better as time goes on ! 

     

    We leave the hospital our short term memory shot, and we are told nothing about it and if I was told I'd forget it. 

    Now wipe those tears away and try a smile instead when possible xx  Good luck xxxx

    • Like 2
  9. Jan,

     

    Weird isn't it  how we know !!!

     

    I used to feel very heavy headed  in early days but like everything we get used to living with it, she says hearing thunder in background arghhh xx

     

    Be well and thanks for the forecast  ha  xx

     

    Love

     

    Win xxxx

     

     

     

    • Like 3
  10. Hello Ash,

     

    I was similar to Daffs and your Dad.  Grade 4 but I do not remember anything.  Asked family if I was sick and they said "No"

    My family are people of few words lol xx

     

    Wishing your Dad well and keep an eye on sickness or see Doc xxx 

     

    Good luck to you and Dad

     

    Win xxxx

     

     

  11. Wayne,

     

    Welcome to BTG alias Behind the Grey.

     

    Do not know what to say about your personal life !!  Sad though.

     

    All I know is that after an SAH/Bleed I was told we do not need stress in our lives by my Surgeon.

     

    I wish you well on your road to recovery,  and keep well.

     

    Regards

    Win 

     

     

  12. I agree with Louise Boxa, if in doubt sort it out..  Stress is bad for us so we must relax.  When poss !!

     

    I got a lot of cramps in my feet mainly, got looked at weirdly when stamped my foot when it got caught and toes crossed  arghhhh !!

     

    I heard from someone Tonic water helped  with cramps,  so I got myself a 6 pack of small bottles, as I thought nothing ventured etc.  might have been mind over matter !!

     

    Must admit I do not get them as much, could be my brain fooling me though as I put mine through a lot.

     

    Good luck and keep recovering xx

     

    Win xxxxx

     

     

    • Like 1
  13. Hi Boom,

     

    Not nice to have are they small or large  xx mess our lives up.

    I was out for quite a while after my Bleed and Hydrocephalus kept me there along with other problems.

     

    You will get better but it is a long haul. 

     

    I say to my husband did I tell you that and he goes "yes Win twice "  so if you see a man with a black eye that'll be my hubby lol

    Short term memory loss is usual, now ask me what happened 23 years ago I am okay but anything short term is a blur.

     

    You are recovering and it does get better, I couldn't remember my address so hubby wrote it on the wall and would cover it every morning and say "Where do we live".

     

    I sing songs to remember,  it helps, so try it when you feel up to singing but only happy songs  xxxx

     

    Keep Well Boom

     

    Winb143 xxxx

     

     

     

    • Like 2
  14. Hi Vermont Girl,

    When I was in hospital for SAH,  they found out I was allergic to codeine, so I take paracetamol.

     

    Some of us on here get  what I call barometer heads, when there is a storm brewing  we get thick heads and feel the pressure build up but we are not medical so see Doc and put your mind at ease. 

     

    My surgeon told me stress is bad for us so I'll pass it on to you xx 

     

    You take care and think happy thoughts as we are Survivors, wishing you all the best.

     

    Good luck and remember happy thoughts only when possible XX

     

    Regards

    Winb143

     

    • Like 1
  15. Well written Sarah. xx

     

    And I think I have it bad as feeling tired, it is good to be a survivor isn't it  and see there are quite a few of us !!

     

    I find happiness helps me over rough patches and my Parents left me with a load of  happy memories,  I still talk to them when needed lol

     

    I find music helps also but only happy songs  xxx

     

    Keep in touch and perhaps might see you post in the green room soon.

     

    Good luck

     

    Winb143 xxxx

     

    • Like 1
  16. Jan

     

    I just wrote in Green Room about I feel so creamed and am a lazy cough cough.

     

    I do hope you feel better and never let it beat you it nearly beat me, my fingers ache typing and I go to bed and cannot sleep !!

     

    I cannot take a joke at the moment lol, serious not funny.  Feel like my energy has gone and so miserable  ha ha  Wonder if hubby will come in tonight.

     

    I put it down to heat.  We cannot let a rough patch beat us now open them windows and let the neighbours hear, better than getting all hot and bothered xx

     

    Be Well Jan and we will put it down to heat zzzzz sleepy head here signing off

    Win xxxxxxxxxx  Hands Jan a moody smile xxxxx 

  17. Hi Rick,

     

    My surgeon told me not to stress so I sing when worried about anything.

     

    My husband got me a BP Monitor and he tried it on himself to see how it worked,  and his BP was 200 over something so he is on BP pills now.

     

    He blames the worry of me for it.  Bless him.

     

    Keep a check on it Rick and lets hope it goes down, as for the headaches we all got them in the early days.  If worried always see your Doc.

     

    I get a buzzing noise in ears drives me potty but Doc said it is sometimes usual after a bleed ???

     

    Good luck

     

    Win xxxx

     

     

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