Winb143

Jan,

I was like you, I was told what I couldn't do and some days I feel horrid but other days I feel great.

I do not know what to say to you but on down days I try and do what makes me happy, it is hard but I call on all the memories of my happy days.

Sometimes it works others it doesn't so on those days I go and have a nice sleep. 

I do hope you can come out of it as we are told all different things. So be a stubborn mule and say to self, "Huh they don't know me"

Now lets hear you sing and see you smile ...come on you can do it xxxx  There is a song there but I'll sing it when you feel happier xxx

Now early night and remember it is okay to have off days xxxx  Tomorrow or next day might be better now smile xxx

Love ya Jan and do not get so low come on here and talk about it if need be xxx

God bless xxxx

Hi Ian,

You was lucky although it doesn't seem like it, but we deserve a bit of luck xx

Mine was SAH grade 4 followed by lots of problems.

Take it slow and do not rush, no stress is order of the day so if you feel a little stressed try singing happy songs as it helps me but each to there own. 

I was worried about having another bleed, but found this site and they were laughing and happy after what happened.  So there is a life after SAH.

Good luck and keep away from others problems, you don't need them xxxx

Win xx alias selfish lol

Fine Greg and you xxxx  Remember to never over do it xxx

Hope all is going well Greg and keep going forward xx

All the best

Win xxxxxxx Thanks for link  xxxx

So sorry to hear about Hubby Mel xx and the Stress it is causing you and hubby

Vent away you need to give off steam, we all do xx

You must feel so awful and if I had a magic wand I'd wave it, so instead I'll say a prayer to my Mum tonight.  When people are down I always turn to my Mum who died in 1976.

I'll say 2 prayers for you 1 to Mum and 1 to upstairs.  I wish you all the best Mel xxxxxx Hope hubby gets better  xxxxxx Take care of you as without you Hubby will be lost.

Good luck and keep in touch when down or anytime xxxx  Remember to look after yourself xxxxx

Hi Kathie,

My Daughter told me about Behind the Grey and it has helped me a lot.

Just knowing we are not alone in this is a good feeling, so try not to rush as you will take two steps forward and one back.

I get tired also, but take care of you and try not to stress too much, not good for you !!

I wish you well on recovery and anytime  you feel a bit down or need advice come here as we have all been there, and you are not alone.

Best Days work I did was to come on here, I sometimes leave laughing.  Get weird looks from Dog and Daughter lol xx

Take care and take it slow until you can look back and say "Hey today was a good Day" it will come  xx

All the Best

Winb143 xxxxxx

Missran,

It is always with us, guess we just have to say to ourselves "We will beat this" easier said sometime  !!

But a song and a smile can always help us xx

What happened to us was out of the blue and scared us, but we are still here xx

So keep smiling and singing Happy songs, we do need happiness in our lives after what we have been through xx

Love

Win xxxx  you have a  Good Doc xxxx

 MelMel,

We are here if you need to give vent, as you have it hard what with hubby also.  So I wish you all the best.

Get the worry of clots in legs sorted as you have a lot of stress at the moment. 

On here you do not have to say you are okay when on a downer, have a moan we are entitled to it especially You with hubby ill also.

Hope all goes well for you both xxx

Love

Win xxxx  I'll say have a good weekend, but if you need a moan go ahead xxxx

I do not remember anything after my op Jen,

All I was told what was wrong and I had a bleed, it took BTG to tell me it is a form of stroke lol xx

Sorry I am not much help but whatever happened how are you keeping? Well I hope.

Gonna look up Anoxic now xxxx

Hi Mel,

We know what your going through and this site can help you as you know you are not alone.

I came on here after my Daughter found it while I was in cuckoo land.  I had SAH 4 followed by Ventriculitis, UTI, then Sepsis. a year later I had a shunt put it and it bought me back from my Hydrocephalus head and cuckooland.  

It is scary what has happened to you but you are here and the bad heads will subside.  Give yourself time and take it slower than before.

I cannot jump out of bed as I did before.  I have to swing my legs out still sitting and then get up.  Everything is slower paced after SAH xx

I came on here and saw people laughing and joking which gave me hope and if you have a worry or need to give vent etc.  It all helps

No Stress my surgeon said so I break into song when down but only happy ones  xx

Look for "A letter from your brain "  it tells you what you and brain has been through !!

I will close now as it looks like an essay lol

Keep happy thoughts

Winb143..  I started walking after my Brain injury team said I wouldn't walk xxxx Keep well and smile when possible  

Be well Steve and hope your week goes well.

No rushing just spoil yourself a little, and rest up  (You know it makes Sense !!)

Keep a smile at hand for these days xxxx

We can get over it.  Good luck

Win xx

Hi Steve,

I used to get up with a rush ie too quick and someone on here said" When you get up Win sit for a few seconds or more then swing legs out of bed, and when ready get up slowly.

Best advice anyone gave me, even now I lay in bed on side where shunt is and feel all giddy I turn over.

So remember as Chelle said baby steps and slower in all we do until we are feeling 80%/85% fit. 

Good luck Steve but if worried see Doc to double check and no stress that way.

Feel better soon

Win xxxx

If in doubt see Doc as Sami has said, you might be given a pill kinder to you  and we are not allowed to give advice.

You do not need stress so see Doc and tell him about the pills and ask his advice. 

Come out of surgery with a smile xxxx and perhaps a milder pill xx  I only take paracetamol along with a song  xx

Love

Win xxxx  Hope you get sorted xxxx

Hi Chris/Crispy,

You need to take your time and remember what you have been through.

You will get better as time goes on, I was told I'd never walk again but 200 yards,  and on a bad day  5 steps lol.

We need to cheer ourselves up and remember not to rush things as brain needs to heal firstly and we will get there.

Do not listen to sob stories we do not need to hear them while mending, singing helps me as I came from a Family who loved to sing.

My Surgeon said no stress so I sing when stressed and it disappears, or the room empties and I get peace lol

Take care and keep happy

All the Best

Win xxxx  There is a life after SAH/ Brain Bleed xxx

Steve,

I get moody, we did before we had our bleeds, so even more so now.

We have to think of a happy time in our past or a happy song when on a downer it keeps stress at bay .

I wish you all the best and do not overdo it.

Remain happy when possible as that is the key (Don't tell Steve about row with hubs Win lol) oops you dragged it out of me ha ha

Good luck Steve

Regards

Win xxxx  Keep moving forward and remember SMILE when possible

PJ/Clare,

Glad you are getting help, as it is better than having me type a happy song out for you  !! Off key xx

We are not alone in this, we all have a good day and then the bad day comes, we are here for those bad days xx

I have come on here and felt so sad but upon leaving here I think to myself "You shyster Win" and even now I am smiling.

Now get sorted and please let us know how things go, and remember to keep happy 1 month of not hearing others problems is a must !!

No Stress if possible and I totally concur with Daffs comment lol xxxx  (They never listen ) lol

Keep away from people with problems ie doom and gloomers you need happy in your life xxxx

Good luck on your recovery

Win xxxxxxx

Welcome Kerryn  to BTG,

It is good to know we are not alone  xx

Hope you get better soon and take it easy

All the Best

Win xxxxx

Hi Jenni,

I wish you and hubby all the best,  the others have given you good advice.

I do hope he can cheer up soon, my answer to all ills is to sing and keep doom and gloomers away from his bed.

I had my Sisters singing to me, not that I remember.  Now keep your chin up and get help as Super said xx 

Let us know how he gets on and take care of you also xx

Love

Win xx

When my head feels like a Thunder head/ barometer head, I either sing or go to bed for a rest up. 

My singing  leaves a lot to be desired so my Family prefer I go to bed,  ha xxxx joke !!

I try also to think of days when I have laughed so much and cried with laughter, I think of my Mum and her funny ways and she comes to mind and that starts me off laughing.

We worked together and we had good laughs and she was a smashing woman xx see no tears just a big grin xxxx

I do not like quiet when my ears ring or a thick and foggy head.   I need to get my mind off it.  But each to their own way of coping  xx 

Good luck Cassandra and never give up xxxx 

All the Best, Now sing up  xx

Win xx  

Hi Steve,

Never give up (I am sure I posted you already)  I was told I'd never walk again, well the guy said "What makes you think you will walk again" I thought rude words and thought I'd show him.

Christmas 2010 I walked 4 steps to my hubs to give him his Christmas present.  I was shattered but after hols he went and got me a zimmer frame for around the house.

I walk unaided but stuck at 200 yards on a good day.  I have my dignity back though. Never give up keep trying.  I shower myself also.  Sounds silly things but they are all aims.

You will get there and look back and say "Yeah I did it"  Never give up.  I also have days in chair and I think lazy Win get off butt. 

Keep going you will get there XX

Regards

Win xx  Zimmer frame gone, walking sticks gone, (they got in my way)  Good luck xxxx I had SAH and hydrocephalus with shunt fitted also.

Hi Palhuc

My Daughter felt guilty when she had the flu and couldn't get up to see me but it is tiring for our Family.  I can guess how you must feel.

My Hubby did not trust Hospital to take care of me so they took turns every day for up to Christmas in London Hospital and then I was moved into a hospital nearer Kent (home).

I cannot walk very far but after being told I'd never walk again,  200 yards on a good day isn't too bad xx  So shopping means wheelchair but I can bath myself so I have my dignity back.

I loved food and I was bought Chocs,  to  be honest I got an addiction to them lol, I said to myself "Well Win after what you have been through you deserve a choc" while resting my arms on midriff bulge ha ha xx

This site was my Saviour as I used to think of death and what songs I wanted played at funeral ha.  I came on here and saw a load of people all having a laugh while getting over a brain bleed. 

You and hubby will get there just like me and mine as we argue now so I know I am recovered lol.  Take care you 2 xxxxxx 

Luv

Win xxxx

Hi Matjaz,

Welcome to BTG, there are some on here who have had your type of SAH.

I myself had an SAH.  Just wanted to welcome you to Behind the Grey and others will be along soon to welcome you.

I was told by Neuro Surgeon "No Stress" so will pass it on to you.

Keep happy and try singing as it helps me.  Now keep a smile at hand  xx 

Hi Palhuc,

I kept pulling the tube from my nose out and had to keep going down to X Ray to have it put back, so they left it out.

I am told this by my Daughter as I remembered nil,  until I had shunt put in to get rid of my Hydrocephalus.

I am afraid as I remember zilch for approx. 1 year I cannot say what had happened to me.  Good in a way !!

It was all like a dream and I saw my Parents who are dead !! lol mind plays tricks on you.

Look after yourself Palhuc , see I got your name right lol xxxx 

Now have a good rest as without you hubby would be lost.

Paulhuc Hi xx

You know your hubby and gradually you will see bits of him coming back, see we are not Doctors and we can only give you info on what happened to us.

As I said I had a 4 bleed and once I woke up I was so glad to be alive and I love life.  I am so happy to have had a 2nd chance as a lot do not get it. 

So Cheer your hubby up and take it 1 step at a time so let us know how he gets on with swallow tests, 

My Daughter saw a yoghurt pot at the side of my hospital bed and she said just knowing I'd had a yoghurt made her so pleased.

Wishing you both well xx 

Win  xxx

H Kimberly,

It does get better but we have all had a long haul and we get the good days , which I have started to take for granted but I should treasure them.

All what Tina has said I agree with.

Take it slow and listen to your body and brain xx

Keep well and wishing you all the best

Love

Win xxxx  No stress  xx  my surgeon told me xxx