Winb143

Hi Blue or Coy dog,

This site made me know I was not alone and it helped my Daughter,  while I was in cuckoo land, she had someone to talk to about her worries.

Keep a smile close at hand and any songs  when down start singing them, drives my hubby potty ha ha

Welcome and hope to talk more xxx

Regards

WinB143 xx

Listen to Daffs, Tori.  and do not  give up xx

Because I have always been a moo I was an awkward patient ie they gave me shapes to put in the right holes and I banged them in knowing it didn't fit.

Even my Daughter said "Mum you used to cry when OT's came near you" I just had a feeling they never meant me any good, Hydrocephalus !!  maybe  lol

Then they told my Daughter to grieve for me as I'd never be the same person I was before. My husband didn't agree with them  phew !!!   He knew I was in there somewhere.

Fight for Mum and keep singing to her  xxxxx Never say never and I  hope Mum gets well soon xxxxxxx

Since finding this site in 2010 I have come on leaps and bounds.

Knowing we are not alone is great and I remember chatting to some old members as in GG,  not in age !!  and they could laugh, and that helped me so much.

We are not alone and if it takes good times with bad to get us there.  We are  lucky we survived all what our head went through xx

Keep positive as Greg says  xxxxx

Good to have reminders,  it is like a kick up the bot for us xxxx

I agree with all what Clare says Tori.

As long as you can see improvement, let the hospital worry about tech. details you worry about getting Mum back xx  I remember my daughter playing a game with my hand but she was doing therapy on my hand. 

Also I asked her to give me my bag up and got annoyed at her as I thought I was in a café with her but it was lunch in hospital xxxx  All this I am told by Daughter and we had a good laugh about it.

Take care of you and Mum and keep Mums spirit up xxx You are a good daughter xxxx

I waited for results Weedrea and they just signed me off and if I felt a bit rough to make appointment  via my Doc.

Touch wood xxx  no need as of yet xx Good luck on results

Love

Win xxxxx

We will get there eventually Elaine and it is a long haul.

We get good days and bad days, today was my bad day (misery Win ) lol

But we get more good days than bad the longer we keep going.

Take care and try not to stress  as it is bad for you xx

All the Best

Win xxxxxxxxxxxxx

I do hope all turns out well for Mum and your wedding Tori  xx Bless you. 

Glad Mum is making some improvement ie moving arm

I remember seeing my Daughter in her school uniform walking with her Dad but she was in her 30's when I had my SAH,  guess it was a dream but she looked so sad I run to her and that's  when my shunt kicked in. 

You and your Family take care  and naturally Mum xx  as we'd be lost without our Family xx

Love

Win xxxxx  

Hi Tori,

I had Ventriculitis after drains put in and I remember nothing. 

My hubby insisted that him and my Daughter take it in turns to look after me, I was never left alone  xx

My Sisters used to sing to me also.  This is what I am told as I remember zilch .

I wish your Mum all the best and hope she goes from strength to strength, you have a long haul both you and Mum xxxx

After a year I had a shunt put in as I had Hydrocephalus,  I was told I woke up and sang to nurse who promised me she'd put my cross on !!

I can only tell you what happened to me, but singing old songs helped me xxx and being spoken to, although I couldn't reply.

Keep Mum happy and sing she might not look like she can hear  but I was told I corrected my Sisters on wrong words  xx 

Good luck Tori's Mum xxxxx

I take them because my Doc wants me to lose weight, I would rather not take them.  I shake rattle and roll already.

Does he listen sheesh NO !!

Dropped 2 dress sizes and am an old dear cannot afford to lose more off my face !!  Botty maybe ha ha

Love

Win the Wrinkly

Hi Kris,

I had an SAH4  and I drank, smoked and worked with Hubby so a lot of stress. 

I was very ill after my bleed with other things like Ventriculitis,  Sepsis etc.  People gave up on me but not my Family.

My daughter found this site and I have not looked back since.  

I do keep away from people telling me sad sob stories as I cannot take others problems I try and surround myself with happiness

So just take each day as it comes  and keep happy if  possible, remember back before bleed and fun moments when you laughed until you cried.

Be happy and take it one day at a time, some days are better than others.  We will all get there eventually.  There being a good place xxxx

Good luck

Winb143 xxxx

I used to get itchy head and I always bathed it in salt water, you might say "why salt water"  it is because my Mum swore by it and it helped my scars heal up.

If it continues then see Doc and do not stress yourself out.

It could be part of healing, my head felt like I had fleas  lol it itched so much hence warm salt water rinse. 

Good luck Sairah and keep in touch xxx

Regards

Winb143

Hi V Girl

Do what you feel is okay for you..I went swimming and couldn't keep my legs under water but I swam under the water on bottom of pool and came up fighting for breath !!

I kept at it and it was good for me. 

Do what you feel comfortable in doing xx

Good luck

Win xxxxxx

Hi Rio Rita,

We can be hard work, I knew I was getting better after my SAH when hubby moaned at me !!

He is feeling low at the moment but no need to take it out on you  xx  Sure he doesn't mean it !!

Has he been out for a coffee as I do not remember much but my hubby took me out a lot.  I still ask but not so forward about it anymore  Grrrr lol

Good luck and try getting him out more  xxxxx 

My Dad started having them at 86 and we thought he had the hump !!!  He moaned at his tea didn't taste right and now I know what he went through as I get weird tastes and smells also !!

Good Luck

Winb143 xxxxxx singing helped me but was awful for others lol

Do things at a slower pace Ricky, I was told this  when I first came on here.

I sit up and swing legs to side of bed,  wait then when feel okay then I stand up.  You have to work at a different pace after SAH but you will get there xx

I wish you all the best and remember Slowly does it.  Good luck

WinB143  xx

Aandrea today I had an echo in my ear and my hubs thought it was funny  lol xxx

So I told him again and again, I was like little Miss Echo he soon stopped xxx

As  we were driving I suddenly said "My ears back to normal"  (never normal lol) xxx

All the best 

Win xxxx

Natural to be scared Aandrea, we wouldn't be human if we had no fear.

Some on here had other ops and have come through it okay .. Glad I was in cuckoo land when I had shunt op xx

Try not to stress but you will xxxxx  If you need a song let me know   ha ha xxxx

Good  luck

Win xxxxxxxx

Hi VG ,

I cannot add anymore than all that has been said, but listen to your body and brain xx

On here there is "A letter from you Brain"  It made sense to me xx

Take it slow and easy and listen to your body and brain, I hope all goes well for you xx

Slowly does it at first xx

Good luck on your recovery

Regards

Winb143

Imagine once that needle goes in you'll be pain free, nothing worse that toothache xxx

You know you have to get it done and let Dentist know also  about Head xx

You'll be fine honestly xxxx

Andrea,

I was given doom and gloom outcome for recovery, so see Doc or Hospital and ask them for a list of excercises to do.

I saw OT's when I was in cuckooland and every time I saw them I was told I cried lol xx So I hit a balloon  ?????

They gave up on me but my family never, now there is no quick fix. but there is life after SAH.

Also I was told I'd never walk but 200 yards at present on a good day. 

So never give up and think of happy times and keep away from others problems and any worries just come here and type them down.  A problem shared etc  xx

Good luck and when possible keep your spirits high xx

Now get them ankles turning even if it is just a little  xx Good  luck and this site is a God send xxx

Regards

Win xx

When I was in hospital I had lots of injections for hydrocephalus and my coccyx  bone hurt I call it bum bone !!

Hubby paid out loads on cushions for me and he paid dear.   So he said,  I'd say "ouch my bum still hurts" and eventually he got me a cushion with hole in it for £20.00 it works beautifully ahhh  xx

Lumber punch can damage that.  Now my neck creaks  in fact I am a creaking old dear xx See Doc if Worried about anything as stress is not good for us  xx

You are lucky Topsy because of my Hydrocephalus they gave up on me and gave me a balloon to tap !!

I was awkward lol.

You need happiness around you I say it so much but when I smile I feel so much better.  Now I do not know about your pills but as other have said, for peace of mind ask Doc again.

Wishing you well Topsy  and Verna  also xxxx  No stress xxxx  Perhaps we might see you in Green room for a general chit chat or SuperMarios  word games xxxx

Both keep your chins up xxxx 

Win xxxxxxxxxxx

A Trip to BTG is vital for me, it lets me know when down I have here to turn to and it is our lifeline.  When Hubby has time off I pop on quickly ..very quickly.

This is the best site I have been on that you can give vent and we all sort of understand.   Like today Washed hair showered and stink of bleach.   Drives me bananas really but I wont go on about it xx already have xx

Keep going Jan and have a good Wed/Thurs and Friday, as today is nearly over  for me as need a sleep xx

Love to you All

Win xxxxx

Hi Stanton,

I had the same SAH4 followed by Ventriculitis and then Sepsis,  was in cuckoo land for an age and I was told I'd never walk again by my Brain Injury Team,  and Physios. told hubby to put me in a home !! Cheek !! lol

I had a shunt put in as I had hydrocephalus and I came out of cuckoo land and remember hardly anything of 2009, But once they did the shunt in 2010  I can now walk short distances before back aches.  I am telling you this so you Never Ever give up and my Surgeon said Stress is bad for us so sing laugh and think happy thoughts..  We do not need Doom and gloom tales.

So come on Keep Happy when possible and take it slow do not rush and look back in 2 months and see if you have improved bet you will have.  Long haul but we can make it xx

Good luck to you Both

Regards

Win xxxx  when down sing a happy song, it drives my Hubby potty but I find it keeps stress away xxxx  Poor hubs  !!

Never heard of it Chris,

Wish you good luck and no stressing xxxx  Anyone heard of it ???

Jan,

My OT's told my hubby to put me in a home as I cried every time they come near me.  Remember at this stage I had raging Hydrocephalus and guess I was a pain to them.

See in my own mind as watery as it was in that stage,  I didn't like them ha ha.  I have always been an awkward moo lol.

So I fought them as I knew they did not like me.  To give me a balloon to tap into air was not a help to me.  My Husband was disgusted by them and he is the quiet one.

So come on here and glad to hear you are happier today xxx xxx  Mumbles cuss words at whoever upsets you xxxx