Tina

Merry Christmas to you too Julian 🎅 xx

Hi Old Steptoe  

A very warm welcome to BTG, so glad you found us.

Thank you for posting your journey so far and for taking the time to post some really helpful information. We look forward to hearing more from you. 

Where you comment on most Doctors not having any knowledge of recovery from SAH, my GP did not and has been using me over the years to learn about it, to help others in the future. He has been very supportive and helpful. I am one of the lucky ones. My Doctor had not come across anyone that had survived before me  I also told him about this amazing Forum. 

Wishing you well, go steady. As Subs has said it is very early days in your recovery, your brain has been through a major trauma. Enjoy your retirement   Please keep us updated with how you are doing and feel free to join the daily banter in the Green Room.

Take care

Tina  

Hi June  

Congratulations on your one year anniversary  

Be very proud of how well you have done and are doing. The first year is the hardest. As Jean has written so beautifully above, it is tough, but things will improve. I just takes time. I found it very frustrating in the early days. Like you i used to work full time, looked after my family. I tried so hard to get back to the old me.

I still get very tired and balance is not always good, also my short term memory ( drives me mad ). I have an on going cancer problem that is being managed, but life is good in so many ways and feel very blessed xx

I have now learnt how to know my limits. Still catches me out sometimes  Also learnt to accept and love the new me  

On 02/11/2022 at 20:02, Swishy said:

 

 

My thoughts are with you on your first year and also my best wishes for many many more.  This is tough, but life is beautiful and we are survivors.

Be well

xx

Jean

Had to quote our lovely Jean  She says it all so eloquently  

Wishing you well June and here's to many more anniversaries where you can look back and see those improvements and just how amazing you are   xx

Take care

Love Tina xx

Hi Kate  

Not sure if this will be helpful, but i am under a Mr Kuven Moodley he specialises in Neurology at St Georges and found him very understanding and helpful. I think he does private but if not you can get referred to him by your GP.

Wishing you well.

Take care 

Love Tina xx

Hi Kate  

A very warm welcome to BTG, glad you found us.

You certainly dont sound like such a moaner at all, you have been through a very scary trauma, bless you.

I was treated at St Georges too.

You will find lots of helpful supportive information here. There are others that have gone through similar.

We look forward to hearing more from you and how you are doing.

Take care

Love Tina xx

Hi E  

We are always here for you when you want to complain/rant etc, we have all been there.

I think it's normal to be a little anxious. There is no set time for recovery, we are all different.

If you feel well enough to do kick boxing, do it but maybe start again doing half a class and see how you go.

Wishing you well

Love Tina xx 

Hi E  

 You said yourself, you did too much this week and your body is telling you to slow down.

One year down the line in my recovery i found sometimes i took one step forwards and two steps back.

This was when i had over done things and pushed too hard too fast.

Listen to your body. I know its very frustrating when you feel ok and good and this happens.

Its all about learning your limits and your body sure will tell you if doing too much too fast.

I could not have even contemplated kick boxing in my first 3 years of recovery.

Consider a more gentle kind of exercise for now. Gradually build up.

If you continue to feel off then go and see your GP for peace of mind.

Slow things down again and see how you feel. You are still in the early stages of recovery at one year.

Take care, let us know how you are doing.

Love Tina xx

Hi Pat  

Congratulations on your 6th SAH Anniversary xx

Great to hear from you and really good to hear how well you are doing  

Like you, BTG was a total Godsend to me and gave me so much comfort along the way.

Wishing you well, take care,

Sending you much love,

Tina xx

Hi Dee a very warm welcome to BTG  

Some great advice from our lovely Kathy xx

Great news you are doing so well so early. The dreaded fatigue is your body telling you to slow down and pace yourself. It is very normal especially in the early stages. Your brain has been through a huge trauma and is trying to repair and function as normal.

You have not mentioned if you work. If you do or are thinking of going back many on here have found it best to go back on a phased return and see how you cope. 

So pleased you found us, you will find lots of helpful caring support here.

We look forward to hearing more from you.

Take care

Tina xx 

Hi Annes a very warm welcome to BTG  

So sorry to hear about your brother. At 2 months he is still in the very early stages of recovery.

He has had a major trauma to his brain that is trying to repair and also function as normal. 

All that you mention i can relate to.

As his sister you know him well and just being there for him will give him great comfort.

We are based in the UK, not sure where you are ?  You will find loads of helpful information here on our forum and also posts from others sharing their experiences and how they got through.

Here are some useful links  :

https://web.behindthegray.net/index.php?/articles.html/useful-websites/useful-websites-r10/

Wishing your brother well in his recovery. Maybe when he is ready and able, help him join BTG too. We are a friendly bunch  

Remember to take good care of you at this very stressful worrying time, bless you xx

Here is a link to ' A Letter From Your Brain'  click on the title, it's really good at explaining how your brothers brain is feeling,   

We look forward to hearing more from you and how your brother is doing.

Take care

Tina xx

Happy 7th Anni-versary Claudette  

Loving your positive attitude, huge respect xx

Hope you had a lovely day celebrating 💞

Love Tina xx

A very warm welcome to BTG Geoff  

So pleased you are up to checking BTG out. You will find a wealth of information and experiences to help you with your recovery. It was a Godsend to me, just to know how i was feeling was normal and all part of recovery. You are doing so well, its very early days for you.

Your hearfelt message to your lovely wife Emmi is so beautiful, i have tears in my eyes ❤️ 

We can all empathise with how you are feeling and what you are going through.

Please feel free to join in and ask anything that we may be able to help you with. We cant give medical advice but can share our experiences.

Wishing you well. We look forward to hearing more from you and Emmi.

Take care both

Tina xx

Hi Melana also a very warm welcome to BTG  as Jess said above , how extremely lucky you were to already be in hospital when this happened, bless you xx

Just read  your other post too and Colleens lovely reply. 

https://web.behindthegray.net/topic/10915-symptoms-after-a-suberachnoid-brain-haemorhage/#comment-177612

Like you i was in hospital for a month and also had a drain to remove the blood. I was clipped. Glad you are going to see your GP. I also would contact your Neurologist just for peace of mind. I started getting constant bad headaches and went back to see my Neuro Consultant. I am coming up for 15 years since my SAH and going to be 60 this year, so quite a bit older than you. 

I had MRI and scans and it was put down to hormonal headaches which are common and can be helped with pain relief. I am now back to my normal headaches, fatigue etc. Maybe over doing things, they just dont know.

I hope you get to the bottom of your symptoms and feel better xx

Take care and let us know how you are doing when you can.

Love Tina xx

Congratulations Andrea on your 7th year Anni-versary  here are to many more xx

Thank you for sharing and being a big part of our BTG family xx I also love your posts

Glad you had a lovely day  

Take care

Love Tina xx 

Congratulations too Karen on 17 years  you really are a remarkable lovely lady xx

Hi Emmi  

A very warm welcome to you and your husband. Thank you for sharing.

So glad you found us as you will find a wealth of information and many experiences of others to help with your husbands recovery. Like you, so many of us were discharged home without any information at all of how to cope or what to expect. So very scary for you both.

A month is so very early in your husbands recovery. I totally get how he is feeling re wanting to be better now. Like your husband i was very lucky to survive. I also had double vision, balance problems, severe fatigue and terrible short term memory.

My  life as i knew it had been turned completely upside down. I ran my own business and was very independent. I hated having to rely on my wonderful husband and best friend and my kids, parents to help me with everything.

All i can say from my experience to your husband is rest up when tired, dont push too hard too fast. Baby steps. Be kind to yourself, both of you. I know this will be said by many, but it really does make a difference if you listen to your body.

BTG was a Godsend to me. It helped me to understand how i was feeling was all part of my recovery and normal. Very hard to be patient when you are a doing person. Things will get better for your husband, just takes time and adjusting to the new you.

I am always a very positive upbeat person, but i did feel very frustrated in the early days and did feel down sometimes because i could not do things i used to. My Dr arranged for some counselling and it really helped to talk to someone away from family. I felt i had put my family through so much and kept a lot of how i was feeling to myself. If your husband continues to be a beat off, maybe its something you could consider.

As a carer its also very hard as you go through all your husband does. Make sure you take time out for yourself xx Hopefully in time your husband will be also be able to join BTG. We are a friendly caring family here  

We look forward to hearing more from you and how you are both doing.

Take care

Tina xx 

Hi Majella

I had not heard of Functional Neurological Disorder, so just looked it up.

Bless you, a lot to take on board. I do hope with your Drs treatment all your symptoms will start to improve over time. Its good they are keeping a close eye on you too.

Wishing you well.

Please keep us updated when you can.

Take care 

Tina xx

Hi Majella  

Good to hear from you.

I hope you are now feeling better from your other health issues xx

For me, all that you mention i went through in the first 2 to 3 years of recovery. It has improved over time. I know how frustrating and worrying it can be, try not to push too hard. Be kind to yourself xx

It just takes time and everyone is different in their recovery. The fact that you have had other health issues going on will also have an impact on your recovery. Saying that, if worried always go back to see your Neurosurgeon or Dr for peace of mind.

Take good care, wishing you well with your ongoing recovery.

Keep in touch and let us know how you are doing.

Tina xx

Hi Shawn a very warm welcome to BTG.

My you have certainly been through it, bless you. Be very proud of how far you have come and what you have had to cope with.Your wife sounds an amazing lady. 

9 months is still very early on in your recovery. Dont be so hard on yourself and dont forget you have had all this extra stress and worry on top of your brain trying to recover and function as normal. Anyone that has gone through what you have and are would be feeling a little lost, down, overwhelmed.

Things will get better, it just takes time. Adjusting to the new you also takes time. You will get there. Your amazing wife by your side. Things like this make you stronger. Be proud of you  

There will be times when you may take one step forward and two steps back. But you will get there. I am 14 years down the line now. Took me quite some time to accept the new me and to adapt on ways to help with short term memory and the dreaded fatigue. Balance problems and double vision. Even now sometimes it catches me out, but you will learn your limits and how to cope.

As i said before, it just takes time, little steps. Feel free to join in the daily banter in the Green Room. We are a friendly bunch.

We look forward to hearing more from you.

Take care

Tina xx

Sally if things get worse before appointment, maybe call 111. The 26th is a long time to wait if feeling very poorly.

Take care xx

Hi Jayne a very warm welcome to BTG  

I can understand how anxious it would make you feel bless you xx

I am sure that because of your past history they would keep a very close eye on you.

Also great news your scans are all clear, that must give you some comfort and reasurrance.

I have posted a link below that has all topics to do with pregnancy and SAH.

Have a read through, hope it helps.

https://web.behindthegray.net/search/?&q=Pregnancy &quick=1&search_and_or=or&sortby=relevancy

Wishing you well, keep in touch and let us know how you are doing.

Take care

Love Tina xx 

Go steady and let us know how you get on.

Take care

Love Tina xx

James congratulations  Happy driving  so pleased for you.

Thank you so much for sharing and updating us with your experience.

Hi Sally

Really hope you are feeling better and ok ?  Bless you, horrible for it to happen after 2 years of nothing. Just for peace of mind go and get yourself checked out. Could just be you have over done things. Hugs xx

Keep in touch

Take care

Love Tina xx

Hi Jenni

So sorry you are feeling low and sad  You have done so well with your recovery, dont be so hard on yourself. Sending you big hugs. Please dont blame yourself. It may not have made any difference at all. 

Have you thought about counselling? My GP arranged for me to see someone to talk to about things when i was feeling low trying to accept the new me. There was a waiting list but it was worth the wait. Just helps talking to someone outside of the family. We are always here for you too xx

Maybe go back to your ophthalmologist and ask for more tests? My eyesight was still improving slowly at 2 years. I did finally get back to driving.

Keep in touch and let us know how you are doing. Be very proud of how well you have done with your recovery. Things will get better, just takes time adjusting and accepting the new you xx

Take care 

Love Tina xx

Hi Jenni

So sorry you are feeling low and sad  You have done so well with your recovery, dont be so hard on yourself. Sending you big hugs. Please dont blame yourself. It may not have made any difference at all. 

Have you thought about counselling? My GP arranged for me to see someone to talk to about things when i was feeling low trying to accept the new me. There was a waiting list but it was worth the wait. Just helps talking to someone outside of the family. We are always here for you too xx

Maybe go back to your ophthalmologist and ask for more tests? My eyesight was still improving slowly at 2 years. I did finally get back to driving.

Keep in touch and let us know how you are doing. Be very proud of how well you have done with your recovery. Things will get better, just takes time adjusting and accepting the new you xx

Take care 

Love Tina xx