Tina

We are always here for you Susan. So pleased BTG kept you sane  It has been a Godsend for me and many others too. Glad you are going to try and talk to your husband again and make some calls. Yes, it is more than ok to feel frustrated, sad or lonely. It is very normal to feel this way. You are both going through a huge life changing trauma. 

I hope no nasty reaction to your vaccines and you both have a lovely vacation. Your happy place ❤️ enjoy, you deserve it  

Keep in touch

Take care

Love Tina xx

Hi Susan  

Bless you, its so hard sometimes. Sending hugs your way 🤗 Never feel like you are complaining. I know your husband went through it, but so did you and both are adjusting to the new him. Lock down this past year has been very hard and working from home and being together 24/7, you have noticed these changes in his ways so much more.  

If you feel you really cant sit down and talk about this with your husband. I would definitely go and see his Dr, maybe go together. Your GP can refer your husband or both of you for counselling. It would be an opportunity to discuss your feelings.

I know you dont want to make your husband feel more self conscious but he may be totally unaware how you are feeling. I am sure his need of control and reassurance is because he lost some of that. Your lives have been turned upside down. It can take a long time to come to terms with whats happened.

I was a very independent person before my SAH. I worked full time and hated that i could not do the things i could before. I got very frustrated at myself. I also hated noise. This did improve over the years. I still suffer with fatigue and most nights i am in bed by 9pm. My body just goes on close down.

My husband has been amazing and very understanding. We talk a lot about how we feel and always have. This really did help.

If i go out for a late night it would take at least two days to get over and always does. Its about compromise and meeting in the middle. Communication is so important for both of you. For your husband, its about learning his limits and again compromise.

At 5 years i was getting there, but still struggled. I am now nearly 14 years down the line and still struggle. Good days and bad days. I had counselling in the early days and it really helped me to talk things through.

I hope things get easier for you both and you get some help.

Keep in touch and let us know how you are both doing.

Take care

Love Tina xx 

Hi Rory 

A very warm welcome to BTG,  

As you have found, there is a lot of very helpful information here. So many of us leave hospital with little or no information on what to expect in recovery. 

I also wish you all the best with your recovery and agree with all the lovely Clare has said above.

Feel free to also join in the daily banter in the Green Room.

https://web.behindthegray.net/forum/9-the-green-room/

We look forward to hearing how you are doing.

Take care

Tina xx

Thank you for the update John. How very frustrating for you !

Hope you hear soon from the DVLA. Keep chasing them.

Good luck 

Tina 

Delboy thank you for sharing your experience. Welcome to BTG. Great news you got your licence back, congratulations   

Sarah, just beautiful and can only echo Michelle. Win really was such a special lady in every way and always made me smile.  

Thoughts are with you and family. xx

Fiona how scary for you, bless you, wishing you well. Take care xx

❤️ xx

Oh Sarah, such very very sad news. God bless our lovely Win, who gave so much joy and made so many smile. 

So sad & gutted too.  She will be missed so very much by us all. 

Thoughts are with you, sending much love to you, Al & Tilly xx

Johnnie i will message GCoutt letting them know you are asking after them.

Julian hope you had a great Birthday and the crying babies didn't ruin your dinner out  hope you had your ear plugs ! .... stay strong  xx

Hi Julian 

Happy NASAH Anniversary

Great to hear all mostly good, practically 100%

Wishing you well with your on going recovery.

Take care

Tina xx

Colleen congratulations on your 9 year SAH anniversary

Well done you for all you that you have achieved, be very proud !

Sending much love back to you,

Take care

Love Tina xx

Hi Peter John 

A very warm welcome to BTG, glad you found us.

It is very early days in your recovery, be kind to yourself, listen to your body, pace yourself and don't push too hard.

Some great advice above and you will find lots of helpful friendly support here   

Look forward to hearing more from you and how you are doing.

Here is the link for NASAH section :

http://web.behindthegray.net/forum/16-non-aneurysm-sah-or-perimesencephalic-sah/

Take care

Tina xx

Hi Clara 

I can relate to a lot of what you mention.

I felt like my whole world had been turned upside down, which it had, devastated !

Many years later i stopped trying to be the old me and started to embrace the new one.

Learnt how to pace myself and know my limits. I am much kinder to myself, instead of pushing too hard and making myself ill.

I  also had my down tearful days, more from frustration, when my words would not come out the right way or i could not remember things or did not want to see or speak to anyone or had an anxiety attack i could not control.

I think it is all part of the road to recovery and it does get better, i promise

Take each day as it comes, one step at a time and you will get there.

BTG was a Godsend for me, good days and bad days i found great comfort and support from others here and still do

You will get your mojo back, it just takes time. 5 weeks is so very early in your recovery.

As Karen Hyder once said to me, be kind to yourself, very wise words.

Take care

Love Tina xx 

Hi Krislwal

Hope you will get some answers and comfort when you see your Doctor.

Take care xx

Hi Dotty

A very warm welcome to BTG

Glad you found us.

So sorry to hear about your Dad, such a stressful worrying emotional time for you all.

Two weeks is so very early in your Dad's recovery, his brain will be working overtime trying to mend and recover from a huge trauma, plus doing the normal everyday things we take for granted. Really fantastic news he recognises you all, is eating, swallowing and reading signs.

The confusion often comes from extreme fatigue, have you noticed your Dad sleeping a lot. This is normal as he will need lots of rest and sleep to help with his recovery, also lots of water. The surgeons are closely monitoring your Dad, and sometimes recovery does take months & months, there is no time limit, everyone's recovery is different.  Although he is confused and seems in his own little world , he is responding to your questions and his memory is there, which is a huge positive

Wishing your Dad well with his recovery and look forward to hearing how you are all doing.

You will find lots of helpful information on the Forum. Please feel free to ask any questions, we cant give medical advice, but can share our experiences. 

Take care & remember to look after yourself.

Tina xx

Chris, congratulations on your 2 year NASAH Anniversary  

What a great way to start your special day, with a run,  a smile and such a positive outlook

Be very proud of what you have achieved, i know there have been ups and downs along the way. You are an inspiration.

Thank you for being part of our BTG family and for all your caring support & friendship back to other survivors here.

I hope you have a very special day celebrating !

Take care

Love Tina xx 

Congratulations to you both on your 1st year Anni-versary 

'Loka samastha sukino bhavanthu' 

Wishing you both all that you wish for and more !

Take care

Love & hugs

Tina xx

Just checked my ears, I don't have any creases, I've had an SAH .

Eileen, a very warm welcome to BTG and thank you so much for sharing your reassuring experience with Kiwi11. 

Maybe you would like to post a bit about yourself in the Introduce yourself section.

We look forward to hearing more from you.

http://web.behindthegray.net/forum/8-introduce-yourself/

Wishing you well

Tina xx

Shobs, also wishing you and Sandeep all the very best for the 17th October.

Take care

Love Tina xx

Hi Mandie

So sorry you are feeling this way. I think a lot us go through times when we feel so very low, tearful and grieve how we have changed or been affected.

Sending you a huge hug and lots of love xx

Try to concentrate on how well you have done and all the positive things, easy to say i know ! Try doing something that you enjoy and makes you feel happy.  You never need to apologise for being negative, as i said, we have, at some point all been there and can totally empathise and understand where you are coming from..

If things don't improve and you cant get out of that rut like you have before, maybe go to see your GP for some help. I tried counselling and it really helped to talk to someone not family or friends. Others tried antidepressants that also really helped.

We are always here for you Mandie. Hope today a better one for you  xx

Take care

Love Tina xx

Hi Sonia, lovely to see you  

So pleased that you went to the Dr as Sarah suggested. Glad the letter was re written and you got your peace of mind, bless you xx

Take care

Love Tina xx

Andrea i had mine done nearly 10 years ago, they did it when i had my clipping. I was in hospital for just over a month xx