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Everything posted by myratas
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Dear Nurianna It's really wonderful to hear that you are doing well and good luck at the appointment this month. I still find it hard to say "no" to people and later i find that i am tired and end up feeling ill. Myra xx
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Hi Donna, You certainly sound a lot better, it's good that you will be monitored and they can keep an eye on things. I feel that you should only go back to work when you are really ready. I am happy that things are looking up for you. Myra xx
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Untreated aneurysms or annies not 100% occluded
myratas replied to Karen's topic in Untreated/Unruptured Cerebral Aneurysms
Well I had the hospital appointment and i have decided to have the aneurysm coiled, the neuro surgeon feels that it might be better for me but the biggest problem now is to sort out the other medical problems before coiling and i will have to see the GP on Friday. I think i am relieved i made the final decision but now the waiting and i have to get my health some what better for the op. Myra xx -
Hi Shiree I did have something similar some months back but have not noticed any thing lately. Overall i think my eye sight has become weaker though. Have you visited an optician yet? Myra xx
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Hi Nick Welcome to the BTG, here will make friends for live, take care and we hope to hear more from you. Myra xx
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Untreated aneurysms or annies not 100% occluded
myratas replied to Karen's topic in Untreated/Unruptured Cerebral Aneurysms
Well finally arrived home after hospital appointment. As i entered the room there were 4 neurovascular doctors sitting down with all my ct scans and mri, very daunting indeed. They all feel that i can either have the aneurysm clipped or coiled, it's up to me. They do feel that it should not be left alone which is my wish but then i am still left with something unprotected. The question now is whether to have it clipped or coiled, maybe a feedback from people who were clipped is helpful here in order to make that decision. They feel that when i give an answer next Monday they can perform the operation in the coming weeks. Thanks for all the support. Take care. Myra xx -
Untreated aneurysms or annies not 100% occluded
myratas replied to Karen's topic in Untreated/Unruptured Cerebral Aneurysms
Morning everyone Well the 24th has finally arrived and i hardly slept last night, i am anxious about the appointment almost wish i did not have to go. I hope and pray that everything turns out ok. I will let you all know how i got on. Myra xx -
Dear Mutti I know it can be difficult when you wish to do something but but find it hard to do. Your husband is right, stay well and focus on things perhaps you were unable to do when you were working. I know i cannot work and i do get frustrated with that but then i decided to do things that i did not have time for. I know also what you mean when there is too much noise in, it's like my mind is in over drive and i need to get away. Do you have any hobbies? Take care. Myra xx
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Dear Evelyn Welcome to BTG this is a wonderful site to make friends who all share their thoughts, advice and above all friendship and understanding. Hope to hear more from you. Myra xx
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A Dented Image-Meeting In London
myratas replied to andyp's topic in Subarachnoid Haemorrhage Discussion
Hi Lauren I am making steady progress, you can read my story on the homepage, Karen added that yesterday. I live in Mill Hill, North London. Myra xx -
A Dented Image-Meeting In London
myratas replied to andyp's topic in Subarachnoid Haemorrhage Discussion
Dear Lauren I am sorry that you are having a hard time at the moment. Ater reading your post i can relate to some of the problems. I need to come back and read some of the postings here because we all have problems are SAH no one really understands from those who have not had SAH. We are here for you. Where abouts in London are you? Myra xx -
Hi John That's totally unacceptable behaviour from them. I really think you should do what Laura suggests, go to the local paper. We are behind you 100% Myra xx
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Moving forward and coming to terms with the SAH.....
myratas replied to Karen's topic in Subarachnoid Haemorrhage Discussion
Hi Karen Reading your account of SAH has really helped me today, i only wish i had your drive, you have achieved so much post SAH. My biggest problem is that i ofter do not share how i feel but when i look at this website i get my answers. You are also right by keeping in touch with other people but sometimes i think they do not know what to say. Like you i am also living with aneuryms that have not been treated and yes you are also right i should not think about them. Where did you get your strenth? I wonder if we well and surely get over our SAH, I know that i have to get on with life and thank god that i can see my boy's grow up and see their other milestones. I hope Karen that all your dreams and goals in life become true, you never gave up and this shows now that you are working keep up the good work. Take care. You are an inspirational to us all. Myra xx -
Untreated aneurysms or annies not 100% occluded
myratas replied to Karen's topic in Untreated/Unruptured Cerebral Aneurysms
I received a letter today from the hospital that they want me to see the neurointervention team on the 24th September. I am so worried about this, i keep thinking bad thoughts. I know that i am having some health problems at the moment, some related to SAH and some of the previous medical problems but this is really not helping me i am so stressed and i cannot talk to anyone about this because i do not want them to worry. I am so frustrated and feel that i have to cope with emotional problems on my own. I am in tears, it's not easy at the moment, i wish i did go to Frankfurt to visit my husband. Sorry to rant on with my problems. Myra xx -
Dear Donna I wish i was there to comfort you, i do know what you are going through, i just put on a brave face. Keep focused on yourself, you have come a long way Donna and i am sure you will make even more progress. We had our SAH more or less the same time and i think that we have come along far with this site. I think it is good that you have a councillor to talk to because that helps. Give yourself time Donna, i know that everyone says it will get better and i have seen so many people on this site that have done really well, so i know there is hope. Everyone is different in their recovery process but i am sure we will eventually get there. Please stay positive for youself and your son, he needs you. Myra xx
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did your memory get worse over time
myratas replied to a topic in Subarachnoid Haemorrhage Discussion
Hi Lisa, I had SAH 6 months ago but i do have memory problems i hope it gets better. It's the simple things i am most likely to forget. I think it's a good idea that Diane has suggested with the Nintendo DS i think i will give it a go. Myra xx -
Hi John I am sure you will be ok. I know it's frustrating having to wait what the out come is going to be. I think though you should try and rest. When did you have your coiling done? Myra xx
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Welcome Nurianna to this site, this is the best family to have in the world after SAH, hope to hear from you more. Myra xx
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Morning Shiree I had SAH just days after you and i think that there are days are feel so grotty with a headache or sickness. I do think like Jess and Tina have already said have it checked out to rule out anything serious. Tina i too had the same problem and had suction at the hospital, hated it. Shiree try and not work too hard you should still take it easy even six months post SAH. Myra xx
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Welcome Miss Piggy Don't feel guilty, if was not your fault that this happend. We all suffer from fatigue after SAH and no one can understand that like we do. This is a great place to come to if you ever need ask for advice or just chat. I do not know what i will do without this BTG family of mine. Myra xx
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Welcome to BHG Carol, This is a great website and no doubt you have joined the best family here. Myra xx
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Welcome to BTG Sarah I had my SAH in March 2008 and was at the Royal Free Hospital Hampstead where i had been coiled. It is still hard, i do not think there should be a time limit on how one should feel, we all have days that are good and days that are bad. I cannot work at the moment as i still suffer from constant tiredness but i try to keep myself busy with other things. The one good thing that you have is the support of your husband and children. I am so glad that i can visit the site 24/7 and be able to write for any advice or just talking about i how i feel. I hope to hear from you and you are not alone Myra xx
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Dear Donna I really don't know about this one, i had a hysterectomy when i was 31 but i do find i am a bit grumpy so everyone keeps telling me. Myra xx
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Please help: Dad not speaking after operation
myratas replied to a topic in Subarachnoid Haemorrhage Discussion
Dear Joanne, I am sorry about your dad feeling poorly i hope and pray he makes a good recovery. I had SAH in March 2008 and i was told i had something similar to your dad, my family were really worried. The doctors felt that it was the pressure build up in the brain they had to drain the fluid surrounding that area through lumber punture drainage after a week or so i still felt a bit bewildered and slowly i started remembering people and making progress. I could not talk and when i did it did not make much sense. It is a slow process for some people and recovery depends on the the individuals medical circumstances i am still recovering and making a steady progress but i am sure your dad will get better soon. Myra xx -
I was doing really well when i was dieting before my SAH in March, i had lost 12kg and i was feeling better until the SAH i also lost weight whilst i was in hospital but for the last few weeks i comfort eat, it's more like comfort eating, i never had this problem before but i cannot stop craving especially popcorn. I have not put on a lot of weight but i am cocerned as this does not help my blood pressure. I did speak to my doctor, he feels it's a delayed reaction of the SAH. I just want to get control of my body again, it feels that i no longer have this control. I was reluctant to post this but i had no choice but to. Myra xx
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