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myratas

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Everything posted by myratas

  1. Thank you Macca and Super Mario, I will keep up with it and today the good news is that my medical insurance has agreed to pay for the whole treatment with transport to take me there and bring me back home, I often got extremely tired so the transport helps. I have heard of aqua fit classes and it's good that you go. The water is warm but today they did not let me in the water because my BP was high but let me just dangle my feet in the pool.
  2. I was given some advice from a doctor to try out hydrotherapy about six weeks ago. My left leg and arm are still weak/spasticity and I went along although I can't swim, I went along to the Gesundheitzentrum (health centre) for neurological problems, the physiotherapist has trained with people with brain injuries and she devised a special training plan for me. I just love it, the last time I was in water when I was nine years old and in primary school. Although my limbs don't always work along with me but I have found that it has helped me to make them a bit stronger. I will continue going and I am no longer afraid of the water.
  3. Hi Linda Happy re-birthday, glad you have done well. I had my SAH on the 13th March 2008 also right communicating artery. I wish I was positive too but I guess I am not there just yet but I work on it everyday.
  4. Hello friends of BTG Just an update on the hearing issue, I had the hearing aid in October 2013 which improved but unfortunately I was having problems with the good ear and still found problems with the bad one too, I went to the ENT specialist last Friday and it seems I am going deaf in both ears now. This problem could of been fixed when I was referred at the Royal Free Hospital in London but they did nothing even though it stated in the letter urgent consultation and now over the years it has completely damaged the nerves. I had a MRI and other tests done last week and tomorrow they have made an appointment with the neurologist as they all feel it goes back to the SAH. I do have an option with surgery but there are no guarantees, I know they are doing there best but I am afraid for the unknown. I am under a lot of stress as I will be moving to my own apartment soon and this was the last thing I needed. I really am trying to stay positive but on the positive note at least I am still here!
  5. Dear Zoe Sorry to hear this news, my thoughts and prayers for you and your family. x
  6. My two son's and BTG helped me through those dark moments of my life. I also had started to do an intense research on my religion and spirituality as a whole that has changed my whole life literally. Each day is easier and I have come a long way despite having some problems with my journey, I did look at BTG as a safety net who I knew had more or less the same problems. Oh, yes my hobbies too helped me! :redface:
  7. Hello BTG members I was having a lot of problems with my hearing on the left side recently, most of my problems after the SAH have been the left side anyway, so I made an appointment with the ENT doctor last week and was told that I am going deaf on that side. When I was in the UK at the Royal Free Hospital I did complain about an earache I was constantly getting and I could not hear well so tests were done on me but I never received details of the outcome or a follow up. The tests that I had done last week showed a significant hearing loss probably caused by SAH but other factors could of caused it but they feel it was around that time I started to feel a slight hearing loss in 2008. I will be getting a hearing aid next week and eventually I can have an operation which I don't want but content with a hearing aid. My whole head feels so much like a vacuum at the moment very much like months before the actual SAH, I am concerned about that and have an appointment with the neurologist on the 16th September so I can share my concerns. BP is sky high too yesterday's reading was 188/126 I guess I must learn to calm down and let go of stress!
  8. Hi SarahLou Sorry for the belated happy anni-versary. Loved what you quoted here, "I shall always celebrate this date as life is all about making memories." Wishing you further happiness and lots of health and good memories.
  9. Hello Karen and fellow BTG members I have a lot to be thankful for, I started making my jewellery again after I just gave up from the second coiling, as you know I had complications and my left arm was left weak so I decided to start again when a lady from USA wrote me an email about how much she liked one of the charm bracelets and I should never give up! Also I am writing a book, it is going to take a while, it's not only about my SAH but also a spiritual journey by leaving a cult and the research that I had to undertake. I am still not quite there yet mentally and trying hard physically but at least trying and occasionally smiling
  10. Hi AVLanigan Welcome to BTG, I was treated at the Royal Free Hospital in London, I can't remember much until near the end where I was discharged. I did not receive any information regarding SAH, my discharge papers and medications were handed to me and the rest I had to find out through internet and from BTG.
  11. Congratulations on your 3rd year Kel. Hope you are planning on doing something special, have a wonderful day and enjoy life! :redface:
  12. Hi Dawn I used to be quite assertive, knew what I wanted and went for it and spoke my mind when needed. After SAH that has all changed, I live in my own world. I get confused at situations then all all goes downhill for me after that so I now avoid talking to people as I know I am going to mess up and my mind just goes blank. I also think that people don't take me serious anymore apart from my son's. I am trying to stay positive and maybe one day I will get back to the person who I once was but trying to get out of the little world I am living in now...
  13. Happy 10th Anni-versary Jess You are so positive in your outlook, I wish I had that at times. Sorry to hear about your husband but sometimes it is a blessing in disguise, that's how I look at it since my divorce. You have 2 beautiful boy's I hope you go and enjoy the rest of your life to the full.
  14. Hi Nikopie I am 4 years post SAH and I have this problem since then, the best way I describe it as if I am looking at a blank piece of paper,:confused this episode last about 2 minutes or so until I calmly remember what I wanted to say. Most of the time it is simple just to write down what I want to say as I don't get stuck with words then especially if I get emotionally over something, my boy's are used to having e-mails sent to them now!
  15. Hi everyone, As you know I make jewellery so since my SAH anniversary I made a necklace where you can add some beads, I now have 3 semi precious stones beads and each year I will add another semi precious stone, to me life is precious and I feel very close to the necklace, the SAH changed my life and each stone added each year is another reflection of the achievments I have made. I never told anyone about the necklace and it's my very own thing that I like to do, I only wear it when I am down and on each anniversary including the second coiling I had done, I survived that too. Apart from that I only keep thoughts about my SAH to myself, I don't like talking about it to my family that much, I feel it's my little moment, probably sounds weird I know!
  16. Thank you Vivian for sharing your photo with us, what you portrayed is exactly the way I feel, it's a struggle and we do look ok to people on the outside but we are not, we have internal scars both physically and emotionally. Wishing you well and your photography is great!
  17. Dear Jan Wishing you all the best for the 31st, I will be thinking about you on this day!
  18. Thank you for sharing your very inspirational video with us, after listening to the video I too had tears. Well done!
  19. Hi Shelly Welcome to BTG, we are practically neighbours and like you I was also treated at the Royal Free hospital. Glad that your son found this website, full of information and advice and off course wonderful friends. Hope to hear more from you when you are ready.
  20. Hi Donna My SAH will be 3 years next Sunday so we are hand in hand with this, I no longer keep in touch with friends who won't even try to understand what we all go through but as Sami has said you have us. My life has changed so much especially since last coiling in July, more frustrations added to the ones I already had but we try to carry on, I read somewhere that the biggest lie people say "I am ok" is something very familier to me, they cannot comprehened the issues we have to go through at times, what can we really say to them, I now just keep all issues to myself unless it is the medicals that need to be told. Donna, you are unique and a wonderful friend and we are all here for you.
  21. Hi Sandi My BP has always been very high, in fact just 2 weeks before my SAH my doctor wanted me to go into hospital for it, I said no (I am too stubborn) and then I had the SAH. I am on 5 different medications for it at the moment but there is a long history of high BP in my family. I really don't know if the high BP is one of the causes of aneurysms/SAH/NASAH especially the ones that ruptured. I am now see a cardiologist for high BP and also my heart muscle had weakend since SAH, they don't think it is related to the actual SAH but again there is a genetic link in my case.
  22. I don't think that we can be 100% better, having a SAH is quite traumatic. When I had my SAH in 2008 I was left with many problems, ie balance, nausea and a weak left leg, I just had to get on with it but I knew I can never be the same person, before the SAH, I was fairly active in everything, after the SAH I remember how people use to see me when I was outside and felt sorry for me because after 10 minutes or so I would be extremely tired. I hardly had time to get over the first SAH then my second surgery last year really bought me down both physically and mentally, I still suffer from left side weakness on my leg and also my arm now, before the second operation I could at least walk but now I have to use a wheelchair if I am to go for longer periods outside. I have to agree with Maggie, it does take a lot of courage to accept the changes, I know I had to twice over, I keep giving myself talks about staying positive but I have to be honest, it's not very easy, I don't like my new life at the moment, I am grateful to be here but the quality of life for me has changed drastically. Sorry to be honest about it, but that's how it is in my life but on the other hand it may not be for some others, I say embrace the new you and come to terms with it as I am dearly trying to do so with mine. We are all survivors and unique.
  23. Hi Chris I have a weak left leg after my SAH in 2008 and 2010 suffered a stroke which has made my left arm very weak, the left leg has become a lot weaker too. I had some physiotherapy but the leg has remained the same, I am still working on my arm but find everything so tiring and like Liz I cannot carry anything with that hand especially if heavy. Unfortunately I cannot walk that much now either so when I do go out for a longer period of time I do need a wheelchair. I might go for swimming lessons as I hear that will help be with both limbs all I need to do is find a place that deals with SAH/stroke patients. Any ideas or suggestions where that might be possible? It's hard to say really, everyones recovery is so different. Let us know how you get on.
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