myratas

Morning everyone, I had an appointment yesterday at the hospital i was told i needed to see the neurovascular doctors regarding the aneurysm that i still have. This doctor feels that it should be coiled but others feel it should be left alone at the moment but he is going through my medical records and feel it would be safe to have that rather than leaving it alone. I requested a copy of my scans and will take it with me to show the neurosurgeons appointment that i have on the 7th August in Germany. I am confused and worried about this, I think that with my previous medical problems i am concerned. I had other major surgeries before my SAH. I just feel that when doctors are confused as to what to do that does not help either. Myra xx

Hi Shiree, I had 2 seizures whilst in hospital and that was because i developed hydrocephalus which i had a lumbar puncture performed to drain the excess water to help with the brain pressure, i was told that although i had seizures at hospital i would most likely not get them again or chances are very slim that i will not have one again. I on the other hand do not worry about them anymore, i was worried in the beginning but not now. I was on medication but not now. Myra xx

Donna i wish i was with you to give you a hug, I know that you are struggling emotionally but you will get better, i had my SAH in March this year and i still have my good days and bad. I know no one can really understand what you are going through but it is important to talk to your GP. I wish i could do something but we are here for you, i feel that you have friends here who have and perhaps still might be going through what you are at the moment. Everyone is different, i have accepted i had SAH and i am thankful that i am alive and i still have other problems but i take each day as it comes. It is good that you are going away, it will do you some good, try to make the most of it. Please take care of yourself i know you will get through this in time, time is a great healer. love and hugs Myra xx

Hi, I know exactly how you feel, in fact i hate going into my bedroom knowing that i will be only tossing and turning. I have tried hot milk but that does not work for me, i never really had problems before my SAH it's just now it's so frustrating. I have noticed that it is having effects of my health and blood pressure. I never have or perhaps never will take sleeping tablets. I was actually scared going to sleep because of the seizures i had but that is not the reason i do not go to sleep now. I have now started reading late at night that helps a little but i do need to sort this problem. Finding support groups are difficult to find, I have contacted Headway to join their regional group in the North London area, maybe they might have some suggestions and advice. Myra xx

Hi Chills Warm welcome to this wonderful website, it really has helped me with my ongoing recovery. I had SAH mid March this year and i know that it can change your life forever. I was studying aromatherapy before my SAH but i could not go back to college for the rest of the course, i might have to give up on that completely because some of the oils now give me a headache. I hope we hear from you soon and take care. Myra xx

I really need advice about speech problems. For 2 days i am having problems getting words out, the words are in my head but i cannot say them i then stutter, i never had this problem, actually talking makes me so tired and i am still getting headaches. I am waiting for Monday so that i can go to the doctors. Has anyone else ever experieced such problems after SAH. Myra xxx

I think we all change to certain extent post SAH, i know i have. I am more tolerant of other people, i just let it go. I have told a few friends about this website and they do understand when i am unable to do certain things as i get tired and still suffer from headaches but i have notice that they do not include me as much as before but that's ok too because i found new friends here we all understand each other and if one of us has a bad day we are there for each other. Life is full of changes some good and some bad, i put it down to experience and friends that cannot understand our health issues or make fun at us, oh yes, i have had some friends who made fun of me then i do not need them. I am glad that i survived this i just want to enjoy the rest of the time i do have. myra xx

Hi Donna Well done, at least it's behind you and everything will be fine, i am sure. I have a question to anyone, my brother was told by my consultant that i cannot have a mri, i was coiled can someone tell me why. love myra

I thought i was the only one who gets weird sensations, i really hate the feeling it's occurs mosty when i am in bed, i cannot use the duvet so a cotton sheet is good for me i try and not to get too hot. I feel that something is passing through my body from head to toe. It's really weird. Myra

I rang the hospital and made an appointment myself, i was on the system so did not have problems but the earliest appointment is on the 28the July. I was given antibiotics by my dentist but yes i do feel that anyone who has had SAH does not have much information regarding their condition. My husband who lives in Germany had one of his staff who suffered SAH in October 2007, he was in hospital for 2 months, he was then referred to a rehab clinic that is like a hotel the hospital medical insurance arranged all his housing and other benefits before he was even discharged and all dental and other information was given to him if he should encounter any problems, this made his life a lot easier.

thanks Donna i will wait for your answer tomorrow and go accordingly, i need to get my dental problems sorted out but deep inside i am also scared, i still get headaches and my blood pressure is still up. I hope you are well.

I have a real bad toothache but my dentist refused to treat me, especially after the SAH and seizures, i know that i need an extraction she has referred me to a hospital but i cannot live with the pain for weeks on end. Has anyone had dental treatment soon after SAH and by the way i am terrified of dentists.

I was 46 years old. I have to share this with you, when i was so sick in hospital i do remember one nurse asking my 21 year old son if i was his sister, it at least made me smile and happy

I also suffer from weak legs, it started at hospital after i had my seizure. I had physiotherapy at home and although i can still walk, my legs feel weak when i walk. I feel a bit safer with crutches, i am getting use to it now and all honest it does not bother me that much i just have adapted to the new situation and i still do the exercises the physiotherapist told me. Have you been referred to a physiotherapist? I hope you get better soon. myratas

Hi Donna I had my SAH in March this year, i too felt very anxious, especially going to sleep and i was often afraid being on my own. I still get dizzy spells and light headed at times. It does take time and i am taking each day as it comes. You will have good days and bad, but really no one really understands like we do on this site, we all have experiences in all different ways. Take your time and be kind to yourself. I get so tired and when that happens i start getting headaches so i normally rest. Love Myra

I am a bilingual administrator, i can work from home but i am still not ready to do that yet. I work freelance and much of my work is on the computer. I did travel a lot to Germany, as much of my work comes from there and also my husband lives there while i live in London. I will move back to Germany when my youngest son goes off to university. I think i have become a bit slow translating some of my work since my SAH and my concentration is not so good.

I am due for the follow up appointment, i would like to know what will happen, the sort of questions asked and the sort of questions that i should ask. I had SAH in mid March 2008. love Myratas

I think it's wrong of Jim's boss has asked him to climb a ladder for his work, thank god we survived SAH but we still have to live with what happened to us and we value, and should do our health and well being both physically and mentally. I first started getting headaches around 2.00am woke up rather shocked, i know it was so gloomy.

It's been 2 months since my SAH and i am experiencing hair loss quite a lot, anyone else had the same problem? Love Myratas

Thank you all so much for your encouragement and support, i am so glad i found this site, it certainly helps to hear other peoples experience and that it will get better in time. I am getting physiotherapy at the moment and hopefully i will start doing things more myself. I feel that i have found friends here, i was feeling lonely i cannot share my feelings with my two boys, one is 21 and the other is 15, they have been great in my recovery. Bear with me, i am a bit tearful and maybe feeling a bit down lately. kind regards myraxx

Hi everyone I had SAH on the 13 March 2008, woke up with an awful headache 2.00 in the morning, i knew something was not right so i called my son to call an ambulance, i did vomit a few times and then passed out. I was sent to the Royal Free Hospital in London where they performed the coiling later in the day. Then two days later i had a seizure and i cannot remember much after that. It's only when i got home that i realize that i am lucky to be alive but i am having problems both physically and mentally, after the haemorrhage my left leg has become weak that i cannot walk unaided, i still suffer from headaches but the biggest concern for me is getting to sleep, i keep getting flashbacks as to what happened, i try to think about other things but i can't. It's hard talking to anyone because i do not want to burden anyone with my problem. I have made an appointment with my GP next week.