Nasah, severe sciatica and butt pain, night sweats

[Crystal]

Hi there my husband suffered what the doctors are calling a non anuerysmal subarachnoid hemorrhage (because they couldn't find a reason for it) Oct 4 at about midnight. We had just finished being intimate when he started to have an intense headache the worst he's ever felt. About a couple minutes later he had passed out on me for 2 minutes. In that time I was screaming for him to respond as I was calling emergency.

 

He came to as I was giving operator our address. By the time he medics came he was drenched in sweat. Sitting down his BP was 118/70 when he stood up for them it dropped to 96/60. They took him in and found a subarachnoid haemorrhage near the brain stem on CT scan. They transferred him to a different hospital that could better help him. They did ultrasounds of the brain and an angiogram as well as a second angiogram the same day he was discharged. He was in the hospital 7 days went home the 8th.

 

It's now been 13 days since he first passed out on me and went to the hospital. He's on pain meds, nimodipine every 4 hours and his regular meds he was taking prior to for blood pressure and such. He had been on brilinta for 6 months prior to this happening due to a stent in his lad artery. They stopped brilinta and have him on plavix now because less risk of bleeding.

 

I dont know if the brilinta caused him to have nasah but I have my suspicions. Not asking for medical advice on this just curious if anyone else was on brilinta when they had a sah or nasah. my reason for writing this is he's been having major severe pain in his lower back and butt and hip area.. also noticing he is having really bad sweats every time he goes to sleep.

 

Has anyone else dealt with the severe pain in lower back, butt and hip area? And have you had really bad sweats when sleeping? What is your story? I'm still really shook up over the whole thing because it happened after being intimate. Any advice, testimony etc would be helpful.

Blessings to all of you and I look forward to getting to know you and any help through this.

-Crystal

[ClareM]

Hi Crystal, I too had a NASAH and had the severe back pain which radiated down my legs. I was told this was the blood dissipating down the spinal column. It passed after a couple of weeks. I'm not so sure about the hot sweats - I was menopausal when mine happened so would have probably put sweats down to that.

 

Check out my profile and you will see my story, I've put the link below   

 

I can't comment on the medication being the cause of the bleed, we aren't allowed to give medical advice. Check out your theories with your Neuro unit and ask if there could be a link.

He's early days so tell him to take it easy, rest and drink plenty of water.

 

I was out running when I had my bleed, but I know that quite a few people here on BTG were being 'intimate' when their event happened, I think it is fairly common for it to happen when you are exerting yourself. Try not to worry too much, the chance of having another NASAH is very low.

 

There are plenty of stories on the site which will tell you how others have recovered well, take a look at them and get your husband to take a look too.

 

Take care and welcome to Behind the Gray.

                                                                                                                                    

 

[Swishy]

Hi Crystal,

 

I too had a bleed with no aneurysm found.  I too had the pain in my back and they said I had blood in my spinal column, mine also went away.  I also had pain in my buttock right side that they thought was the periformis muscle...Perhaps it was also from the blood in my spine, I really am not sure.  

 

I hope your husband finds each day to be a bit better.  It is a slow process and so hard to be patient waiting to feel like yourself.  

 

I did not have a problem with sweats.  

My best wishes to you both

 

xx

Jean

[Rory]

I had a NASAH about 2 years ago, and I also had the back pain radiating down the legs that went on for a couple of weeks. Terrible, but it went away. The headaches took longer to subside, but it all eventually did. I was not on the drug your husband was.

Edited October 19, 2022 by Rory

[JimK]

Hi everyone, I’m recovering from a NASAH experienced while running. I’m about 16 days out from the event. I too am experiencing bad sciatic pain down both legs making sitting and sleeping very difficult. Similar to Crystal’s husband, I feel like my temperature regulation is completely off. Sweating one minute and then cold the next. I saw one post indicating that the sciatic pain dissipated in two weeks. Just wondering if that is generally everyone else’s case? Did the night sweats also go away?

[Skippy]

Hi Jim

 

Please bear in mind that we are all different and so is our recovery - having said that, yes, the back pain was awful and was also told that it was the blood dissipating through the spinal column - the pain is due to the fact the blood shouldn't be where it is.  I don't remember the being hot one minute and cold the next, but since my SAH (17 yrs ago) I've not been able to regulate my body temperature.  I have to physically warm up or cool down - my body can't do it itself.

[SarahLS]

I don't remember the back pain too much , but reading that others have problems regulating their body temperature is reassuring in that way misery loves company.

 

Whenever I ask about this side effect it gets passed over, despite me actually dripping perspiration on the floor at one appointment despite the day not being that warm. As symptoms and side effects go it is bearable but it can be embarrassing and unnerving to be completely the wrong temperature for the weather.

 

 

[JimK]

@SarahLS @Skippy

Thank you for your responses, I really appreciate the insight. So far both doctors that I have been to, albeit not Neuro doctors, have been surprised by my back pain and other side effects. I do wish there was more broad knowledge of the side effects within the medical community. Misery does love company and while I am so sorry that you are still dealing with these side effects, I find your experiences comforting as I realize I am not alone. Thank you. 

[Skippy]

Hi Jim

 

That's generally the problem with SAH and NASAH - GPs don't know enough to be able to help and we end up referred back to the specialists.  There is also the issue of the the number of SAH / NASAH patients who are able to discuss the after effects to widen their knowledge either.

 

You are definitely not alone - and for me realising that was also a revelation that I wasn't going mad and the ailments were real!!

[Esedlock]

Hi Jim. I had a Peri SAH about two years ago and had spasms and pain in the buttocks and down my leg on one side as well. It went away after a few weeks but it was no fun. I found that I had balance difficulty on that side as well. I’ve improved tremendously through weight lifting and mobility work. It’s a process. I am so sorry you are going through this. 

[JimK]

@Esedlock Thank you for your reply. I am now six weeks out and the nerve pain for the most part is resolved, leaving me with headaches, fatigue, and tinnitus like so many others. While I am sorry that so many people went through this, I appreciate all of the information from those that are ahead of me. 

[Esedlock]

I am so glad the nerve pain is resolved. I’ve two years out and things are still changing. I know it can be hard to stay positive but our bodies/brains have amazing capacity to heal and things will improve. We are here for you.