Magal Posted May 16, 2011 Share Posted May 16, 2011 Hi all Maggie here. Sorry to have left it nearly 12 months to come back after joining but I've been trying hard to forget what happened & put it behind me but it just won't go!! To bring things up to date - following my SAH last April I had a fairly reasonable recovery period during that lovely warm summer. However, following a scheduled MRI in September, it was decided I needed more coiling because the neck of my aneurysm was pretty big & the blood was trying to force it's way past the coils. I went back into Frenchay in November for about four days and since then I've felt worse than ever! Whilst I'm lucky enough not to have any visible physical disabilities I suffer from almost permanent chronic head pains. For almost 12 months I tried to fight it with paracetamol & codeine but nothing seemed to work. Things got so bad that I just wanted to end it all and my GP started to treat me for depression but the side effects from the pills made me feel so bad that she stopped them again. I returned to Frenchay a couple of months ago to see my consultant & he says the head pains are coming from damaged nerve ends on the membrane surrounding the brain. Because I had such a large bleed, and blood is an irritant when out of the veins, the nerve ends are giving out the wrong signals. I've now started on a course of Gabapentin which is supposed to work on damaged nerve ends but again I'm struggling to see the benefit past the side effects. Some days are worse than others but I'm getting really uncomfortable joint pains & backache (all of which are listed on the leaflet with the tablets) and at times the head pain seems to get worse. The only time I have no pain is when I'm sleeping!! Everybody keeps telling me it's early days yet but just how long is this going to last? I'm trying so hard to get on with life but I'm beginning to think that it's never going to go away. I've been put on the waiting list to see a neurologist for some counselling but I can't see how talking about it is going to help. I know the physiology is all OK (I've had five MRI scans so far including one just last Thursday) but it's little consolation with the pain! Is there anbody out there in a similar situation this far down the line??? Maggie Quote Link to comment Share on other sites More sharing options...
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