debbie b Posted February 9, 2012 Share Posted February 9, 2012 I would just like to say hello to everyone My name is Debbie I'm 51 and on Dec 29th 2010 i suffered an SAH,coiling failed so a second op a craniotomy was done, a titanium clipp. After the op i was left with Tearson's syndrome and had an eye op to rectify this on my left eye.Whislt recovering in Hull my care was superb the staff of the whole hospital was fantastic, i owe so much to them. Within 3 weeks i was on my way home to Grimsby with all the support and care i had made a remarkable recovery. Since coming home i have had to insist on an appointment as i received no follow up appointment for over 10 months i am still suffering with simple partial seizures and petit mal seizures but am coping ok with these. My GP had to take me off the anti-epaleptic drug as it was making me agressive. Like most of us with SAH getting a diagnosis seems to be difficult , i was told to shut up in A&E when i was in agonising pain My husband was asked if i had been out the night before. Life is getting a little better each day now that i have been taken off my meds. I still get scared when i have a headache and can tell you how many and how long each one has lasted. Sad eh! thankyou for giving me this opportunity to get this off my chest, it really has helped x please excuse text x Quote Link to comment Share on other sites More sharing options...
Skippy Posted February 9, 2012 Share Posted February 9, 2012 Hi Debbie Welcome to the site and to the family. You're early in your recovery so I'll say what to say to all newbies - make sure you drink plenty of water and rest when you need to. It's can be a long road to recovery but you're allowed to make as many pit stops along the way as you want. It seems likes you have had both sides of the op with coiling and clipping. It is very scary at first and any twinge can make you panic. It can be the brain rewiring itself or the blood draining away. However, if you get really worried then get yourself down to A&E - they would have to take you seriously given your history. Make sure you keep pushing for yor follow up appointment and maybe suggest to your GP that they put you on different meds to help with the seizures. Quote Link to comment Share on other sites More sharing options...
paul99 Posted February 9, 2012 Share Posted February 9, 2012 hi debbie welcome to the btg you have done well and i wish you even more happiness for the future i would see your gp and ask for an urgent appointment at the hospital with a nuroligist who speacialise's in epilepsy my lin was given massive dose's and after talking to the epilepsy specialist all anti convulsents have been removed there are diferent drugs which controls the fits if the gp refuse's ask your surgeon to refer you you dont have to be pushed or fobbed off the hospital asking the question have you been drinking is standard for i think most hospitals because sah are so rare so dont think to badly i dont post much now but i always pop in every day take care Quote Link to comment Share on other sites More sharing options...
winter Posted February 9, 2012 Share Posted February 9, 2012 Welcome to BTG, Debbie! You have been through the mill and back! You'll find this site most helpful - lots of great people here who've been through it too, maybe a little different for each of us, but we all seem to share many of the same after effects. Recovery can bring some scary and anxious times because we don't always know what to expect, I certainly felt that way - and after 2 years, I still, occasionally, get those anxious moments. But it does get better as time goes on. It's a process-this recovery thing!!! I hope you or your husband keep after the medical folks for proper follow-ups! It's a shame we have to do that, but it's really important and can help ease your mind. Skippy's right about the water - drink loads and loads! It really does help to be properly hydrated. Hang in there and know you can ask any questions, voice your concerns, rant and rave if you need/want to! We're all here for one another - the folks here have helped me in so many ways!!! Hope to hear more from you Big hugs across the pond, Carolyn Quote Link to comment Share on other sites More sharing options...
debbie b Posted February 10, 2012 Author Share Posted February 10, 2012 Hi DebbieWelcome to the site and to the family. You're early in your recovery so I'll say what to say to all newbies - make sure you drink plenty of water and rest when you need to. It's can be a long road to recovery but you're allowed to make as many pit stops along the way as you want. It seems likes you have had both sides of the op with coiling and clipping. It is very scary at first and any twinge can make you panic. It can be the brain rewiring itself or the blood draining away. However, if you get really worried then get yourself down to A&E - they would have to take you seriously given your history. Make sure you keep pushing for yor follow up appointment and maybe suggest to your GP that they put you on different meds to help with the seizures. Thankyou for your reply x much appreciated x debbie b x Quote Link to comment Share on other sites More sharing options...
debbie b Posted February 10, 2012 Author Share Posted February 10, 2012 hi debbie welcome to the btg you have done well and i wish you even more happiness for the future i would see your gp and ask for an urgent appointment at the hospital with a nuroligist who speacialise's in epilepsy my lin was given massive dose's and after talking to the epilepsy specialist all anti convulsents have been removed there are diferent drugs which controls the fits if the gp refuse's ask your surgeon to refer you you dont have to be pushed or fobbed off the hospital asking the question have you been drinking is standard for i think most hospitals because sah are so rare so dont think to badly i dont post much now but i always pop in every day take care thank you for reply x won't be on much after the 24th losing internet for a while but can use my sisters when i visit x thanks for advice x debbie b x Quote Link to comment Share on other sites More sharing options...
debbie b Posted February 10, 2012 Author Share Posted February 10, 2012 Welcome to BTG, Debbie! You have been through the mill and back! You'll find this site most helpful - lots of great people here who've been through it too, maybe a little different for each of us, but we all seem to share many of the same after effects. Recovery can bring some scary and anxious times because we don't always know what to expect, I certainly felt that way - and after 2 years, I still, occasionally, get those anxious moments. But it does get better as time goes on. It's a process-this recovery thing!!! I hope you or your husband keep after the medical folks for proper follow-ups! It's a shame we have to do that, but it's really important and can help ease your mind. Skippy's right about the water - drink loads and loads! It really does help to be properly hydrated. Hang in there and know you can ask any questions, voice your concerns, rant and rave if you need/want to! We're all here for one another - the folks here have helped me in so many ways!!! Hope to hear more from you Big hugs across the pond, Carolyn thank you for your kind advice especially about being properly hydrated x this is an important issue x 3 litres a day in hospital x thank you x debbie b x Quote Link to comment Share on other sites More sharing options...
Janet Posted February 11, 2012 Share Posted February 11, 2012 Hi Debbie Welcome and glad you managed to find us we have lots of wonderful members who will make you feel right at home and be able to understand how you're feeling. Any question just ask there is always someone around. Quote Link to comment Share on other sites More sharing options...
debbie b Posted February 12, 2012 Author Share Posted February 12, 2012 Hi DebbieWelcome and glad you managed to find us we have lots of wonderful members who will make you feel right at home and be able to understand how you're feeling. Any question just ask there is always someone around. thanks Janet x struggle getting around x not good on comi x Quote Link to comment Share on other sites More sharing options...
Super Mario Posted February 12, 2012 Share Posted February 12, 2012 Hi Debbie, my SAH also left me with Tersons Syndrome in my left eye. It was so bad I was almost blind in that eye. I also had a successful op. Quote Link to comment Share on other sites More sharing options...
debbie b Posted February 13, 2012 Author Share Posted February 13, 2012 Hi Debbie, my SAH also left me with Tersons Syndrome in my left eye. It was so bad I was almost blind in that eye.I also had a successful op. Thanks Penny x i had my op at Hull x they were fab x it is scary x I hope things are better with you x thanks for reply x debbíe b Quote Link to comment Share on other sites More sharing options...
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