Janet Posted May 31, 2007 Share Posted May 31, 2007 Hi my name is Janet I had my SAH in November 06. I found the site address on Brain/Spine Foundation Site. I have visited a few times over the past few days and it has been very reasssuring to realise that there are so many people who can actually understand what I've been going through since it happened. I have also felt abandoned since being discharged from hospital and dispite Walton Neurological being a really good centre they do not have any support groups. So I have felt quite alone but my husband Morris has been a great support to me. My personal experience and treatment was quite frustrating, I had been having occassional intense pain behind my left eye over a few weeks sometimes it was so intense it woke me up but I didn't think anything of it and put it down to stress and too much proof reading at work. It was only when the pain intensified and made me physically ill that I began to think it could be serious. I went home mid shift from work and crawled into bed, couldn't move and the left side of my head was sore. I seen one of the practice Doctors the following afternoon a Friday and explained that I had intense pain behind my left eye but she thought it was Sinusitis and prescribed Sinutab and told me to return following week if no better. However the the pain got worse and my sight in my left eye deteriorated over the cause of Saturday. Morris is a Taxi driver he came home to check on me about 2 a.m Sunday morning and decided to phone NHS Direct as knew that disturbed vision would have nothing to do with sinuses. Described my symptons to their Nurse and she advised me to go to nearest A & E. After spending hours being poked and prodded the Consultant on A & E wouldn't agree to a CT scan until opthalmology had seen me as was convinced it was Glaucoma. We had to wait ages for on call opthal to turn finally did at 8 a.m examined the eye siad it was something pressing on eye from behind and causing third nerve palsy to the eye. A & E then had to authorise CT scan but Sundays are call out services so it was 10 a.m before I could have the scan and they couldn't see anything wrong from it. I was lucky though because they admitted me to try to find out. It was initially thought that I had suffered a mini stroke in the third nerve because of the palsy. On the Tuesday they squeezed me in for an MRI as a visiting Neuro was supposed to lok at the results but he didn't make it over to Birkenhead as some emergency had occurred. The next visit was on Thursday the neuro bloke came over to me on the ward and said he would look at the scans but he just held them up to the sunlight and said he couldn't see any problems but he would take all the films back to Walton so they could study them properly. During my five days in Arrowe Park I had been leaving the ward regularly to wander down to the cafe. On the Friday decided to have lunch in caf but advised the ward where I would be as was expecting to here from Walton, must have spent two hours downstairs and thought better go back up. On arriving at the ward they were all at panic stations looking for me Walton had phoned and advised that it was a annie and to put me on flat bed rest prior to transfer. They had me tranferred within less than two hours talk about scaring the pants off you I'd been doing my own thing since being admitted not realising I had a time bomb ticking away. Once they had booked me in and settled me on the ward Morris and I knew how serious it was because even though it was late they let him stay with me until a surgeon came to see me. Words of comfort from said surgeon were if it bursts tonight you'll feel as though someone has kicked you in the head and we'll whip you straight into theatre if not you'll be seen byyour consultant in the morning. Morris finally went home just after midnight but promised he'd be back first thing. I made it to about 8.30 a.m and had the worst pain of my life in my head I was literally screaming with pain it thankfully subsided and Morris arrived just after it happened never been so glad to see anyone. My Consultant came round shortly after to discuss treatment he said generally they normally do an angogramm but because of my condition he recommended immediate surgery as he could'nt guarantee I'd last til the Monday. to try coiling it. So I had my annie clipped by craniotomy I obviously heal quite well because I was only in the HDU til the following afternoon then xferred to a neuro ward I was discharged the following Friday after having had a further CT scan and an angogramm which showed no further problems. As already said discharged with no follow on support. Had my follow up appointment at about 15 weeks and my consultant has already discharged me did find out though that he had found the annie from the original CT scan I had done at the A & E. I still have quite severe headaches every day but am hoping to go back to work in the next couple of weeks p/t to begin with. Regards Janet. Its a brilliant site so glad I found it. Quote Link to comment Share on other sites More sharing options...
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