Susan McGoldrick-Meerdink Posted December 11, 2013 Share Posted December 11, 2013 I hit my 6 month anniversary from the day it happen and I went to the eye doctor. The Good news from all this…. my eyesight improved! I have been nearly legally blind since I was 8 and now my prescription is less than half of what it was before! So weird!!! The bad…… my body hates me. This fall I contracted viral meningitis which just about did me in. The doctors said it was because I went to Disney for the weekend and my immune system is so weak I should be avoiding crowds, especially air planes , trains and buses. Who knew?? My awful neurologist said "You only asked if me it was okay to travel from neurological perspective. You didn't ask me if I thought you *should* travel." FIRED ON THE SPOT! My primary doctor called the supervising doctor at NY Presbyterian in front of me and cut them to shreds for advising me to travel 4 months after a SAH. So now I have NO doctor looking at my head and I never got my 6 month MRI. To be honest, I am depressed. I've often thought, if it wasn't for my family, it would have been so easy to just "go". I found out yesterday that I need surgery to repair my shoulders….. BOTH shoulders. They have no idea why my shoulders are so torn up inside. I'm not an athlete at all! I'm a couch potato who spent most of this year laying on back with illness. So the great mystery is why my entire body is against me. This started two years ago. I went to the Rheumatologist and had every test in the book. I told them I was in pain… REAL PAIN. I could barely move. My entire body was so stiff and painful. Then in May the Rheumatologist said it was orthopedic because the ligaments were torn so I had surgery on one shoulder. Then I got a staph infection and two weeks later a SAH. Not one doctor has connected the dots that there something systemic in my body wrong. A housewife doesn't tear apart both shoulders and both knees as well her spine and hips from doing laundry!!! My surgeon said I have the body of a professional football or rugby player! (American not UK!)LOL There's that much damage inside. Here's the thing. I know surgery is the only way to fix my shoulders and end at least *that* pain but I'm afraid the next time I will die. 6 months ago my brain responded to all this by exploding. Why would a rational person subject themselves to all that surgery after surviving a SAH????? I think I 'm babbling now. Sorry if this isn't even making sense. Quote Link to comment Share on other sites More sharing options...
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