lise366 Posted January 29, 2017 Share Posted January 29, 2017 Just want to say hello.. Looking really for support and inspiration to make that call to go ahead of the coiling procedure on my 8mm anuysem.. Reading some of the stories makes me feel quite mardy and a bit of a wimp.. I know the only way to get peace of mind is to go ahead.. Just looking for a kick up the bum really lol Quote Link to comment Share on other sites More sharing options...
Super Mario Posted January 29, 2017 Share Posted January 29, 2017 Lise, welcome to BTG. There are quite a few members who have had coiling on unruptured aneurysms. The procedure, as far as I am aware, is relatively safe and recovery a bit faster than if coiling is done after a bleed. There is a possible time bomb lurking, isn't it much better to get it treated than take the risk of a bleed which could have devastating effects? On saying all that it is only normal to be apprehensive. 4 Quote Link to comment Share on other sites More sharing options...
ClareM Posted January 29, 2017 Share Posted January 29, 2017 Hi I can understand you being apprehensive but as Super says it is better to get the time bomb treated than take the risk of the bleed. I think that it is the blood that causes the damage and problems in a SAH, If you can have treatment to avoid this it has to be a better option. Coiling is done by angiogram something I have had done twice. The first time I was unconscious from the bleed but the 2nd I remember, with fuzziness! It wasn't painful and I did feel that the person carrying it out was in total control. Speak to your neurosurgeon or nurse specialist, get some reassurance . There are many here who will give more advice, look forward to hearing from you. Clare xx 2 Quote Link to comment Share on other sites More sharing options...
lise366 Posted January 30, 2017 Author Share Posted January 30, 2017 Thank you Claire and Super!! I met the neuroradiologist last Thursday obviously he had to tell me off all the possible risks of the procedure .. My panic really surrounded my thoughts about my daughter who has a learning disability (aged 28) of what would happen to her if things went wrong. Long term I know I need to make sure I am there for her and the op carries the best outcome for this. I've spoken to many people who have friends and family who have sadly passed away because of anyurisum rupture.. Until now I've not spoken to anyone who has had treatment on their aneurysm so It's good to read the positive stories.. I have a direct phone number to the specialist nurse who was lovely.. I've just gotta make that call as current waiting list is 2 to 3 months.. Many thanks to you both 1 Quote Link to comment Share on other sites More sharing options...
kempse Posted January 30, 2017 Share Posted January 30, 2017 Hi, Welcome to BTG. It's certainly a horrible phone call to have to pluck up the courage to make. Having said that I think you know it needs doing and I guess the sooner you do, the sooner the call will be over. Then, of course there is the waiting for the date of the procedure to arrive which again can cause anxiety - or at least it did with me! My first coiling was following a bleed, so I was grateful for any treatment that would seal the aneurysm - 11 months later I had further coiling and was dreading it. When it was over I was so relieved and felt fine - had it done on a Wednesday and out on Friday. Good luck - you can do it! Sarah 4 Quote Link to comment Share on other sites More sharing options...
Daffodil Posted January 30, 2017 Share Posted January 30, 2017 Some great advice and we do understand the worry . Any operation brings fear and worry and your daughters care adds another dimension to consider but I think Sarah has said it better than anyone, be brave , brace yourself , take a breath and make the call! By having the procedure now you are cutting your risks of a rupture which brings much more of a complicated outlook even after a surgery and of course you yourself know of the greatest risk through your own losses so smile at those surgeons and say thank you very much when can you fit me in? 4 Quote Link to comment Share on other sites More sharing options...
lise366 Posted January 30, 2017 Author Share Posted January 30, 2017 Thank you for your replies.. I know the right thing to do is make that call which hopefully I will make in the next couple of days.. Over that past 18months I've had a few near misses regarding my health which have lead to the incidental finding of the anyurisum.. So someone somewhere is definitely looking out for me xx 5 Quote Link to comment Share on other sites More sharing options...
Winb143 Posted January 31, 2017 Share Posted January 31, 2017 Hi Lise, I had an SAH and it is much easier for you that there is no bleed they have to contend with. Coiling is so much less invasive, but it is natural for you to be worried so worry away xx Good luck and when is op ? All will be okay. xx Keep Strong Win xxxx Quote Link to comment Share on other sites More sharing options...
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