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Just want to  say hello..  Looking really for support and inspiration to make that call to go ahead of the coiling procedure on my 8mm anuysem..  Reading some of the stories makes me feel quite mardy and a bit of a wimp.. I know the only way to get peace of mind is to go ahead.. Just looking for a kick up  the bum really lol 

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Lise, welcome to BTG.

There are quite a few members who have had coiling on unruptured aneurysms. The procedure, as far as I am aware, is relatively safe and recovery a bit faster than if coiling is done after a bleed.

 

There is a possible time bomb lurking, isn't it much better to get it treated than take the risk of a bleed which could have devastating effects?

 

On saying all that it is only normal to be apprehensive.

 

 

 

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Hi

 

I can understand you being apprehensive but as Super says it is better to get the time bomb treated than take the risk of the bleed. I think that it is the blood  that causes the damage and problems in a SAH, If you can have treatment to avoid this it has to be a better option.

Coiling is done by angiogram something I have had done twice. The first time I was unconscious from the bleed but the 2nd I remember, with fuzziness! It wasn't painful and I did feel that the person carrying it out was in total control.

 

Speak to your neurosurgeon or nurse specialist, get some reassurance .  There are many here who will give more advice, look forward to hearing from you.

 

Clare xx

 

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Thank you Claire and Super!!

 

 I met the neuroradiologist last Thursday obviously he had to tell me off all the possible risks of the procedure .. My panic really surrounded my thoughts about my daughter who has a  learning disability (aged 28) of what would happen  to her if things went wrong. Long term I know I need to make sure I am there for her and the op carries the best outcome for this.  I've spoken to many people who have friends and family who have sadly passed away because of anyurisum rupture..

 

Until now I've not spoken to anyone who has had treatment on their aneurysm  so  It's good to read the positive stories..  I have a direct phone number to the specialist nurse who was lovely..  I've  just gotta make that call as current waiting list is 2 to 3 months..  Many thanks to you both 

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Hi, 

Welcome to BTG.

It's certainly a horrible phone call to have to pluck up the courage to make.  Having said that I think you know it needs doing and I guess the sooner you do, the sooner the call will be over.

Then, of course there is the waiting for the date of the procedure to arrive which again can cause anxiety - or at least it did with me!

 

My first coiling was following a bleed, so I was grateful for any treatment that would seal the aneurysm - 11 months later I had further coiling and was dreading it.  When it was over I was so relieved and felt fine - had it done on a Wednesday and out on Friday.  

 

Good luck - you can do it!

 

Sarah 

 

 

 

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Some great advice and we do understand the worry . Any operation brings fear and worry and your daughters care adds another dimension to consider but I think Sarah has said it better than anyone, be brave , brace yourself , take a breath and make the call! 

 

By having the procedure now you are cutting your risks of a rupture which brings much  more of a complicated outlook even after a surgery and of course you yourself know of the greatest risk through your own losses so smile at those surgeons and say thank you very much when can you fit me in?  

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Thank you for your replies..   I know the right thing to do is make that call which hopefully I will make in the next couple of days..  Over that past 18months I've had a few  near misses regarding my health which  have lead to the incidental finding of the anyurisum..  So someone somewhere is definitely looking out for me xx   

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Hi Lise,

 

I had an SAH and it is much easier for you that there is no bleed they have to contend with.

 

Coiling is so much less invasive, but it is natural for you to be worried so worry away xx

 

Good luck and when is op ?  All will be okay.   xx

 

Keep Strong

Win xxxx 

 

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