Concerned

[sonia]

Hi All,

 

Thoughts please.

 

I had reason to ask my doctor for a letter about my medical record. It stated about my two aneurysms being stabilised following the embolization procedure. It then went on to say, that I have a remaining smaller aneurysm which remains under surveillance a cerebral aneurysm was embolised..  I am totally confused by that comment. I was never told there was a smaller one. I had the second Annie sorted in 2011 had a MRI scan done 2 years later all being fine. They discharged from their care.

 

All that was ever said to me was if I ever felt unwell then get in touch. I feel fine, but can't get this out of my head now after reading it. The thought that I am not under any surveillance. Maybe it means just what they said to me on discharging me if I don't feel well get back in touch. I just don't know. I really just want to file the letter & go about my daily life. Thanks for reading my post& for being here. I always remember how I found you all just before I had my second Annie dealt with. All the support positive messages you gave me so grateful to this day. I made so really good friends on here.. Sorry if I seem over the top with my post, Thanks

 

Happy Days

Sonia xxx.

[kempse]

Hi Sonia - I think I would be confused too in that situation.  I imagine if you just file it, it will keep cropping up in your mind which is why I would be inclined to get to the bottom of it - either via your GP or direct to writer of the letter, especially as the letter states you remain under surveillance, but you're clearly not.

 

I coincidentally found out that I had a 2nd aneurysm by chance while I was at a doctor's appointment - he was reading a letter from the hospital on his computer and when he'd answered my questions, I asked if there was anything else in the letter that I should know about.  Not for a minute did I expect him to say I'd got another aneurysm.   I've been under surveillance since my bleed in 2008 although having said that, I would be monitored with or without that second one as the one that ruptured has a wide neck and it is in a relatively rare and challenging spot.

 

I hope you go for clarity so you can continue your daily life without it lingering over you,

 

Take care,

Sarah

 

 

[sonia]

Thank you  Sarah for your reply. So much so I am going into my doctors in the morning to see about seeing someone concerning this matter. I need it cleared up one way another.

Sonia x

[sonia]

Hi Sarah,

Just come back from my doctors, she checked all my notes letters & the MRI scan about my Annie treatment & results. There was no mention of a remaining untreated Annie or that I was not under any such surveillance.

She agreed that the letter was not correct. So it has been rewritten.

States...... Review of notes & letters from neurology show that there is no untreated aneurysm & further surveillance ceased .Neurology appointments concerning blepharospam continue. every 4 months. The doctor quite understood why I would feel concerned about the way it was written

 

As I have to have injections in my eyelids every 4 months then she mentioned that she was sure if I had a problem I would tell the Neurology department that I attend.  I certainly would do.

Thank you again Sarah for your support just needed that Push to sort it.

Love Sonia xx

 

[Tina]

Hi Sonia, lovely to see you  

So pleased that you went to the Dr as Sarah suggested. Glad the letter was re written and you got your peace of mind, bless you xx

Take care

Love Tina xx

[Winb143]

No need for stress now Sonia  xx 

 

Glad you went as it has put mind at ease and we do not need worry 

 

Be Well 

 

WinB143 xxxx

[ClareM]

Glad to hear you got things cleared up Sonia xx

 

Clare

[kempse]

So glad you got the reassurance so soon Sonia - it makes all the difference.    

 

Take care, 

Sarah