KeithH Posted September 5, 2008 Share Posted September 5, 2008 As I stated earlier I was introduced to the OK Stroke Club, this turned out to be a very positive move, and in my opinion just knowing you’re not alone helps. I would strongly advise any stroke survivors and their carers to access such groups. At first I was very hesitant as my confidence was at an all time low as I walked through the doors, not knowing what to expect. There was no need to worry as I received a warm friendly welcome, and there were friends I had already met at Duet, in fact it was one of them that suggested I came along. That was over nine years ago and I am now Secretary of the OK Stroke club. I have also found time to help set up four more stroke clubs/groups, and compile a monthly user friendly Newsletter. The group split into two, a group of people decided that they felt there should be better care in the area and that was the start of a much appreciated and successful campaign. The Campaign Group The Hull and East Riding Stroke Survivors' Forum, was renamed Strokewatch, which was an offshoot of the OK Stroke Club. Through campaigning and a petition to Parliament the group succeeded in raising awareness about the urgent need to improve stroke services in Kingston upon Hull and the East Riding of Yorkshire. In just over a year the group along with some very dedicated NHS staff was responsible for the implementation of the Fast Track TIA Clinic, Acute Stroke Service on ward 110 at Hull Royal Infirmary. The groups are run entirely by local stroke survivors and carers and are regularly consulted by service providers and other agencies on the planning, monitoring and further development of whole stroke services. We still campaign for better stroke services in Kingston upon Hull and the East Riding of Yorkshire. We also provide information and support to people who have had a stroke, and their carers. Further information can be obtained by visiting www.strokesurvivors.co.uk You will find lots of other relevant information about stroke, on this easy to use site, including the NHS Annual Stroke Reports in full, stroke survivors and carers’ personal experiences and links to other useful sites relating to stroke and disability groups. Being a founder member of Strokewatch, myself and five other fellow Stroke Survivors still have a meaningful say and contribution to the whole stroke service. As members of the “User & Carers Representative for Stroke Hull & East Riding Stroke Service” we liaise directly with the Nurse Consultant for Stroke and her team, giving much valued, constructive and meaningful input to the Stroke Working Group Meetings. We also visit Care Homes and Rehab Wards on request, give talk to stroke groups, student nurses and social services students, we find this very rewarding. We offer empathy, understanding, friendship and a friendly ear to Stroke Survivors, Carers & Family Members. The aim being to help strokesurvivors’ and carers’ to improve their conditions and quality of life. This is something I never imagined or thought I would be able to achieve in the early stages of my recovery, but with lots of help and determination I have succeeded. My last entry which I will submit shortly will sum up all my achievements since my stroke. Or will it be my last entry???? Take care all Keith Henman Fellow Stroke Survivor Quote Link to comment Share on other sites More sharing options...
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