SarahLS Posted May 18, 2018 Share Posted May 18, 2018 I had my NASAH in December and from reading the stories on here I have been very relieved to know that much of what I am feeling is common to other people but as I have noticed my mental health suffering recently I thought I would take the plunge and join the forum and share my story. At the start of December I needed emergency dental treatment and while the dental anaesthetic was being injected I started to feel very ill, excruciating headache, loss of hearing, nausea, racing pulse and then vomiting. The dentist was very calming and I stayed on the treatment chair for a few hours until the pain subsided and I could get home. I suffer from migraine and new this wasn’t a migraine but the dentist reassured me that she had seen this reaction before and it was all okay. The next day I was washed out but generally fine. The next day out of absolutely nowhere another headache hit and my husband was so worried that he called the NHS 111 number and they immediately sent a paramedic. She was on a pushbike so on looking at me decided I needed to go to hospital and arranged for an ambulance. Once in the hospital I was sent for a CT scan which came back normal. I was admitted to a general neurology ward overnight as a precaution. The next day (a Saturday) I saw the neurologist and he performed a lumbar puncture. This also came back clear and so I was discharged. 14 hours later I had another one of these headaches – the worst so far and ended up back in A&E. The same neurologist was on duty and came to see me, he thought at this stage it was nothing more than a run of thunderclap headaches (it had been a stressful time at work) and gave me stronger painkillers and an antiemetic. A relative died from a brain haemorrhage in the 1980s and there is a history of high blood pressure in the family so ”just to make sure” I was booked in for an MRI. I had a fourth thunderclap 4 days after this. The day after having this scan my neurologist called me in for an appointment that same day. The MRI had shown a large bleed on the front right side of my brain when nobody was really expecting to see anything. This was now over one month after the first symptoms. I’ve now had 2 further MRIs and the good news is that the area affected is reducing and no other problems were noted so it does appear to have been a freak happening which either was caused by RVCS or that caused RVCS…however my recovery seems to have stalled. I was known within my family for having a great memory which has now gone and worse still as part of my job is as a book reader and judge for certain book related initiatives and prizes I am still unable to concentrate on narrative fiction. My problems with reading improved greatly at first – in December/ early January I couldn’t read anything longer than a tweet and now I can read essays/diaries and short stories but nothing more. This hasn’t really improved since February but isn’t being taken particularly seriously by my GP or neurologist. Before I fell ill I was reading 3 or four books a week, this is now 1 or 2 a month… I was off work from December until mid-March and am now back at work on limited hours. I am lucky in that my work place & boss are so flexible and allowing me to recover at my own pace, but I sense that their patience is running out. I still have the same niggling headache I’ve had since the last major thunderclap (5 ½ months of pain is very tiring as I am sure many of you can relate). I also have terrible fatigue, poor concentration and memory plus at times of stress/tiredness I have trouble finding the right words. These are all invisible symptoms and I think harder for people to understand, there have also been a few issues with sickness and protocols surrounding a phased return plus a reluctance to involve the in-house occupational health team. Apologies that this first post is so long, it has taken me a long time to compose and type. I realise that in the grand scheme of things I am incredibly lucky – I didn’t need surgery, it is thought that I am only 2-5% more likely than the general population to have this happen again, and I am better than I was. However I feel like I have stalled in recovery in the past few weeks, and even slipped backwards – the headaches have worsened, as have my concentration levels and fatigue. A balance between work/life/health just seems impossible at the moment. Link to comment Share on other sites More sharing options...
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