Kathy Posted July 16, 2018 Share Posted July 16, 2018 Hello.Thank you for this site. I have read many of the posts. It has been so helpful. I had my SAH on March 6, 2018. I was in the hospital until April 13 (39 days). I am 60 years old. I was on the phone when I felt the severe headache and darkness from back to front of my head (my memory). I fell to the ground but was conscious. My husband heard me fall and came. My speech was slurred. I told him "stroke" and "Get to ER" ~ I don't remember what followed (or first 4 weeks in the hospital). He called ambulance. I was vomiting and had incontinence. CT indicated massive bleed (SAH). It was determined aneurysm by the pattern, sudden onset and amount and location of bleed. However, 2 hospital angiograms and 1 post discharge angiogram could not locate any aneurysms or point of bleed. In the hospital I had a ventricular drain catheter inserted and treatment to prevent vasospasms. I also had hydrocephalus and leg blood clots developed (IVC filter placed and removed 30 days post discharge). In the hospital I also had lumbar puncture drain. I had weakness on my left side but no paralysis. I was scheduled for shunt placement surgery, but late the night before the neurosurgeon said pre-op tests indicated improvement. No shunt. Double vision but okay now (still need to see eye doctor for new prescription ~ changed). My youngest daughter is a nurse and was so helpful during my hospitalization. Our four adult children and their spouses took shifts during the day and late into the evening to be with me. At discharge I was still fairly weak and was told that I had to have 24/7 supervision (concerned about falls). We hired home care assistance for one week but then I wanted to be on my own (it was very expensive and not covered by insurance). I continue recovery with specialized PT, OT and Speech therapy (for mental deficits). I am doing well overall. I struggle with the "new normal" and have trouble knowing how to pace myself. I still have constant headaches, some short term memory loss (and we have discovered that I also have some long term memory loss), trouble with multi-tasking and math computation. Occasional confusion, balance problems and fear / anxiety. I get tired so easily. My husband (he has been wonderful) had just started a new job a couple months before my event that requires much travel. Life is demanding for us as we are raising 2 special needs children (boy age 8 Autism / ADHD and girl 15 Intellectual Disability / Autism). We have four adult children and four grandsons. I also used to teach part time. That is on hold for now. It has been an emotional roller-coaster. My mother passed away soon after my discharge and I was not cleared to attend her funeral out-of-state. There was a miracle in that my mother had been in a comma for almost a week, came out of comma and spoke to me while I was in the hospital (she had Alzheimer and didn't recognize me a year ago) ~my mom was completely aware and lucid and knew who I was. It was a wonderful gift. She passed a few days later. The latest "shock" is that my post discharge MRI / MRV showed that I have cerebral vein and cerebral venous sinus thrombosis (blood clots in brain). I am now on blood thinner and have repeat MRI/MRV on August 1, 2018. I have been told I am a walking miracle (survived SAH without repair and few disabilities) AND I am a walking time bomb. I could have blockage stroke or another brain bleed. I know that this site does not offer any medical advice, but has anyone had blood clots in the brain post SAH? Review of all images shows blood clots not present at admittance to hospital. I am now seeing a hematologist. Testing whether I have any "acquired" or genetic blood clotting disorder. I am a Christian so believe that my life is in the hands of my Creator. It is well with my soul. However, it still is a bit scary. Again, I am thankful for this place where I can share and learn so much. Link to comment Share on other sites More sharing options...
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