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Everything posted by Kathy

  1. Welcome. I am from the States, so emergency medical serivce may be different ~ but, with covid there are changes. I am so sorry you were alone through the onset of your medical emergency ~ it always helps to have someone there to advocate for a person and be a source of support. Glad you have been released and now in recovery. Don't be too hard on yourself. It is most important to let your brain "rest" and drink lots of water. Follow dischange instructions. It takes awhile to return to a regular routine, and for some of us we cannot return at the pace we had
  2. Okay, this is a late post to my third year post SAH anniversary. Hurray. It was actually on March 6 and now it is (let me look at a calendar) March 17th (a pinch to all not wearing green). Our youngest two adopted children (we also have four adult children) are on Spring Break from school ~ not so spring weather-wise. We had a BIG snow blizzard a couple days ago. Lots and lots of shoveling. My eleven year old was upset that we didn't get to travel again (usually we travel over school breaks) and so my husband took him to a nearby hotel with a heated pool to celebrate. That worked.
  3. Hello Daff ~ happy 9th post SAH anniversary. I read your blog. Now, I know why Daff (at least, the poem suggests). WOW. It is something when you don't check in regularly on BTG and then when you do ~ everything you "catch up" reading speaks right to you! A "divine appointment" sort of thing. I have struggled on and off since my SAH and at times don't like the "new me" in the "new normal" BUT your blog hit a chord. I am a type A personality and control freak. Not that I didn't already know it, but I didn't connect how much it is interfering with my post SAH progress. I am a person o
  4. Belated hugs on six years post SAH, Claire. Well, I am impressed that you are running again. That makes me want to get up and at least walk more. : ) In the States we have a saying about your first year of college ~ and, gaining 15 pounds. Well, my first year of COVID has been like that. I have gained several pounds.Okay, so I need to just get out and put on foot in front of the other ~ right? I hope you had a good run. I like how you say "it is different" ~ it is so true for me and I am still learning that it is good. Thanks for your encouragement. Kathy (Colora
  5. Belated congrats on your 17 years post SAH. Funny how I feel I know so many of you in such a short time and we have never met. Thanks for your posts and encouragement. Yes, I am looking forward to more opportunities opening up for travel. Although, our family has enjoyed more of just being outdoors around our home area. Well, not in the last few days as we had a record snow blizzard! Love to you, Kathy (Colorado)
  6. I had a headache in the back of my head for almost 3 years post SAH. The neurologist always dismissed it and said it was expected (something about agitation from the residual blood). Long story, but my oncologist recently suggest physical therapy (PT) for the pain. She wrote a prescription. I was doubtful but decided to give it a try. My pain felt like a tight stretched band across the back of my head. After PT sessions twice a week for about 8 weeks ~ I actually had relief. I was amazed! The exercises and neck and spine manipulations really did help. I am just throwing this out a
  7. Sorry for the delay, but Yippee ~ it is over! I hope that during the rest of your day you were able to relax. I also was given the choice to listen to music or have ear plugs during several MRIs ~ the music never was loud enough. So, I always ask for ear plugs now and it does help. You did well. 👍 Kathy
  8. I am just reading about dear Macca. My deepest condolences to his wife and family. His words were always so kind and encouraging. His words certainly brought strength to me on my SAH journey. Hugs to all the lives he touched. Kathy (Colorado)
  9. Yes, I never thought I was claustrophobic until I had my first MRI (before my SAH). I freaked out. I pressed the button and yelled “Get me out now!” They did. I told the technician that it felt like I was being buried. He sorta smiled and told me to look through to see that it was open at the other end. I felt very embarrassed, but he assured me that it was a common feeling. He was very helpful. He asked me what was my biggest fear. I said ~ that I wouldn’t get enough oxygen. He said, okay we can help with that fear. Then, he brought oxygen tubing and positioned it right near on my
  10. Hello Alec. Yes, recovery is a process and it takes time. I am glad to read the progress you have made even if not completely back to your old self. I don't know if we ever get that back completely. Part of recovery for me is accepting a "new normal" and continuing to grow and learn. Things are not as they used to be. I think I am more prone to mood swings and irritability. I still get tired easily and have to take naps. But, life is good. I appreciate family and friends who take time to connect with me and are patient with the challenges I continue to encounter.
  11. Thanks for posting. I am so sorry for your loss. Yes, a sad but beautiful love story. It looks like your children are a great support. Continue strong in your recovery. Best wishes. Kathy
  12. Congrats on the post SAH five year mark. Good to hear your honest summary. I also find my experience a balance of gratitude and learning to accept a new normal. I am more irritable lately, but I think isolation during safer at home restrictions may be contributing to my moodiness. Yes, I agree that SAH brought lessons on empathy and compassion. Best wishes in your new career. ❤️ Kathy
  13. Thank you for the cheers! I appreciate each of my BTG friends ~ and wouldn’t have made it through some of those most difficult days (and there still are “those” kind of days at times) without this network of support. Blessing to all of you. ~ Kathy (Colorado)
  14. March 6 is the day. It feels like a lifetime ago (so many changes) and yet, also only like it happened yesterday. I am just now starting to adjust to the "new normal" and taking more command over my emotions. My faith has kept me hopeful. I am thankful for my family, friends and BTG folks who have surrounded me with prayers, support and love ~ and patience. It's been a difficult recovery. I think more so because during this time I lost my mother while I was still in the hospital (April 2018), my father this past November 2019 and my aunt (mother's sister) just on February 15, 2020
  15. My dear, I understand. I was in the hospital during my birthday with the initial SAH and then the following year with severe vertigo and vomiting. I was so worried and frustrated. Everything checked out okay. After a similar episode, they sent me to an ENT. They diagnosed it “vestibular migraines”. But, like you ~ I have been a bit low lately. Unfortunately, this can be an outcome of the SAH. It is good that you are getting counseling. And, it helps to vent and hear from others. I might guess you are an over-achiever like myself. You don’t feel validated or given affirmation witho
  16. Hello Sallios, Yes, I had really bad balance problems initially. I had to use a walker and then a cane as I improved. I had about 3 months specialized PT and that helped. Learned some tricks to help ~ like focus on one point while turning and then focus on another point to complete turn (don’t move head to follow turn). At 20 months post SAH I don’t use a cane, but have some odd days when my balance is a bit off. I usually have to slow down or hold on to my husband’s arm. Now, I also get some dizzy spells (nausea and vomiting) and headaches ~ different than being off b
  17. Thank you dear Win. I had another painful episode last night (back lower left head and jugular) and dizzy, but it subsided in about 30 minutes. I had to sit down. I worry the doctors are missing something ~ clots moving or increased blood pressure on a thin wall or small TIA (have no idea) ~ probably worthless to speculate. We are having another cold front move in. Concerning~ but we can’t live in fear. Thank you for good wishes for my dad. He is holding steady though weak. Thank you for your kindness.
  18. Welcome to the site Jo-Anne. I find it very helpful to read the posts. I think the older we are at our SAH event ~ the more problems show up (that’s just my opinion). Maybe it just takes these older body / brain parts longer to mend. I am glad you wrote in and I know you will find a supportive and understanding group of fine people to interact with and who will encourage you. Yes, the headaches are a bummer. Drink plenty of water and take naps. Blessings. Kathy
  19. Hello, I just wanted to thank you for responding to my post and to give an update (somewhat delayed). I ended up going to the ER (at the insistence of my younger daughter ~ a nurse). We had already met our deductible so that helped. They did MRI and MRV and found no changes. So, they sent me to ENT and that doctor gave me medication for dizzy spells and told me most likely vestibular migraines. My primary care physician also adjusted my blood pressure medication (had been lowered, now back up 1/2 tablet). I am feeling better. I am reminded that I need to rest more.
  20. Hello Sunflower 25 I am so sorry for the on-going worry ~ especially with 2 small children. I am 20 months post SAH and older (62) but have 2 special needs children we are raising ~ after raising 4 children to adulthood and now have 5 grandchildren. The most important for me (and I would guess for you also) is to get in that afternoon nap. If you can make arrangements for someone to watch the kids every day while you nap (2 hours time), that would be great. It would also be a daily "check-in" to give you some peace of mind. DON'T do housework or laundry during this tim
  21. It has been a few months since your post, but I just came back to Behind the Gray today (almost 20 months post SAH) and appreciate your open rant. It helped me to see your transparency and to read the encouraging replies. I hope you are feeling better and thanks for being here. It does matter. Hugs, Kathy
  22. Hello friends, It has been awhile since I have checked in (from Colorado, USA). I missed my one year anniversary SAH on March 6, 2018 ~ and, was actually back in the hospital on March 31, 2019 (second year in the hospital on my birthday) with severe vertigo and vomiting. They took images and determined not related to SAH or other brain issue, which I developed post SAH mid June ~ (intracranial left transverse and sigmoid sinus thrombosis ~ clots stable). I was released and everything seemed resolved. Now, October 28, 2019 having dizzy spells for the last 4-5 days with dull headache
  23. Hi Annie, I am also a Newbie (6 months post SAH). And, I am a grandma. I know what you mean about the constant feeling of tiredness and wanting to play with grandchildren. It is funny ~ but now my grandsons know that if I come over I usually end up on the couch for a quick nap. One or two will usually join me for part of the time (twins 6, another 7 and oldest 8 ~ all boys). Like Super Mario ~ I have learned to focus on a fixed point and turn my head slowly to another fixed point (learned this in PT) ~ it does help. Again, the "no energy" thing is a bummer. I am the old lady you se
  24. Hello Trish, I am sorry for your difficulties. I did not have a shunt or seizure, but in the hospital I had double vision (now 6 months out it has resolved). I have had a feeling of eye discomfort and always dry eyes since the SAH event. My vision did not seem as good, either. And, it does seem worse with cold or sinus issues. I recently went to the eye doctor and he said I have the beginning stages of glaucoma in my left eye. I have a follow up appointment. So, good that you are getting it checked out. I am 61 years old. Family history of glaucoma. I have a personal opinion
  25. Hope you had the energy to go out. Glad you have the year behind you and are pressing onward. ~ Kathy
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