about my 1st Brain haemorrhage

[Guest charudeepi]

Dear All

Greetings

I am Charu. Just registered.

please reply. Its really very importatnt.

I strongly feel I had a BH. but no one believed it and all said i am just in a depression. I said my head is going to burst. but all thot i am going mad. i was loosing skin sensation, i did explain, but I wonder why my father dint bother to spend money on a mere CT scan. i asked him a lot. he instead took me to a psychatrist to show what happened to me all of a sudden.

Actually my BH happened soon after an exam and interview which i could not clear. So all thot i am feeling bad about it. but it was all physical. notthing was emotional. Now its been almost 3 years, i could feel that i recovered in 6 months wihout any medical treatment but taking some homeopathic medicine, mainly which controls nervous system , then wihout any treatment i was sent outa my house for a job, as all thought that I needed a change. but i always had that pain at the back side of my head but seemed like the blood dried and it was not such a massive BH which could hv left me paralysed. however ,i am 100% sure that it was a BH. during that unbarable pain, i could feel the blood flowing over brain surface and dripping down my back side of the neck. which caused a sever CURRENT like feeling all over the body (due to the effect on nervous system coz of artery rupture in brain). I wanted to know --when one experiences the SAH pain in her/his head the very 1st time, does he/she also experiences a very severe CURRENT all over your body (due to effected nervous system)?

I am a kind of person who doesnt speak out her pain unless something slips outa my hands. So initially i thought its just a very bad headache at the CENTER of my head, so i waited for a day, then 2nd morning i got up, my head was like - someone is hammerring inside. and the pain was like, i could hear heartbeat in my ears. as if something is going to burst from my ears. 2nd day i told my mom about it , she said i am thinking about my interview thats y i got headache. then i told them its been a day. and during sleep also my head from inside was banging. a thundering effect inside the brain.

I i have read a lot about the symptoms i had when i got that pain, and which was there for 3 days, until i started taking that homeopathic medicine which made my head pain lesser than before, but still my head felt like i have no sensation. I wanted to sit in dark. i had speaking problems so i kept quite, all thot i m sad so dont wanto talk, but i WAS UNABLE TO TALK, no one believed me. i told my father some is seriously wrong but he dint beleive.

i hv read enough about it now - more than enough. I am alright today. but not completely. AS i know enough, i also know that i can face a 2nd bleeding if the situation of high BP or high tension arises. I am soon going to do a CT scan without telling anyone, coz no one will believe me again (its strange i know). and i am 100% sure i will get the traces of 1st Brain Haemmourage.

Oh yes my personal website is http://www.outstandingorange.com . I am a programmer. doing MSc in IT management from Univ of Edinburgh.

I was always a topper in school and got many scholarships. I simply feel if i have the capability and the medium to work on this serious issue through internet. why not.

please reply

Regards

Charu

[myratas]

Hi Charu

Welcome to BTG, I am sorry that you had to go through all this all on your own and no one believed you.

There is the classic sign of haemorrhage of headaches but other symptoms due occur and is different for each person. I remember the headache and the constant vomitting and deliruim and it was confirmed of a brain haemorrhage after the CT scan and had to be operated later on during the day.

I did have weird sensations as you mentioned, that it felt like a current, I had those feelings a few weeks later.

I am a great believer in homeopathic medicine but I really think that proper medical help is needed if one has a brain haemorrhage.

May I ask when this all happened, I am asking you this because you may have a lumbar puncture this will tell if there was a bleed in the brain and then you can have the appropriate treatment.

I do wish you well and that you are able to sort your medical problem, we are always here for you, it's like a family here so feel free to come back anytime.

Myra xx

[Anya]

Greetings to you Charu!

You are certainly a high achiever, studying your Msc IT at University, so I must congratulate you on your achievement.

The symptoms you describe (severe head pain, dripping effect over brain, loss of speech, sensitivity to light) may well be indicative of a brain bleed and will hopefully be picked up by a ct scan. It would be hugely important to resolve this to help you re-focus, to move on, and to know that your brain is now ok. I appreciate, as a student you undergo a huge amount of stress during exams etc, therefore it is important to keep a watch on your blood pressure and to try & rest when you do feel extremely stressed and tired. I would mention your health worries to your course tutor; and explain you will be having a ct scan. You haven’t mentioned whether you’ve seen a doctor (gp) here and what he supposes. I think this would be crucial.

I imagine you are very young, With youth on your side, you have made a remarkable recovery and this is a blessing! I most certainly understand your concerns with wanting a diagnosis and whether there may be any further concerns. Karen, who set up this wonderful website, had a similar experience when she had her first bleed. I am sure you will hear from her when she reads your post.

Meantime, unless you are suffering further symptoms which need urgent medical attention, try to remain calm and focused. Again, you have done extremely well to have managed to study such a complex course and I really wish you all success in completing it. Keep us updated on your progress.

Kind Regards

Anya

[Guest charudeepi]

thanks a lot anya for this prompt reply. I am really shocked to see that i could not find even a single case of BH whos alive without any treatment.

And here i am. No one in my family can believe in something called BH i feel. But i have an elder sister who really helped me with all this, still she also felt i was in a depression of some kind. she used to note down all the symptoms to be shown to a neurologist. they said theres some kind of chemical change in my body. I asked my father to go for a CT scan, he said what if there comes out nothing, money will be wasted. i know its very cheap, but he spent even more money on doing other things except for a scan.

anyways, i am working and studying now. I never discussed it with my family again after that. but i had been reading about it on the internet since may 2004, I dont remember the date, because it just went on and on and I felt i will die as something will burst in my head.

and when i used this statement "I will die"...all thought i am a disheartened and down person who is feeling so low that she will die. but my idea of saying that was I will die coz of this thunder in my head.

Honestly I myself could not believe that I can have something so severe. IT took me 3 days to say that i will die because of this pain. On the 3rd day of my pain, i had 100% belief that on the 4th day there will be end to this pain and my head will burst. But on the 3rd day evening, my father took me to a homeopathic. i told him symptoms and he also said its a brain hammeorage, and gave me (N.....) , Its a very common word, its mainly drugs taken by drug addict, but if taken in less quantity as he prescribed, it suddenly after 1st dose stopped that banging effect, but the pain was still there, my body used to shiver. I wanted to always be alone as i couldnt stand or walk. i dint wanto talk as my WAS UNABLE TO TALK, which no one believed. I was in such a bad state where nothing seemed to happen to others but my life really shook. it was a turning point of my life, where i had thout i wont survive. I now understand y ppl die of carelessness and ignorance.

[Guest charudeepi]

thanks a lot dear. I have replied to the last post. i have mentioned when it happened. but I feel it was a minor one, which left me alive. but it was a still the worst experience of my life. the sadest part is, no one knows what i went though and if i ever say it was physical, all think I am justifying my depression.

thats how i decided to go for a CT scan now after almost 4 yrs. At least if i face something like that again, I have a proof to show what happened to me the 1st time.

I also have sinus problem. May be that was one of the reasons of this. Now I feel a not kinda thing at the center of my head as if The blood is dried up. also i feel theres no oxygen flow in that particular area. i can feel the pressure on my ears when i jog for a long time. Its at the center of my head. It took me 3 years to find out what had happened to me.

Please read my other reply also. thanks a lot. I will come by with my CT scan report. I wish nothing is there. but i strongly feel.

I just wanted to know if its possible to stay ok (with a blocking pain in head) after 4 years of first bleeding in brain???? was thre any such case in the past?

[Guest charudeepi]

I am also getting married on 27th feb. I am an indian. after marriage i will live in NY with my life mate whos my 4th grade classmate. He loved me since our childhood, now we r marrying. I havent told him anything. I know he will believe me and will support me. also he will be tensed to know this now, when his family and my family are preparing for our marriage.

I wanto go for scan 1st and then do somehting. if very serious. this week sometime.

thanks a lot. pls ask karen to read this and help me.

[jess]

Hi there after 4yrs there is a chance of nothing showing up on the scan, I would say you are relatively safe now it sounds like you may have had one of those unexplained brain hems that heals itself if it was a brain hem, sorry it was not alot of help but I don't know what it was. Jess.xxx

[Guest charudeepi]

but i wonder how can a BH heal by itself? its not an external wound. also if it dries by itself. there are chances that it may bleed again due to some pressure of any kind. i feel i am writing too much here, but i really wanto know what i think is right.

[jess]

I am really sorry but I had an aneurysm so I had it clipped however I have read in a few places spontaneous bh where it heals itself is fairly safe and unlikely to happen again. There are one or two people on this site that it has happened too. Jess.xxx

[Karen]

Hi Charudeepi,

Sorry to hear your plight .....

As much as I always like to help, I am no expert in this field and nobody on this website is medically qualified to offer a medical opinion or diagnose ...... we can only relay our own experiences of a SAH and how we're dealing with our recovery and offer support to those going through the same.

I had a probable warning (sentinel) bleed about 3 years prior to this SAH ..... unfortunately, I didn't have a MRI scan until about 8 weeks later and this scan didn't show much up ..... I was told that I could have had one or might not have had one. MRI's aren't the best for showing up aneuryms ...... but most of this information, I found out later, after having the next bleed. I was told that a lumbar puncture would have been better, as blood shows up in the spinal fluid for quite some months. I'm presuming that a blood clot was holding my artery together for the next few years, until I had this SAH and the artery had ballooned more .... I'm not an expert and can only draw my own conclusions from my own experience.

As Jess and others have pointed out, there are people on this website that have had non-aneurysmal SAH's (where no cause has been found) and I believe that the prognosis and recovery is good. If you do a search on this website (top right hand corner of your screen) and type in "non aneurysmal SAH" it should pull up all of the existing posts on the forum and these may be of help to you.

If you're worried and are able to have a CT scan, then perhaps this would help put your mind at ease. If you can, then speak to your Doctor and relay your fears to him.

There is another website that might be worth you looking at, as they have qualified Neuroscience Nurses that would perhaps be able to help you... http://brainandspine.org.uk/ I think that as well as having a telephone helpline that you are able to contact them via email.

Have a look at http://www.srht.nhs.uk/patient--visitor ... ses-a-sah/ as well....

Hope this helps....

[Guest Beth1957]

but i wonder how can a BH heal by itself? its not an external wound. also if it dries by itself. there are chances that it may bleed again due to some pressure of any kind. i feel i am writing too much here, but i really wan to know what i think is right.

Poor Charudeepi; you've been through such a lot with little support.

I have a large aneurysm which was only diagnosed few months back. I'm waiting for coiling/stenting. Because it's so big, yet appears to be slow in growing, the neuro specialists think I may have had it for many years.

My neuroradiologist asked if I had a history of severe headaches, attacks of weakness, problems with short term memory and other cognitive functions etc. I confirmed that I had, and he said that I have probably had a series of small bleeds over the years, which presumably healed on their own.

[Louise]

Hi there

Warm welcome to the site, a little confused with your story but hey thats me

I dont remember having my SAH so cant tell you what it was like.....

wish you all the best......

take care

Louise.

[Guest charudeepi]

oh jesus....that sounds crazzzyyy.... series of bleeding. i must say that its possible. u r brave huh ?? I ought to go for a CT scan...

ok is CT scan more efficient or an MRI, when it comes to SAH? pls guide.

i need to work on it FASTTT....its been 4.5 yers actually, i dint experience that headache again, i dont have any memory loss..i can study normally , i get A grades with no too much of studies, but yes. i have problem in concentrating while programming, means i cant focus for long.I wanto always be in an open area, say under the sky or under loads of light, i cant stand YELLOW light. i feel i am depressed in yellow light. i have sinus also. may be thats one of the reasons...

i think u can really help me with this. i will go for a CT scan soon after reading ur reply abt CT or MRI.

waitng

Charu (my name is charu)

[Karen]

Hi Charu,

You need to ask the medics what the best test is, to detect an aneurysm ...? None of us are medical professionals on this website, so you need to go and speak to somebody that can advise you and find out what your options are.....

Good luck,

K xx

[Guest Beth1957]

oh jesus....that sounds crazzzyyy.... series of bleeding. i must say that its possible. u r brave huh ?? I ought to go for a CT scan...

ok is CT scan more efficient or an MRI, when it comes to SAH? pls guide.

i need to work on it FASTTT....its been 4.5 yers actually, i dint experience that headache again, i dont have any memory loss..i can study normally , i get A grades with no too much of studies, but yes. i have problem in concentrating while programming, means i cant focus for long.I wanto always be in an open area, say under the sky or under loads of light, i cant stand YELLOW light. i feel i am depressed in yellow light. i have sinus also. may be thats one of the reasons...

i think u can really help me with this. i will go for a CT scan soon after reading ur reply abt CT or MRI.

waitng

Charu (my name is charu)

Hi Charu,

No, I'm not brave; these things just happened and were put down to other factors. It's by no means certain that I did actually have any bleeds - there are other things which I have that could have led to many of the intermittent symptoms!

Karen is right though, you need to speak to a qualified medical person about the best test/tests for you. None of us here are so qualified, and every person seems to experience these things differently...

Good luck, my dear!