Guest zolabud Posted July 7, 2009 Share Posted July 7, 2009 Haven't been here for a little while,but I thought I would share my latest news with you all. I have had a few fits lately and went to see my new consultant at Hurstwood Park Hospital in Haywards Heath. He suggested a cerebral angiogram and it was booked for the beginning of January. I was offered a general anasthetic but as it would mean a night in hospital I said no. I have had 2 of these over the years without being put out and didn't have a problem. I checked in at 8.00am,was shown my bed and waited 'til my turn came. A nurse came in with a syringe and asked to take a blood sample.I said it had already been done by my doctor and didn't she have the results? I had seen my doctor the week before,explained that I need a sample of blood to determine clotting.I am now needle phobic and require Valium before having any injections. This was all sorted and I rang my doctor and asked her to pass the results on to Hurstwood Park.She said she would sort it. This was not done,and I gave the nurse the phone number of my doctor and asked her to ring her. She came back and said that my doctor couldn't find it,but I would probably be ok,and the scan would go ahead as planned. I asked on a few occasions about my valium.I explained to the consultant I would need something to calm me down beforehand,and I had 10mg of valium waiting. I was told it would be there soon.10 minutes before I went in I finally got my pill.I know from experience that they need around half an hour to be effective... Anyway,I went into the theatre and was given an injection in my groin which was unbearably painful.Then he started to thread the tube up to my brain,so that the dye could be injected and photos could be taken. I felt it go up to my bellybutton and had to ask him to stop,as I could no longer bear the pain.I tried very hard to keep still and just put up with it,but I found it impossible to carry on.The surgeon ripped his gloves off and flounced out of the theatre.I was in tears on the table.The lovely nurses explained that maybe my pain threshold had changed,but not to worry,I could have the same scan with a general anasthetic. Now beforehand I had a chat with the surgeon,who explained that unfortunately all my notes from 12 years ago had been destroyed.He advised me to make a complaint. The next day,I went back to try to get in touch with the Patient Liason Officer. I asked for her to find out why my notes had been destroyed and she said she would look into it.I also saw the nurse from the day before and expressed my concern about the way the surgeon flounced out of the theatre. She said,'Oh,don't worry about him.They can be quite arrogant,due to the nature of their work.He was cross that the scan hadn't worked.' I had a call a few days later and the Patient Liason Officer explained that as I had had no treatment for the past 7 years it is hospital policy to destroy notes. I explained that I have had 4 fits since 1997,all requiring hospitalisation,a stay of a week,lumbar punctues...Surely that is counted as treatment.My last fit being just before Christmas last year.She agreed and said they are looking into it to make sure it doesn't happen again. So I have been ringing my consultant since mid January trying to re-book an appointment. He never answers his phone,so I leave messages. No one has ever got back to me yet. In the meantime,I rang my doctor and asked if she had any notes from 1997 onwards? She said she would have a look and let me know. She did have some notes and sent them on to Hurstwood Park. Now at least they know what the clip is made of,but now they have to find out whether it is compatable with the scan I need..... I was trying to get to France for August on a working holiday,but have just cancelled it all.There is no way I can get a consultation,a scan,and then wait for the results,all in as month... Anyway,my point is,you should check to make sure your notes are still there. I know Hurstwood has its own policies.You should somehow check. Been nice to chat. Quote Link to comment Share on other sites More sharing options...
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