Gill C

hi & welcome JO. I m sure you find lots of help & support on here on your journey. Speak to you soon xx

HI & welcome to BTG, I agree with Lin you have certainly been through a lot & I've also hd a quick glance t your wesite which gives a very moving ccount of James' feelings throughout your journey. I hope lots of people read it & learn from it, I would love my Hubby to be so open about his feelings but he is typicl old fashioned bloke & keeps it all under wraps! I hope you nejoy the site & I will also read through your diary in bits, I'm sure it hs been invaluable to read your journey through his eyes (particulrly if some bits re hazy) Gill xx

I have only had one MRI & a couple of CT scans in the hopital but that is it & I've been discharged. I was clipped though & using 2 clips they know the anni is completely occluded.

My Dad had a bad stroke at the age of 58 but i have no idea if it was an SAH, I think his parents died quite young too but no idea what from. I know there are sight problems in the family so maybe there is a congenital weakness in the arteries to the eyes?

I askd my lady GP how many people she knew of in the area & she said none. The male GP I saw also hadn't seen anyne with an SAH hence asking me to go & talk to the trainee GP's. I too had an unsual story with my clipping as I hd vasospasms during the op wihtout havin had a bleed. Mr Sparrow mentioned it whilst with another neurosurgeon neither had known that to happen before!

Kath thats' interesting, I didn't know blood on the brain would show on a CT scan. I had a CT which came back clear as mine didn't burst so it was only found on an MRI 17 days later & even then not clearly until the angio was done.

Kevlz you may need to inform the DVLA again after your operation & although they might not change anything you should advise them & your insurance company. I still have my licence & am awaiting the medicla teams decision if I can drive without restriction ut haven't driven at all since my clippping (my anni didn't bust thugh)

I had typical symptoms 10 days after the initial anni balloooned byt didn't develop the classic symptoms until then although the pain & stiiff neck & where it happened were completely classic. I even had my own GP & 2 GP friends telling me it looked like a bleed on the 17 day wait for an MRI. The other misdiagmoses were muscle spasms, migraine & cluster headaches (I now realise I had suffered with these for years not knowing what they were). My Gp was actually moer well informed than my hosptial eye clinic who although scanned me by CT didn't do the MRI as an urgent case buttreated me as a normal outpatient Ihave been asked to go & talk to some tranee gp's about what happened to me which I am more than willing to do if it helps someone else get the right treatment. My problem is it was the hospital that let things down & they had lall the facilities & konowledge to make the right dianosis.

My memory for faces is bad if they are relatively new to me.A woman I didn't recognise spoke to me & asked how Nathan was at school the other week & I had no idea who she was. I asked if i knew her & she was the mum of the girl from Nathan's pre-school who goes to the same school. I had only met her twice but was totally mortified! I explained about the op & lcukily she is a nurse at my hospital so unerstood completely. I usually forget words too & spend ages thinking of it, the other day it was the name of a 4 sided shape that isn't a square or rectangle & the word was paralellagram but it took me days to to think of it! I do wonder if any of the brain training games would help me with this or not?

Stuart good luck for your op. I was clipped in June & only had a few hours to think about things which was probably a good thing. Not sure if you have said where you op is being done but hopefully they will give you some contact No's for you to call if you ahve any concerns at home. I am lcuky in that Wessex has a nurse specialist i can e-mial with any concerns. It might also be worth you contacting Headway for additional support if you need it (they also support family members). Everyone has given brialliant advice so it's just a case of listening to your body & taking things slowly, it really does get better!

Hi Kelvz & welcome to BTG. You ahve done amazingly well to be only a week in hospital & it is stille arly days for you. Your story is pretty familiar on here & we can all understand the emotions you are gpoing through. As for info on dishcarge I was given s booklet on SAH from Wessex & I bleive you can get a copy from the Brain & Spine foundation. It's helpful but a little short on the emotional side fo recovery. I have learnt far more from being on here. I also have a neuro physcology a(sp?)ppointment for some help with dealing with my emotions & any cognitive problems I have. It's worthwhile asking your GP or clinic to refer you as it isn't commonly offered b ut I did find a waiting lsit of 16-18 weeks I was told. You have to relearn a lot of things mostly to rest when you need to & drink lots of fluids to help with the fuzzy headed feeling. Keep talking to us on here & you will find lots fo support

Hi Pam & welcome to BTG. Gld you got diagnosed quckly but sorry to hear about your vision, there are a ew of us who have /or have had vision probems after an SAH & they can improve in a lot of cases. Thanks to your partner & hope the site will be some support to him too

I'm sure I read somewere that typcally they are usually after an SAH typcially 4-10 days. If you are worried about vasospams you really need to ring your clinic & check it out with them rather than your Gp or ring the Biain & spine foundtion helpline. xx

Great news Angela, have a wee celebration tonight xx

I agree it all sounds normal, I veer from sheer frustration to anger to tearfulness in th space of a few minutes (like the weather in Cotland - 4 seasons oin one day!!). I struggle with the tearfulness as I can't explain why I want to cry. I don't go as far as elation though & that makes me feel guilty too which makes me more tearful

Stu welcome to BTG. I had a clipppig on an ansyurism that han't bled so if there is anything I can help with just ask away. The recovery in hospital was quite quick (just over 2 weeks) but the main part is done at home & does take time. Try to drink lots of water (they advise 3l a day for anni patients!) & rest s & when you can. It can be frustrating in the early days but t does pay to listen to you body.

Hi grace & welcome to BTG. I was also clipped but once is enough for me, I was told there might be another anni at my last review & couldn't get my head around the idea of another op so I think you are amazing to have gone through 2 clippings so well. Looking forward to talking to you some more

HI & welcome Kath, would be good to hear from the other side of the hospital bed. I was in HDU for about 10 days & they did an amazing job although I didn't enjoy my stay there as unlike most of the patients in there I was concious most of the time (asleep the rest of the time).

HI Maddie, I too thought at 43 I was too young for an SAH but I did have an anni almost 4 months ago but firtunately mine didn't burst. I was clipped in June & still feel incredibly tired most of the time & my brain has a problem with over stimulation after about 4 hours anywhere. I am still learning what my limits are & have learnt the hard way to rest when I need to. Things do get better but you do need to take thigs at a pace your body cab]n cope with even if that means slowly. Welcome to BTG, it's been a Godsend to be able to talk to people who have been throught the same thing

ALL the comments made me grr but then the Daily Mail isn't reknowned for honest/sympathetic portrayals of a lot of not so nice situations (you should read their articles on infertility!). It is down to the fact that none of the artcile mentions that an SAH could potentially kill or leave you physically handicapped or the amount of pain people go through operation wise! No wonder the comments are so frivalous, you wouldn't wish an SAH on your worst enemy having been there?!

Hi Noah, wow 111 mile bike ride? well done you!! Thanks for the info on recovery, I am one of those who seems to have plateaued at the moment in moving forwards. I have no particular plans for my anni but then it's not for another 8months but I will remmeber it in some way I'm sure. Good luck with your celelbrations

Hi lYnn, sorry to hear about your sister. I know how worryng this time can be but you will find lots of support & info on BTG. I haven't had coiling but I can say how recovery was/is for me after clippping.

i htink I am more snappy than I was before but I can't get really angry as I just don't have the energy for it. I tend to get tired & furstrated & Nathan plays me up or hubby asks me something stupid (or even worse patronies me) & I just flip. But I don't stay cross for long but it's def more frequent now.

Stace welcome to BTG, so sorry aobut the loss of your Dad (()) My father had a stroke at 58 & it was quite a bad one (not sure if it was an SAH). If there is anything you want to know heopfully we can answer your questions & help you.

As the title says I'm feeling the worst downer I've felt for ages, Just feel I am stuck in a rut in terms of recovery & just not moving forwards Someone at school said today that I need to forget about my op & move forwads but how can I forget it when it affects my life every day & in every way? i am chronically tired all the time (my bloods are fine) & it isn't improving. I know it hasn't helped that I can't rest as much now Nathan is at school but other than one walk to pic him up I'm not doing lots more. I also found the workshop this morning overwhelming, we have such a lot of responsibility these days in terms of home education, we even have to sign a home school agreement!All these goals & targets made me feel completley inadequate as a mum,. Next week is the English worjshop & the follwoijng week a maths one but hubby is coming too so at leasrt he will know what is expected of us! Does everyone feel they reach a plateau in recovery about now? if so what should I do to help mysel continue to improve? Shoudl I see my GP & say i'm struggling wit things right now, I feel if I do that she might suggest anti depressants & I'm not sure i am depressed just feel like I'm stuck in a rut, all advice gratefully recived